When setting this group up I wasn't sure what to call it so I started a poll to include suggestions and a few extra ideas.
We ended up having most votes for 'Wrecked & Bonkers' so that's what I've called the group for now.
This can be easily changed if we decide that's a good idea and there have been doubts about the wisdom of choosing a name that might be seen as negative for the people we are.
This is what Silver says:
The other suggestions can be found on this thread - http://www.e-cigarette-forum.com/forum/general-discussion/17218-disability-health-social-group.html
If you care one way or another about what this group is called then this is the place to talk about it.
We ended up having most votes for 'Wrecked & Bonkers' so that's what I've called the group for now.
This can be easily changed if we decide that's a good idea and there have been doubts about the wisdom of choosing a name that might be seen as negative for the people we are.
This is what Silver says:
... Although I like the name 'Wrecked and Bonkers' too (because it is hilarious and where in heck would we all be if we didn't have humor, eh ?!), I'm also a bit wary of picking a name with perhaps some 'negative' connotations, ie; anything that may 'put ourselves down' to the 'outside world' in any way.
What I mean is this; I always try to approach life (and my condition, with all its limitations) in as positive a way as possible. I feel I have to as if I didn't, I would probably go nuts (bonkers !) because it's so incredibly hard and exhausting to live with something that you can never get away from, even for a short respite. There is always the risk of blaming oneself or suffering from low esteem (never feeling 'good enough'), so I'm careful not to allow myself to become too negative about/down on myself (don't always succeed by the way !).
Perhaps too seemingly tragic or corny (please ignore if so !), but hence my suggestion of 'Better together' - ie; our situation may not be great (understatement !), but we make the best we can of it, and life in general, and support each other as much as possible to feel better.
Anyway, whatever name we end up choosing (what's in a name ?), it's très cool to be able to come together like this and learn from each other. Thank you to all who have come forward so candidly with their 'afflictions', I find it very interesting and informative as I had never heard of some of the conditions mentioned. I applaud your openness, honesty and courage !
Cheers,
Silver
The other suggestions can be found on this thread - http://www.e-cigarette-forum.com/forum/general-discussion/17218-disability-health-social-group.html
If you care one way or another about what this group is called then this is the place to talk about it.