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Bipolar disorder. My story, smoking.

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Stormlark

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Just to add more to the conversation:

It took a very long time for me to find the right doctor and the correct medications. I'd go through phases that lasted years where I'd just give up trying to find a solution. I couldn't hold down a job and I didn't have a social life. I was alone for the most part. Taking the initiative to find a doctor and make an appointment is difficult during the times you need it most, and as I said before, it's hard for the people around you to understand that you need help. You're not just going to "get over it." Medications aren't a cop-out. Etc.

I've been given various diagnosis throughout my life, starting when I was 12. I was first brought in to the doctor with an ulcer, and he described me as being "a bit anxious." My parents neglected to mention that I was working full time in a factory while being "home-schooled" to keep our family from becoming homeless. Our house had no heating. One winter, I had a pet goldfish in a bowl next to my bed. I woke up and the water had frozen solid. That's how cold it was inside. Added to the abuse I was also dealing with... well, I didn't have a very good start in life.

The second diagnosis was when I was 17 and started having panic attacks and flash backs to the abuse. They said I had PTSD. Then I became clinically depressed. Then I was "a danger to myself" and had to fight to convince the doctors not to institutionalize me. I don't remember what the next thing was... something about dissociative tendencies and attempts to "withdraw from reality." After that it was generalized anxiety and panic disorder and then "bipolar" because I'd swing from being overly anxious to being overly depressed.

My current diagnosis is episodic mood disorder not otherwise specified, but my psychiatrist has told me to not worry so much about titles. She's really been great. One of the few meds that have helped me is too expensive for our budget at $500 a month, so she loads me up with free samples every month (I actually bring a backpack so she can fill it up, since a sample box usually only has about 5 pills).

I've been on zoloft, prozac, paxil, effexor, cymbalta, celexa, wellbutrin, trazadone, vibryd, lamictal, seroquel, xanax, valium, and clonazepam (probably others I'm forgetting). The worst part is that the anti-depressants never helped me, but every doctor insisted that's what I needed. Thankfully my current psychiatrist actually listened to me and took me off of them. My current cocktail is lamictal (a mood stabilizer), seroquel (an anti-psychotic), and occasionally xanax (similar to valium) when I'm at my worst.

I hope I didn't bore everyone with the novel, but I like the idea of this thread. Mental health is invisible most of the time and it's great when people can share their stories so others can understand what it's really like.
 
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LongHaul

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Just to add more to the conversation:

It took a very long time for me to find the right doctor and the correct medications. I'd go through phases that lasted years where I'd just give up trying to find a solution. I couldn't hold down a job and I didn't have a social life. I was alone for the most part. Taking the initiative to find a doctor and make an appointment is difficult during the times you need it most, and as I said before, it's hard for the people around you to understand that you need help. You're not just going to "get over it." Medications aren't a cop-out. Etc.

I've been given various diagnosis throughout my life, starting when I was 12. I was first brought in to the doctor with an ulcer, and he described me as being "a bit anxious." My parents neglected to mention that I was working full time in a factory while being "home-schooled" to keep our family from becoming homeless. Our house had no heating. One winter, I had a pet goldfish in a bowl next to my bed. I woke up and the water had frozen solid. That's how cold it was inside. Added to the abuse I was also dealing with... well, I didn't have a very good start in life.

The second diagnosis was when I was 17 and started having panic attacks and flash backs to the abuse. They said I had PTSD. Then I became clinically depressed. Then I was "a danger to myself" and had to fight to convince the doctors not to institutionalize me. I don't remember what the next thing was... something about dissociative tendencies and attempts to "withdraw from reality." After that it was generalized anxiety and panic disorder and then "bipolar" because I'd swing from being overly anxious to being overly depressed.

My current diagnosis is episodic mood disorder not otherwise specified, but my psychiatrist has told me to not worry so much about titles. She's really been great. One of the few meds that have helped me is too expensive for our budget at $500 a month, so she loads me up with free samples every month (I actually bring a backpack so she can fill it up, since a sample box usually only has about 5 pills).

I've been on zoloft, prozac, paxil, effexor, cymbalta, celexa, wellbutrin, trazadone, vibryd, lamictal, seroquel, xanax, valium, and clonazepam (probably others I'm forgetting). The worst part is that the anti-depressants never helped me, but every doctor insisted that's what I needed. Thankfully my current psychiatrist actually listened to me and took me off of them. My current cocktail is lamictal (a mood stabilizer), seroquel (an anti-psychotic), and occasionally xanax (similar to valium) when I'm at my worst.

