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Arthritis/joint pain tips?

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1 Cute Canadian

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Mar 8, 2009
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Toronto, Canada
Anyone have any coping tips/advice for joint pain/arthritis? I have a little one who as part of his syndrome suffers bouts of joint pain, I notice change of weather brings on attacks, and with his age is unable to articulate well, though it is apparent in his movements and attitude when it is bothering him. I have a pool in the summer but in Canada it is hard to get it to a temp that he can tolerate, any ideas for other simple ways to get him through the rough spots would be greatly appreciated.
 

1 Cute Canadian

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Mar 8, 2009
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Toronto, Canada
Well I have had joint and back pain all my life. Mine is not from Arthritis but more from my gate, or how I walk.

The only thing so far that has helped me was advil. Do you have him on any sort of drug? Poor little guy, it has to be tough.

Hi Chris, Thanks for replying. He is on Anakinra (aka Kineret) which is esentially for arthritis in adults, but in his condition (NOMID, Neo-natal onset multi system inflammatory disease or CINCA, Chronic infantile neurologic cutaneous and articular syndrome in the UK) it blocks a receptor which causes the symptoms of his disease. It is effective in controllong (to an extent) many of his problems, but he continues to get "flares" where it can not be controlled. He does cycle between Tylenol and Advil when he is having flares, but I wonder if there are other non medicinal therapies that can help.
 

Christopher

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Mar 21, 2009
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Hi Chris, Thanks for replying. He is on Anakinra (aka Kineret) which is esentially for arthritis in adults, but in his condition (NOMID, Neo-natal onset multi system inflammatory disease or CINCA, Chronic infantile neurologic cutaneous and articular syndrome in the UK) it blocks a receptor which causes the symptoms of his disease. It is effective in controllong (to an extent) many of his problems, but he continues to get "flares" where it can not be controlled. He does cycle between Tylenol and Advil when he is having flares, but I wonder if there are other non medicinal therapies that can help.

I found this link here

I'm sure you have tried a lot of this stuff, but I hope there is something there that can help.
 

Mary Kay

ECF Guru
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Apr 3, 2009
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West Tampa Fl.
Have you tried Capsaicin maybe with a cream to cut the heat a bit? It works for my mom when her Arthritis flares up in her fingers. They use bee stings to reduce swelling and pain..don't recomend that!
I use Biofreeze for Mike's (Hubby) back pain. It kind of disapears in his skin. Smells like Vicks vapo rub. Mike says it doesn't do a whole lot as far as pain relief ( but nor does his 4 pain relievers), but it does seem to relax the muscles and he likes the massage.:rolleyes:
 

Jules22871

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Apr 7, 2009
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I have a lot of joint pain from my accident. I have found that a really hot bath with plenty of dead sea salt in the water really gives me a lot of relief. I Order the salt in 20 pounds off of Ebay and I love it. I don't think using water as hot as I do for the little guy would be good for him, but the salt still dissolves well in warm water too.
 

Cori

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May 7, 2009
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I'd have to echo the heat part. Its what I use mainly for coping since so many meds just upset my stomach. When I get up in the mornings and my joints really hurt, I usually run myself a nice hot bath..as hot as I can stand it. Then I lie back and soak for 15 mins or so. This really helps with the pain and loosens me up. Also, staying active is key, without overdoing it. When I get lazy and sit around too much, I really get stiff and sore. I'm really sorry for your little one and I hope you find a treatment that works well for him.
 

ShimmyPrincess

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ECF Veteran
Feb 27, 2009
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The Windy City
Broken record, heat. I also 2nd the dead sea salts too.
I was diagnosed with RA and chronic fatigue when I was 21. Heat helps and so does exercise. (waterbed are great, but parts are hard to come by, so when my died I got a sleep number bed with a heating cover)

Always check with a Dr. before any exercise routine of course, but I have to say that for a few years I was pretty lazy in the exercise department until I took up belly dancing which is low impact and then got a dog. Walking her a few miles a day, I feel so much better. The first few month were hard, but it got better and continues to get better!

Good luck with him & keep us posted
 

Elfod

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Apr 28, 2009
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TN, USA
You might look into RIFE RESONANT Therapy. It is pretty involved, but it looks like this may be a long term problem. It is an amazing technology, that is really just beginning to be investigated. Its mechanism of action is not well understood. I have been researching and using it for several years.
Just Google Rife Therapy...Lots of info.
 

Starlight

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Jan 21, 2009
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I have spinal problems as well as MS, my spinal canal is too narrow so it presses on the spinal nerve ("stenosis"), and facet joint arthritis with it. This causes me chronic acute lower back pain and also referred pain in my hip and leg, making standing and walking very painful. I also have some milder osteoarthritis in my spine but I'm not too aware of any pain from it, or maybe the stenosis overpowers it. I also have osteoporosis in my lumbar area and head of femur, but no pain from it.

There isn't a pain killer on this earth that helps except for resting by sitting or lying down. I now have a combination of nerve block and steroid injections into the spine, in different areas, which sometimes helps and sometimes doesn't. Short of that, surgery is the only other option but we're trying to avoid it (for now at least!).

I also had problems with my knee joints many years ago and had cortisone shots for those too and they helped. I rarely get pain in my knees nowadays, but I did have to give up certain sports in order not to trigger it again.

