First of all, I'd like to thank trukinlady, and everyone else who helps, for this social group. As a cancer survivor it is nice to see a place where folks can share concerning this disease.
I am a survivor of stage 4 Follicular (indolent) non-Hodgkin's Lymphoma. I was diagnosed Feb 14, 2006 at the age of 40, and have been in remission since August the same year. Chemotherapy worked very well for me, and I endured it easily, even though that is usually not the case. Don't get me wrong, it sucked, but sitting in those chairs you see people who are having a whole lot harder time than I did. I also did 2 years of Rituxan therapy, which was no problem at all. Since then I have PET scans every six months.
I am also diabetic, and my GP is a very aggressive diabetes doctor. I see him every three months and have blood work done before I go to him. I had a PET scan last week on Tuesday, so I scheduled my fasting blood tests the same day, two birds/one fasting mentality. I also had blood work done for my oncologist the day before, no fasting necessary. On Thursday my GP office calls and tells me I need to do another blood test, my first one shows my white blood cell count low. Well, this totally freaks me out, the only reason to have low WBC counts, in my uneducated opinion, is because my lymphoma, which was in my bone marrow, has returned. I take off early from work to get another blood test and stress the rest of the day - night - next morning.
So Friday morning I couldn't take it any longer and call my oncologist's office. I talk to one of the infusion nurses and ask her what my WBC count was from their test. 5.4, perfectly normal. Okay thanks, and how did the PET scan look? Humm, let me see, (she's killing me here), ah, every thing looks good, no changes from the previous one.
Well, what a relief. I texted my wife and let her know and she tells me she's been having indigestion all day. So I guess it wasn't only me stressing over this. Anyway, I don't see my Oncologist until the 18th, but I know what he will say now. As for my GP, I see him on the 16th and can't wait to tell him I quit smoking and started vaping, maybe he'll get off my ..... I will also tell him, as a cancer survivor, I don't like them telling me my CBC is messed up, call my Oncologist and discuss with him first.
Anyway, thanks again for this group, and for listening to my whining. Y'all are great.
Jag
I am a survivor of stage 4 Follicular (indolent) non-Hodgkin's Lymphoma. I was diagnosed Feb 14, 2006 at the age of 40, and have been in remission since August the same year. Chemotherapy worked very well for me, and I endured it easily, even though that is usually not the case. Don't get me wrong, it sucked, but sitting in those chairs you see people who are having a whole lot harder time than I did. I also did 2 years of Rituxan therapy, which was no problem at all. Since then I have PET scans every six months.
I am also diabetic, and my GP is a very aggressive diabetes doctor. I see him every three months and have blood work done before I go to him. I had a PET scan last week on Tuesday, so I scheduled my fasting blood tests the same day, two birds/one fasting mentality. I also had blood work done for my oncologist the day before, no fasting necessary. On Thursday my GP office calls and tells me I need to do another blood test, my first one shows my white blood cell count low. Well, this totally freaks me out, the only reason to have low WBC counts, in my uneducated opinion, is because my lymphoma, which was in my bone marrow, has returned. I take off early from work to get another blood test and stress the rest of the day - night - next morning.
So Friday morning I couldn't take it any longer and call my oncologist's office. I talk to one of the infusion nurses and ask her what my WBC count was from their test. 5.4, perfectly normal. Okay thanks, and how did the PET scan look? Humm, let me see, (she's killing me here), ah, every thing looks good, no changes from the previous one.
Well, what a relief. I texted my wife and let her know and she tells me she's been having indigestion all day. So I guess it wasn't only me stressing over this. Anyway, I don't see my Oncologist until the 18th, but I know what he will say now. As for my GP, I see him on the 16th and can't wait to tell him I quit smoking and started vaping, maybe he'll get off my ..... I will also tell him, as a cancer survivor, I don't like them telling me my CBC is messed up, call my Oncologist and discuss with him first.
Anyway, thanks again for this group, and for listening to my whining. Y'all are great.
Jag