I hope I didn't bore everyone with the novel, but I like the idea of this thread. Mental health is invisible most of the time and it's great when people can share their stories so others can understand what it's really like.

Your not alone we get our PTSD from the same source. I smile at the people that tell me to get over it and move on cause they can't see the visions going through my eyes when the flash anger hits.


Sent from my truck using 3 toasters a broken microwave and 6 rubber bands McGyver style......Chuck Norris aint got crap on me
 

dhdonline1

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Well I have to say thank you to everybody who has shared their stories!

I am not sure I am bi-polar, but in almost every story here, I see quite a bit of myself. I seem to either obsess, or it doesn't mean anything to me (if that makes sense?). I am either ecstatic to be alive, and about everything around me - or I have to force myself off my ..... Just a short description of myself but I won't get into great detail because I will never stop! Bottom line, I see a lot of myself in a lot of these posts. Not to the extreme that I cannot "function" on a daily basis, but I have made a lot of very poor decisions either because I didn't give a rat's behind about much of anything at the moment (depressive?) Or because I couldn't imagine any ill consequence from the decision I could make (manic). That's not even a proper description, but I'm sure you all know what I'm trying to describe.

After reading all your stories, I think I should go see my doctor. Like I said, if I do fit into this family, I don't seem to be at the higher intensity of the spectrum, but you have all opened my eyes here. My mom actually said to me a few years back "you are severely depressed. You should see a Dr!". Now, my mom was diagnosed with depression. Maybe my nicotine addiction has something to do with self medicating?

Thank you all for listening! And for sharing your stories here!
 

Racehorse

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For 30 days I was one of those people we meet in life that have this special spark that attracts curiosity and admiration. I was hitting on all cylinders and then some.

What goes up must come down. A thirty day bottomless pit of despair followed.

Thanks for sharing your very honest story. Your description of bi-polar disorder is so perfect. It's like seeing directly my ex SIL, she is a brilliant artist/sculptor and the stuff she creates when manic is unbelievable. Followed by the times when we had to get the fire department to knock down doors to break in when she dissapeared into the deep depression you speak of, to make sure she hadn't harmed herself.

I later worked in a psychiatric day hospital and learned a lot more about this illness, and how the whole family and relationships can be affected by this. And then, there is the stigma they suffer. I agree that people seem to have a lot more understanding and compassion for those who are physically ill, because they can "see" it....yet, there are so many w/ a chronic debilitating illnesses, or injuries, or terrible pain syndromes, that are not "obvious" to the naked eye. It's very hard because all human beings want to be loved and understood....and not judged harshly.

I hope you get your disability, I think you are certainly a person who needs to "work" at taking care of their health, which is pretty impossible if you're also working a real job, because just taking care of yourself when you have a chronic illness IS a full time job.

My hat's off to you for quitting smoking, that's a big accomplishment, and something that shows that you can achieve your goals, despite battling with a chronic illness simultaneously!

You're an inspiration, and I send my very best to you.

Maybe my nicotine addiction has something to do with self medicating

I'm sure there is research on this, but I've noted that to be true. I believe there *may* be a low-grade chronic depression thing going on in most smokers, which may be "masked" by the chemicals they get from smoking. The 2 times I quit cold turkey for several years at a time, I noticed I felt low, which isn't normal for me. It's also interesting that a drug, wellburtrin, which is actually an anti-depressant, is prescribed to help people quit smoking!
 
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Amish Ed

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Anhedonia sounds like me for sure. As to the costs and insurability, I definitely know about that one. I'm a smoker with mental illness and severe back problems. I was paying $700 a month while unemployed (that was through a state program). I now pay $250 through work. I really don't like my job, but it has decent (Kaiser) insurance for the price. As much as I hate big pharma, It also has saved my life.

Do you listen to podcasts? There is a great one called the Mental Illness Happy Hour. Most of the guests are comedians as is the host. It's a nice honest look at mental illness, addiction, and general mental issues from the perspective of those going threw it. Unfortunately, there's only been one guest that was Bipolar, and I can't remember her name.
 

