Telling the Doctor?

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EleanorR

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I'm sure that's what my Gastro CNS is doing after she told me to go ahead and use nicotine and now that they advertise a partnership with Mayo she would like me to get off nicotine. My diagnosis hasn't changed where she should want that. Anything else in my health that would dictate dropping nicotine is for my GP to pick up on and tell me about, I cleared it with both of them.
I've got the studies printed and highlighted for her to try to counter with science instead of the Mayo-ANTZ BS.

:ohmy: That is absolutely disgraceful --nay, I'd even call it malpractice! :mad:

Nicotine is tremendously important in treating some GI diseases (IBD, UC, etc) -- This shows that the ANTZs have TRULY abandoned patient welfare in their lust to kill e-cigs! :mad::mad:
 

Southern Tina

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The same doctor who was in my last batch of quacks was like that. I got the flu from passing around a bottle of champagne on New Years. Everyone else's doctors diagnosed them with the flu. I was told I smoked.
Same idiot with the last batch told me I needed more sun when I was there for anxiety so bad I had agoraphobia and couldn't even go into the backyard easily (it was actually the restart of IBD getting bad, which of course none of the quacks picked up on even though one was a quack from my childhood and almost diagnosed me with IBD but failed to do the next obvious test to finish the diagnosis). I didn't smoke cigarettes at that time so they couldn't focus on that.

It's frustrating, isn't it? I had a surgery go bad about 3 years ago and ended up on life support for quite a while, but I basically ran my own care by legal paperwork that I filled out years earlier. Of course my husband is also in healthcare and took the bull by the horns. If none of that was done though, I wouldn't be here. That's a whole different topic, lol. Bottom line is don't expect every Dr to have your best interest as the main focus all the time. Most of the time it's about $$. I feel just terrible for so many people that get screwed over because they don't know what goes on behind the scenes. I wish I didn't know what I know sometimes.
 

goodoleboy45

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Sorry OP for that my Doc is totally on board with my vaping he has no problem with it
My wife had surgery in Dec. they told her not to smoke. She said my husband vapes is that ok. They said that's fine people vape in the hospital. While she was in surgery me and my mother-in-law vaped in the waiting area and NO one said a word. I vaped in her room while nurse`s and doctor`s came in and they fine with it
 

DC2

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It's frustrating, isn't it? I had a surgery go bad about 3 years ago and ended up on life support for quite a while, but I basically ran my own care by legal paperwork that I filled out years earlier. Of course my husband is also in healthcare and took the bull by the horns. If none of that was done though, I wouldn't be here. That's a whole different topic, lol. Bottom line is don't expect every Dr to have your best interest as the main focus all the time. Most of the time it's about $$. I feel just terrible for so many people that get screwed over because they don't know what goes on behind the scenes. I wish I didn't know what I know sometimes.
You know what's truly scary?

Being in a situation where you require advanced medical care, and not having anyone to advocate for you.
That's a position I never want to be in.
 

Myk

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Yep, that's one of the most frustrating things I deal with. Nobody is on the same page. You get different opinions from different Dr's/Hospitals because everyone thinks THEY are the entitled expert. I can't tell you how many times in the last 6 weeks I've had to fly to where my parents live to run interference between the staff and administration. My mother just sits there and nods her head to everything they say and then calls me to be the spokesperson. Of course it's my Dad, so I'm WANT to help and I speak the same lingo they do because I have the same job they do...just in a different state. They hate to hear I'm coming, lol. It's amazing how many families get screwed because of budgets mainly and different opinions of Dr's. You have to be your own patient advocate or trust someone in your family to be one or else they will take advantage of you. I see it every single day. Unfortunate but true.

Edited to say: I deal a lot with Mayo here in Jax and they think they know better than anyone else. I'm in the board meetings and sometimes it's just amazing what goes on in there.

I don't know if it's coming from Mayo or she's having a schizo moment. She originally told me CD and understandably wanted me off nicotine (I was already at 5mg only in the mornings the whole summer). Then after all the tests UC when she said going back on nicotine may help. Confused, the next time I got it clarified that it was Indeterminate Colitis. Next time I said IC and she said she had me down as Crohn's Colitis. This last time I said something about Crohn's Colitis and she said I had Indeterminate Colitis and that was the visit she said she wanted me off nicotine again.
I know a book she had me get is from Mayo and after talking about UC and nicotine it ultimately says to encourage IBD patients to get off smoking and nicotine. Between that and CASAA stuff I know Mayo's game but she's a bit of an ANTZ herself.

