Yep, that's one of the most frustrating things I deal with. Nobody is on the same page. You get different opinions from different Dr's/Hospitals because everyone thinks THEY are the entitled expert. I can't tell you how many times in the last 6 weeks I've had to fly to where my parents live to run interference between the staff and administration. My mother just sits there and nods her head to everything they say and then calls me to be the spokesperson. Of course it's my Dad, so I'm WANT to help and I speak the same lingo they do because I have the same job they do...just in a different state. They hate to hear I'm coming, lol. It's amazing how many families get screwed because of budgets mainly and different opinions of Dr's. You have to be your own patient advocate or trust someone in your family to be one or else they will take advantage of you. I see it every single day. Unfortunate but true.
Edited to say: I deal a lot with Mayo here in Jax and they think they know better than anyone else. I'm in the board meetings and sometimes it's just amazing what goes on in there.
I don't know if it's coming from Mayo or she's having a schizo moment. She originally told me CD and understandably wanted me off nicotine (I was already at 5mg only in the mornings the whole summer). Then after all the tests UC when she said going back on nicotine may help. Confused, the next time I got it clarified that it was Indeterminate Colitis. Next time I said IC and she said she had me down as Crohn's Colitis. This last time I said something about Crohn's Colitis and she said I had Indeterminate Colitis and that was the visit she said she wanted me off nicotine again.
I know a book she had me get is from Mayo and after talking about UC and nicotine it ultimately says to encourage IBD patients to get off smoking and nicotine. Between that and CASAA stuff I know Mayo's game but she's a bit of an ANTZ herself.
The fact is I bled when I was originally on mesalamine until I got up to 18mg. I don't care what the diagnosis is odds are mesalamine alone isn't going to cut it and nicotine is lower risk than everything else. Unless they can give me a good reason I'm not dropping nicotine over some false morality no matter how much I'd rather not be using nicotine.

That is absolutely
disgraceful --nay, I'd even call it malpractice!
Nicotine is tremendously important in treating some GI diseases (IBD, UC, etc) -- This shows that the ANTZs have TRULY abandoned patient welfare in their lust to kill e-cigs!

It's not just ecigs, she doesn't even want me using the patch. Which really freaks me out about what will happen if I need a hospital stay. A simple week of no food could turn into something serious if she won't sign off on me getting nicotine.
I don't know what the IBD room situation is there to know if I could get away with
vaping or even if I could vape if I could vape enough.
It's frustrating, isn't it? I had a surgery go bad about 3 years ago and ended up on life support for quite a while, but I basically ran my own care by legal paperwork that I filled out years earlier. Of course my husband is also in healthcare and took the bull by the horns. If none of that was done though, I wouldn't be here. That's a whole different topic, lol. Bottom line is don't expect every Dr to have your best interest as the main focus all the time. Most of the time it's about $$. I feel just terrible for so many people that get screwed over because they don't know what goes on behind the scenes. I wish I didn't know what I know sometimes.
I'm so glad I'm away from that group. I would love to go tell that childhood doctor a few things but he's old (that group uses old retired doctors) so even if he did learn anything it wouldn't help for long.
Besides that being during my bad insurance I'm kind of glad they didn't diagnose me, who knows what they would've come up with.
I guess luckily because of my childhood I don't look at doctors as gods and have no problem telling them they're just a professional I hire to either give me an opinion or perform a task if they start acting like they're a god.