Stormlark

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My university sent out an email when they first instituted the smoking ban. The email gave statistics on smokers that I found quite offensive, such as smokers have a lower IQ, are more likely to drop out, have lower grades, and are more likely to suffer from a mental illness. I'm surprised a university would do something so stupid as to insinuate that correlation = causation. Maybe people who have mental health issues are more likely to smoke and these underlying issues also cause lower test scores and grades. It makes more sense than implying that your IQ drops when you start smoking or that all these problems will be solved when a person quits.
 

oxygen thief

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Smoking works on dopamine, the pleasure centers of the brain. Wonder if vaping does. I'll tell you a few side effects I've had and hope I'm not repeating myself.

Myoclonic jerks. I was on a sales call and was meeting with an office manager while trying to adjust to a new drug years ago. I reached across her desk to shake her hand and my right arm FLEW to the left and cleared most of her desk. LOL How do you explain that one?

Sexual side effects. Most bad, occasionally awesome.

Sweating, a lot.

Weight gain. Especially atypical antipsychotics, Zyprexa, Seroquel etc. Sometimes you've gained 40 pounds before you realize it.

My newest bizarre side effect from antipsychotics that I diagnosed and my doctor had never heard of, Pisa Syndrome like the leaning tower of Pisa. From the waist up I lean to the left. Not noticeable to most but my psychiatrist spotted it a few weeks ago. He said see a neurologist. I did and had an MRI which was OK. (those freaking MRI's are noisy!)
I called my doc and said the MRI was fine and brought up the Pisa Syndrome. He was excited to research it. I met him in the hall after leaving therapy. He said he thought it was Pisa. I'll have to get off the med and it should clear up. If not, anticholinergic meds are used to treat it.

EMS ride to ER for tachycardia. That was fun. Got a cab to get home wearing a robe that had seen better days and flip flops. :)

The very first med I responded to was Amitriptyline, a very dirty drug but effective. After about three weeks upping the dose I made the mistake many people make, I said this doesn't work and quit taking it. I was totally manic and called my mother at 7 a.m. telling her I knew the answers to the mysteries of the universe. My brother called I told him the same thing. I was flying. After about 30 minutes I started feeling not so good. Sweaty, nausea, weird. My brain clicked and I said I'm in withdrawal. Called my doc who said loudly, you can't do that. He said take half a dose and call into work. Psychiatrists give you the pills without much info so find a pharmacist you trust and pick their brain.

There have been some great stories told here and once again I can get choked up reading them. I'll check out the podcast..thank you.

There are brilliant people at the top of their profession who are bipolar. The arts, business, etc. I only got the bipolar. HAHA!

A friend told me last week, you just get into stuff and learn everything you can. Why are you saying 'we' when talking about ecigs? sigh
You did it with mental health and Amy Winehouse(massive fan) and drumming. I don't know why I do things like I do but I think it's all good. Better than sleeping 16 hours a day only to wake up to suicidal ideation.

A lot of people are anti-med, anti-psychiatry etc and I can understand that. Just don't tell me what I should do. And people having problems surface should not be afraid of seeing someone for help. You can't bootstrap mental illness and, despite the side effects, I'd do it again. Not everyone will have to stay on meds for life. Read, study, join a forum if you can. Take control because this is a live or die disease.

Sorry this is so long. If you're sick, get help. That's my message. The stigma will be there but it's not quite as bad as it used to be. Many people you talk to everyday are on psych meds or have been on them. We're all God's children. Be humble.
 

dhdonline1

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Smoking works on dopamine, the pleasure centers of the brain. Wonder if vaping does. I'll tell you a few side effects I've had and hope I'm not repeating myself.

Myoclonic jerks. I was on a sales call and was meeting with an office manager while trying to adjust to a new drug years ago. I reached across her desk to shake her hand and my right arm FLEW to the left and cleared most of her desk. LOL How do you explain that one?

Sexual side effects. Most bad, occasionally awesome.

Sweating, a lot.

Weight gain. Especially atypical antipsychotics, Zyprexa, Seroquel etc. Sometimes you've gained 40 pounds before you realize it.

My newest bizarre side effect from antipsychotics that I diagnosed and my doctor had never heard of, Pisa Syndrome like the leaning tower of Pisa. From the waist up I lean to the left. Not noticeable to most but my psychiatrist spotted it a few weeks ago. He said see a neurologist. I did and had an MRI which was OK. (those freaking MRI's are noisy!)
I called my doc and said the MRI was fine and brought up the Pisa Syndrome. He was excited to research it. I met him in the hall after leaving therapy. He said he thought it was Pisa. I'll have to get off the med and it should clear up. If not, anticholinergic meds are used to treat it.