Years ago, it was suggested I try a TENS machine for my back. Someone else I knew who also had spinal stenosis found it helped. Unfortunately, I didn't. Might a good TENS machine help?

I agree that hydrotherapy is an excellent way of exercising as the water supports you and makes exercising much easier and in a gentler way.
 
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deliza

Senior Member
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May 26, 2009
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St Louis Metro
I have ankylosing spondylitis, so I have a lot of issues with my spine a peripheral joints. I just starting taking tumeric tablets (yes, the indian spice thats in curry) a few months ago, and the effect has been really good. I kind of stumbled into it, it was recommended to me for a skin condition, but when I started using it, my joints felt lots better. After I dug around a bit, I found some research that indicated that it acts as a COX 2 inhibitor, thus the pain relieving effects. It has been really helpful to me.

Sorry, if it is inappropriate to post here without invitation, if so, just tell me and I'll get lost. Also sorry if tumeric has been brought up already.

D
 

greyeyes

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May 31, 2009
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Florida
I have OA and RA. A couple of things I may be able to add is that I use Lidoderm patches (by prescription only) but not sure if they can be used by children. The patches are rather large but can be cut into any size you need. I have used them on my knees and large knuckles on my hands. The best way for use on my hands is by putting them on at night before bed otherwise they won't stay on with daily activity. I cut them into strips that run horizontally across my knuckles and then I put on a pair of snug gloves or mittens.

A thought about things that in my case, trigger flares. Besides the weather which we cannot control, I found that if I take in too much sodium, it will throw me into a flare as quickly as a change in the weather.

The only other thing I can think of is that my stomach cannot tolerate regular aspirin but I can take low dose (81 mg.) enteric coated aspirin without a problem.

Debbie
 

NutttSo

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ECF Veteran
When my son was young he had juvenile arthritis in his hands. big knots on the finger joints, and was in great pain and could not close his hands or grab anything, the docs said he would have this for the rest of his life and he could only control the pain with drugs, at the time we lived way out in the country and I met a lady that was into herbs. she said she had taken ppl with arthritis out of wheelchairs with a salve she made, she gave me a small jar of it. I rubbed it into the knots on my sons fingers, 2X's a day. after a week I seen small pimples forming on the knots. the lady said this is the calcum of the arthritis coming out thro the skin. so using this salve for 2 months the knots where gone and he could close his hands ang hold on to anythig he grabed. my son is now in his 30's and has had no more problems.
here is how the lady told me to make this salve

take a handfull of Balm of Gilead ( you can get this from any bulk herb seller on the net )
add it to a pound of unsalted lard
I put in a very small pinch of red pepper for a soothing heat that helps with the pain.
let it simmer on very low heat all day
put in in a jar do not strane
rub on the spot with arthritis 2X's a day

and is safe to use on children

hope this helps everyone with arthritis

NutttSo
 
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Robert

Moved On
Jun 18, 2009
1,275
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San Diego, CA.
I posted this to Mary a few day's ago. I wanted to make sure everyone here could read it also, so I joined your group..

I will answer any questions you might have about EFT either here or PM me and I will walk you through it over the phone.

Robert
MaryKay said:
Thank you Robert, I will look into this. very Kind of you!
The reason you couldn't post to an exitisting thread is that we are a semi private forum in Wreaked and Bonkers. You need to join to post. Click on the hyperlinked word "here", that will take you to the social group page that you join on.This is a forum to a social group. Click here to visit the Social Group.
Thanks again, Mary


Robert said:
Hi,
I would have just posted this but, I'm new so I couldn't reply.

May I suggest something completely different.

My fiance' has an MA in Psychology and has been using EFT for both emotional issus and physical problems.

You can learn this for free at emofree.com they will give you a free manual. Then you can appy it to your Mom by tapping on yourself but thinking of her.

It seems impossible. So far I have fixed my back, my Moms knee, and some emotional issues about myself. My fiance' has used it for year on everything!

This video will explain some but go to the site above.

YouTube - Amazing Universal Healing Aid -by Gary Craig EFT Founder

I hope this helps.

Robert
 

Robert

Moved On
Jun 18, 2009
1,275
2
57
San Diego, CA.
Hi Everyone

My fiance' has an MA in Psychology she has been using EFT or Tapping as it is more commonly known for the past 10 years. I have been using it for about a year. It is amazing and you all should try it on your pains. Gary Craig invented it in the 90's. It fixed my back pain in 5 min., fixed my Mom's bad knee and has help myself and thousands of others and it's free, no pills, no drugs. This is Gary Craigs website he will give you a free manual here- EFT Home - World Center for EFT (Emotional Freedom Techniques) This is a PDF that will show you how to do it
http://www.centerforinnerhealing.com/eft/eft_on_a_page.pdf . I have a program I have written "Tapping on Golf Performance" I can lowere golf scores with tapping. If any Golfer out there want's to try it I will give 100% money back if it dosen't help. My fiance' is currently working on a founding a support group for "Tapping on Codependency" she has written a book by the same name. Enjoy these video's and please try this you have nothing to loose.

Robert:)

YouTube - EFT Documentary Film -Try It On Everything

YouTube - Amazing Universal Healing Aid -by Gary Craig EFT Founder

YouTube - EFT Skeptic

I believe this is an amazing discovery and I just want every one to know about it sorry if it's a repost.

Robert

ps That is Gary doing EFT on the skeptic in the last video, old video.
 
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