Finally, people that I can relate to that can also relate to me!
So sorry that so many of you have pain. I hope everyone is able to take pain meds as I am not. They all make me a zombie!
I have degenerative disc disease, sciatica, spinal stenosis, herniated/bulging discs and arthiritis. I had surgery in 2000 at L3/L4 with current disc problems there again and at L4/L5. I wished I would have never had the surgery. The neurologist assured me that afterwards I would still be able to ride rollercoasters/snowmobiles and carry on with life as normal.
Liar, liar, hope his pants caught fire.
After a 2 almost 3 year battle my disability has gone through, but no amount of money can give me back my mobility. I have a 14 year old daughter and it sucks to not be able to cruise the mall with her.
I am currently 44 years young, but feel way way older. My biggest frustration (other than being active with my daughter) is making the hubby understand that intimacy is no longer fun for me. I don't like pain with my pleasure.
Praying for everyone here.
Well... I had the CT Myelogram today. They had to do two spinal taps... they couldn't get the dye to go through the first one.
When I saw the doctor, he told me that he still didn't see any cause for the pain I'm having now. He showed me the films, and sure enough the canals looked fine, no impinging on the nerve roots.
It just so happened that the process of the myelogram caused a flare-up of the nerve pain to my left side, and he saw me massaging it. He had me show him exactly where it was hurting... down the back of my arm and to the last two fingers on my left hand. His reaction? "oh..."
I asked "What oh?"
He said the pain I'm having right now is the root at T1... and the CT Myelogram didn't go that far down. Since my surgery was C4-C7, that's where they were focusing.
Sooo... now I get to start again with an EMG of my left arm to determine the exact nerves that are being effected. July 20th.
Sorry to hear about your latest problem Walrus, sometimes you feel like you have to do the doctors job also. I just had 2 cages put in at c 5-6 and c 6-7 and its been 3 weeks and nothing has improved, actually chronic pain from previous back problems have increased. I just feel like everything just got worse and there will be no turning back. The docs tell me the lower back will only get worse but it seems like its coming sooner then i expected and this neck stuff isnt helping. I usually try to stay upbeat but sometimes it just gets to you.
I totally relate to your story, docs told me the same thing about having a normal life but 8 years later sometimes i can barely walk. Pain is a constant and its hard when you have kids and try to explain you cant do certain things because your either in too much pain or exhusted from dealing with the pain. I also have the same degenerative disc disease, sciatica, spinal stenosis, herniated/bulging discs and arthiritis. Mine started at L/4 L/5 and now all the upper discs are collapsing on each other.Bone on bone now. Your not alone, its good to be able to vent to others that are in the same boat...hang in...Joe
Originally Posted by alphafemale
My husband has been dealing with back pain for years. It has gotten so bad that he takes enough pills to fell a horse and they don't faze him!
It concerns me as he also has a bad heart. Those meds can't be good for his heart!
The doctors told him he had 3 separate problems with his back and any surgery would only give him a 50% chance of walking again. We passed.
I was afraid of what might happen, looks like I was right, he couldn't have stood any more pain if the surgry had gone wrong!
My prayers for all of you suffering from the pain.
Analog free -April 17,2009
Ladies, Please join us in ECF's: The Women's Room
Thank You MaryKay, You always have a nice word for everyone and hopes and prayers for both you and your husband..Joe
Originally Posted by MaryKay
Walrus, I am so sorry to hear that. I know from reading that you have really been put thru the ringer. Shoot, I think we all have. I've given up on every feeling better. Seems like every time they fix something, something else goes wrong somewhere else. I just don't think my body will take any more surgery. I hate taking pain meds. Addiction is the last thing that I need. So like the rest of you, I just deal with it. It makes us all a special breed, wrecked ad bonkers.
Joe (JABlues) & Mary Kay: Thank you for the thoughts. Seems people don't understand how much back problems affect everything in life, including the clothes we wear.
I usually wear sweat pants, 1 because they are loose on my waist and 2 to keep the leg muscles warm to prevent cramping.
I also have bouts of RLS (restless leg syndrome). Guess I kicked the crap out of the hubby pretty good a couple of nights ago! That'll teach em! lol
I am starting to have trouble with my left arm and shoulder from laying on that side too much. I try to lay on the right, but I don't get as much relief.
My disability lawyer asked me if I planned to get treatment when all was said and done. Should have seen the look on her face when I said no. I think the first surgery actually made things worse. I don't recommend it for anyone unless you are in extreme pain, like on a scale of 1 to 10, you are at 50.
Alpha, a friend of ours got his disability approved in court telling the judge exactly what you just said. I feel for anyone with back pain. I had to have the lower part of my sacral spine fused so they could reattach my pevis to my spine and I have so many problems with it. Anyone that hasn't had back pain really doesn't understand what we go thru each and every day. And getting comfortable... that is a dream. You just can't do it no matter how hard you try.
One thing I have found that will give me some, little, relief now and then is a heating pad that I got at Walmart. It is one that wraps around you and attaches using velcro that way as you move it stays in the same place. You can get into any weird position you want and it's still in the spot you need it.
Jules, thanks for the heating pad tip. I will look for one.
I did have a hearing date, but the morning of it, they called and canceled. My lawyer told me when they do that it is usually a favorable decision, which it was.
When they sent my paperwork a week later they stated that they may check on me in two years. I'm like duh, I've been dealing with this for almost 3, why do you think I'm gonna get better in another 2?
Sounds like your surgery was worse than mine. My heart goes out to you.
Has anyone ever heard of Osgood-Schlatter disease? It's basically swelling of the knees in teens. I was diagnosed with it at 14. You are supposed to out grow it, but my knees are extremely sensitive.
Last edited by alphafemale; 07-01-2009 at 12:22 AM.
Reason: forgot something