EMS ride to ER for tachycardia. That was fun. Got a cab to get home wearing a robe that had seen better days and flip flops. :)

The very first med I responded to was Amitriptyline, a very dirty drug but effective. After about three weeks upping the dose I made the mistake many people make, I said this doesn't work and quit taking it. I was totally manic and called my mother at 7 a.m. telling her I knew the answers to the mysteries of the universe. My brother called I told him the same thing. I was flying. After about 30 minutes I started feeling not so good. Sweaty, nausea, weird. My brain clicked and I said I'm in withdrawal. Called my doc who said loudly, you can't do that. He said take half a dose and call into work. Psychiatrists give you the pills without much info so find a pharmacist you trust and pick their brain.

There have been some great stories told here and once again I can get choked up reading them. I'll check out the podcast..thank you.

There are brilliant people at the top of their profession who are bipolar. The arts, business, etc. I only got the bipolar. HAHA!

A friend told me last week, you just get into stuff and learn everything you can. Why are you saying 'we' when talking about ecigs? sigh
You did it with mental health and Amy Winehouse(massive fan) and drumming. I don't know why I do things like I do but I think it's all good. Better than sleeping 16 hours a day only to wake up to suicidal ideation.

A lot of people are anti-med, anti-psychiatry etc and I can understand that. Just don't tell me what I should do. And people having problems surface should not be afraid of seeing someone for help. You can't bootstrap mental illness and, despite the side effects, I'd do it again. Not everyone will have to stay on meds for life. Read, study, join a forum if you can. Take control because this is a live or die disease.

Sorry this is so long. If you're sick, get help. That's my message. The stigma will be there but it's not quite as bad as it used to be. Many people you talk to everyday are on psych meds or have been on them. We're all God's children. Be humble.

Thank you for your reply! :) Like I said before, I think I'm more at the "less intense" part of the spectrum. The reason your post (and everybodys) has hit home for me is because I do see myself, just at a lower intensity. Having said that, after reading all this, and thinking a lot, I do think over the years it has progressed somewhat.

I have tried to quit many times. MANY!! Every time I did, it wasn't the withdrawls that did me in. Every time I'd try depression would set in. Every time. I mean I would still have the mood swing while on tobacco - actually I think it was more intense. Maybe that has something to do with the rapid rise of nicotine level when smoking and trailing off until the next "top up". I think with vaping being a slower absorption, and the fact I'm pretty much always vaping may keep that level more even. Of course this is all speculation on my part, but makes sense to me. :)

I've never understood people that think poorly of people with any type of illness. Especially mental illness... Maybe because I see it as exactly as its "labeled".... An illness. Something out of your control. Its not like anybody affected chooses it!
 

LongHaul

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Do you have problems with sound? There are some sounds that will set me off with no regard for anything but stopping the sound. I once took a sledgehammer to a plasma tv cause of the cartoons playing


Sent from my truck using 3 toasters a broken microwave and 6 rubber bands McGyver style......Chuck Norris aint got crap on me
 

dhdonline1

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You could have cyclothymia. You might want to look it up.

I am as we "speak" :)

EDIT: That pretty much sums it up. Although the euphoric or manic periods seem to be very short with me. Usually ranges from as short as an hour and may last upwards a week.

I haven't noticed sound setting me off, although on occasion a situations that would aggrivate anybody sometimes seem to be amplified to me.
 
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oxygen thief

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Do you have problems with sound? There are some sounds that will set me off with no regard for anything but stopping the sound. I once took a sledgehammer to a plasma tv cause of the cartoons playing


Sent from my truck using 3 toasters a broken microwave and 6 rubber bands McGyver style......Chuck Norris aint got crap on me

Yikes! OK, I've heard voices off and on for years but just told my doc a few weeks ago. They sound like a radio announcer talking non-stop and sometimes music. I always hear just enough that I can't make out what they are saying or what I'm hearing. No voices telling me to do things. They are so unobtrusive that I never brought it up. I've heard of people without any diagnoses do the same thing. Still when I told my shrink he was writing like crazy in my chart.

Not sure about other sounds setting me off but I hope it wasn't your neighbors TV. :) I'd be more concerned about the acting out, impulse control and why you didn't turn it down instead of destroy it. Do you have a temper otherwise?
I know listening or seeing Celine Dion or Yanni would be a major buzz kill.
 