The fact is I bled when I was originally on mesalamine until I got up to 18mg. I don't care what the diagnosis is odds are mesalamine alone isn't going to cut it and nicotine is lower risk than everything else. Unless they can give me a good reason I'm not dropping nicotine over some false morality no matter how much I'd rather not be using nicotine.


:ohmy: That is absolutely disgraceful --nay, I'd even call it malpractice! :mad:

Nicotine is tremendously important in treating some GI diseases (IBD, UC, etc) -- This shows that the ANTZs have TRULY abandoned patient welfare in their lust to kill e-cigs! :mad::mad:

It's not just ecigs, she doesn't even want me using the patch. Which really freaks me out about what will happen if I need a hospital stay. A simple week of no food could turn into something serious if she won't sign off on me getting nicotine.
I don't know what the IBD room situation is there to know if I could get away with vaping or even if I could vape if I could vape enough.


It's frustrating, isn't it? I had a surgery go bad about 3 years ago and ended up on life support for quite a while, but I basically ran my own care by legal paperwork that I filled out years earlier. Of course my husband is also in healthcare and took the bull by the horns. If none of that was done though, I wouldn't be here. That's a whole different topic, lol. Bottom line is don't expect every Dr to have your best interest as the main focus all the time. Most of the time it's about $$. I feel just terrible for so many people that get screwed over because they don't know what goes on behind the scenes. I wish I didn't know what I know sometimes.

I'm so glad I'm away from that group. I would love to go tell that childhood doctor a few things but he's old (that group uses old retired doctors) so even if he did learn anything it wouldn't help for long.
Besides that being during my bad insurance I'm kind of glad they didn't diagnose me, who knows what they would've come up with.

I guess luckily because of my childhood I don't look at doctors as gods and have no problem telling them they're just a professional I hire to either give me an opinion or perform a task if they start acting like they're a god.
 

Southern Tina

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You know what's truly scary?

Being in a situation where you require advanced medical care, and not having anyone to advocate for you.
That's a position I never want to be in.

Yes and it's agony to watch. I think a living will is the best thing anyone can do for themselves.
 

Southern Tina

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Sorry OP for that my Doc is totally on board with my vaping he has no problem with it
My wife had surgery in Dec. they told her not to smoke. She said my husband vapes is that ok. They said that's fine people vape in the hospital. While she was in surgery me and my mother-in-law vaped in the waiting area and NO one said a word. I vaped in her room while nurse`s and doctor`s came in and they fine with it

My husband works in the trauma and critical ICU and families vape in the waiting room all the time. They aren't allowed back there in that dept because all patients are literally hanging on by a thread and critically ill, but families vape in rooms on med surge floors and the staff doesn't say a word. It's not a big deal.
 

Southern Tina

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I don't know if it's coming from Mayo or she's having a schizo moment. She originally told me CD and understandably wanted me off nicotine (I was already at 5mg only in the mornings the whole summer). Then after all the tests UC when she said going back on nicotine may help. Confused, the next time I got it clarified that it was Indeterminate Colitis. Next time I said IC and she said she had me down as Crohn's Colitis. This last time I said something about Crohn's Colitis and she said I had Indeterminate Colitis and that was the visit she said she wanted me off nicotine again.
I know a book she had me get is from Mayo and after talking about UC and nicotine it ultimately says to encourage IBD patients to get off smoking and nicotine. Between that and CASAA stuff I know Mayo's game but she's a bit of an ANTZ herself.

The fact is I bled when I was originally on mesalamine until I got up to 18mg. I don't care what the diagnosis is odds are mesalamine alone isn't going to cut it and nicotine is lower risk than everything else. Unless they can give me a good reason I'm not dropping nicotine over some false morality no matter how much I'd rather not be using nicotine.




It's not just ecigs, she doesn't even want me using the patch. Which really freaks me out about what will happen if I need a hospital stay. A simple week of no food could turn into something serious if she won't sign off on me getting nicotine.
I don't know what the IBD room situation is there to know if I could get away with vaping or even if I could vape if I could vape enough.