Berylanna

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Just to add more to the conversation:

It took a very long time for me to find the right doctor and the correct medications.
<snip>
I've been on zoloft, prozac, paxil, effexor, cymbalta, celexa, wellbutrin, trazadone, vibryd, lamictal, seroquel, xanax, valium, and clonazepam (probably others I'm forgetting). The worst part is that the anti-depressants never helped me, but every doctor insisted that's what I needed. Thankfully my current psychiatrist actually listened to me and took me off of them. My current cocktail is lamictal (a mood stabilizer), seroquel (an anti-psychotic), and occasionally xanax (similar to valium) when I'm at my worst.

I'm a little horrified that some of those were even tried. Prozac is for Dysthymia, which is almost not even depression. In fact, I can do my job better withOUT treatment, since programming works best when you don't move for hours and hours. But the rest of my life, including motherhood, works MUCH better with it! So unless they give me a HUGE raise, like 5X, I'm sticking with the Prozac.

This is not the first time I've heard of doctors using whatever treatment THEY are most comfortable with instead of what is right. My mother-in-law was bipolar, and they had her on treatment for schizophrenia for years and years "because that is the drug I like to work with." !???!!? Would a doctor who takes out appendices of people with tonsilitis because that's what he "likes" to do be considered competent????

(BTW, I'm not convinced dysthymia is REALLY a disorder anymore than SAD is....they are both perfectly appropriate to situations where society is tribal and you live in snow! For me, it's the WORLD that's dysfunctional!)
 

Berylanna

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They say when life hands you the lemons, enjoy lemonade with a friend.

Even better: a friend who shares the same interest in RBAs.

Hope things look up for you in the future. The best ones are somewhat off-center.

What are RBAs please and how do we get them added to the Abbreviations sticky?
 

Amish Ed

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Noise definitely effects me. But, then I'm also on the Autism spectrum. I hear all the stuff that other people are able to filter out. Often, the noise is so loud I can't focus on what's in front of me. It was interesting sitting down to tell my oldest son that he has Autism and both of us could barely concentrate because of all the background noise at the park. I ask if if such and such sounds were bugging him and he said yes. My wife never even heard the 10+ background sounds I rattled off. Makes life interesting to say the least. I also have the same problem visually.
 

Cm7b5

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OT:

thanks for putting your story out there. I've read every post and wish everyone the best.

Not to highjack the thread, but you look familiar. Did you ever tour as a musician?

Did you ever play with Anson Funderburgh?

Any interesting insights into the Austin music scene?

Who was the "best guitar slinger in Austin" you were referring to?

Best wishes and thanks again.
 

Cm7b5

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Stormlark:

very moved by your story. My neighbours' just lost a close friend to suicide 3 weeks ago. He was a 54 year old batchelor who's death shocked everyone. He was always the kind of guy you could count on to help you move or watch the house while you were on holidays, etc.

Your list of drugs reminded me of the Johnny Cash song "I've Been Everywhere".

Maybe the next time someone gives you the pat answers of "have you thought of getting a dog" or "have you tried a dating service" you could pick up a guitar or sit yourself down at the nearest piano and sing:

(My apologies to Johnny Cash)

... I've tried every cure man
I've tried every cure
Taken every drug man
Left no stone unturned
I've had my share of blues man
I've tried every cure

I've tried:

zoloft, prozac, paxil, effexor,
cymbalta, celexa, wellbutrin, trazadone,
vibryd, lamictal, seroquel, xanax,
valium, clonazepam, brain scans, head shocks

Of cures I've tried my share man
Of cures I've tried my share.

No disrespect intended.

Keep fighting the good fight.
 

LongHaul

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Noise definitely effects me. But, then I'm also on the Autism spectrum. I hear all the stuff that other people are able to filter out. Often, the noise is so loud I can't focus on what's in front of me. It was interesting sitting down to tell my oldest son that he has Autism and both of us could barely concentrate because of all the background noise at the park. I ask if if such and such sounds were bugging him and he said yes. My wife never even heard the 10+ background sounds I rattled off. Makes life interesting to say the least. I also have the same problem visually.

Yes exactly they drone on and on to the point focusing on or even hearing anything else is not even a option. I don't like a lot of new music cause they sound like they have mousy screaching droning voices and it really just hurts my head and crawls up my spine like someone endlessly scratching a chalkboard. Most times I can distract myself but when it happens when im in between the top and bottom I can't really do much.

When you are changing really fast sometimes within a conversation or several times in a hour or day it's called rapid cycling


Sent from my truck using 3 toasters a broken microwave and 6 rubber bands McGyver style......Chuck Norris aint got crap on me
 
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