I'm so glad I'm away from that group. I would love to go tell that childhood doctor a few things but he's old (that group uses old retired doctors) so even if he did learn anything it wouldn't help for long.
Besides that being during my bad insurance I'm kind of glad they didn't diagnose me, who knows what they would've come up with.

I guess luckily because of my childhood I don't look at doctors as gods and have no problem telling them they're just a professional I hire to either give me an opinion or perform a task if they start acting like they're a god.

I'm sure you know this but you can absolutely ask for a different dr even if you've been seeing her (while you are in the hospital or not). It's the patients right. They may try to persuade you but if you have them document that you want a different drs opinion, they have to honor that. It's the law.
 

Myk

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Myk, have you thought about finding another doctor?

I've thought about asking for another Dr/NP in the group if she won't come around after I show her the studies and ask how she plans on keeping me from flaring with less risk than nicotine doubling mesalamine's effectiveness.
I don't know if it means anything as far as her disease focus but she is the only one there that has bothered registering with Crohn's Colitis Foundation so she might be most likely to be up on new stuff. So far she has known about the non-standard treatments/studies I've asked about (nicotine and unmentionables).

I think I can get her to come around. Even if I can't, I'm the boss. It's not like she's going to refuse treatment if I don't get off nicotine.

Beyond that it's kind of an HMO so going out of the group wouldn't be affordable and the next place in the group would be quite a drive for as often as I'd go and it would still have the Mayo link if that's where it comes from.
 

Myk

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I'm sure you know this but you can absolutely ask for a different dr even if you've been seeing her (while you are in the hospital or not). It's the patients right. They may try to persuade you but if you have them document that you want a different drs opinion, they have to honor that. It's the law.

I know I could request someone else in the group.
The whole nurse practitioner thing and other ways things work now is new to me. I know people that went into the hospital and had a completely different GI than sent them there.

Compared to other times in my life I like my whole healthcare team a lot better than any I've had before and that includes the CNS.

I should get in with the local CCFA group and talk to others.
 

drglock

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Last time i visited the hospital, i was asked if i had been smoking, and i told her that i actually don't smoke anymore, I vaporize with electronic cigarettes. She started telling me (as a doctor), " it's not conclusive that these devices are any better than cigarettes" She said that my health insurance would be raised because i would be labeled a smoker. So i lied and said that i had only vaped maybe 10 times and i wasnt going to anymore. Anybody else see the messed up logic here. Also how would you go about confronting this. Keep integrity or SELL out like me.:glare:

Well, I'm a doctor, and I vape! I tell all my smoking patients to begin vaping, I even let them try my unit!
Ive read the research, looked at what's out there, and I can tell you that if your doctor isn't behind you camping instead of smoking, them your doctor is a lemming and you need to find a new one!

Dr. G
 

KiLLeRr KeN

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Well, I'm a doctor, and I vape! I tell all my smoking patients to begin vaping, I even let them try my unit!
Ive read the research, looked at what's out there, and I can tell you that if your doctor isn't behind you camping instead of smoking, them your doctor is a lemming and you need to find a new one!

Dr. G

your good people, and you gotta PM and let me know what you carry :]
 

drglock

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Well, I'm a doctor, and I vape! I tell all my smoking patients to begin vaping, I even let them try my unit!
Ive read the research, looked at what's out there, and I can tell you that if your doctor isn't behind you camping instead of smoking, them your doctor is a lemming and you need to find a new one!

Dr. G
I meant vaping, not camping! Damn spell checker! Lol
 

wv2win

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Aw man that's tough... being I only vape 0mg I haven't been telling my docs that I've started vaping - only that I've quit smoking. The only way they'd know would be if they run bloodwork and find nicotine present, but I guess you could just say that you're still using the gum or patch or something

This path is what will further the perception that vaping is bad. I not only told my doctor, I provided him the studies and information on the CASAA web site for him to read. He and my dentist and my cardiologist are all strong vaping advocates who recommend it to their patients who smoke. If we have any chance to provide the truth about vaping, we need to take EVERY opportunity to educate the general public, ESPECIALLY front-line doctors. It seems like vapers are our own worse enemies. We feed the negative perceptions.
 
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