My Rheumatologist and The E-Cig

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OwnedByAGrey

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I thought I'd post this here as there are alot of threads started by new vapers which ask about any health concerns with vaping, and are concerned about how their doctors will view it Vs analogs.

I'm only 43, but I have Rheumatoid Arthtritis. I was diagnosed with it in 2009. It's an extremly painful and serious disease in which the immune system attacks the joints of the body, causing "flares" - excruciating pain, major swelling of the affected joints, fevers, debilitating exhaustion, the eventual eating away of the joints in the body. Untreated, it can cause complete disability, and, sometimes, death through secondary disease and illness. Every joint is susceptible, even those of the spine. It is severe enough that one of the treatments involves the use of a cancer drug, in very low dosages, to slow the progression of the disease. Luckily, I have so far been able to keep my flares to a minimum with an anti-malarial drug used to treat RA.

Smoking exacerbates RA. It causes inflammation, and inflammation causes pain. It also tends to be a trigger for flares. But, for some reason, many RA patients are also smokers and swear it helps them to some degree. Counterintuitive on the face of things.

I called my Rheumatologist today to inform him that I had quit smoking. Now, this gent has been in the Rheumatology field for 40 years and has seen many treatments come and go. He told me - very gently - that I needed to stop smoking when I first saw him. He stated it very gently because he knew that many RA patients smoke and are very disinclined to quit. I was a bit worried about his opinion regarding e-Cigs.

The conversation we had, however, was interesting to say the least, and here is a breakdown:

1. He was delighted that I quit analogs.

2. He has said that he has long believed that nicotine, pure nicotine without the other chemicals found in cigars, cigarettes, and pipes, was a mild analgesic, and has been following e-Cig studies very closely.

3. He also believes, and says it has been bourne out in recent studies of pure nicotine, that nicotine also has some anti-inflammatory properties.

4. He has said the above statements of his were due to his noticing over the years that patients who smoke analogs, while unhealthy in pulminary and cardiovascular terms, tended to be calmer, had a higher pain tolerance, and had slightly longer relapses between major flares.

5. He also feels that people with auto-immune disorders tend to be nicotine addicts because the brains of these people learn to crave it for the signal it gives the brain to release dopamine. He said he thinks this is also true of those who are suffering clinical (chemical/physiological/major) depression due to a chemical imbalance in the brain; nicotine equals the release of dopamine which equals a way to elevate one's mood or provide a sense of calming. In other words, without knowing it, these patients are actually self-medicating.

To put it mildly, I was stunned. I thought this info, coming from a venerated Rheumatologist, and one who is highly regarded in his field, would be helpful to some new folks (and, perhaps to some vaping veterans) who are finding themselves concerned about the health effects of vaping.

While I am NOT asserting - and neither did he - that nicotine usage equals a cure when it comes to RA, chemical depression, or other conditions which are exacerbated by low dopamine levels, it is very interesting and comforting to know that it isn't harmful or causing those conditions to worsen.

Just thought you'd like to know.

Vaping some Apricot Tea while waiting for my pain meds to kick in, and then I'm off to bed. (BTW ... I love my Rheumatologist.)
 

cigarbabe

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I've had some of my "better informed physicians" also congratulate me on using ecigs and asserting that nicotine can have some mild pain relief properties.
I don't have RA but I do suffer from a host of other illness like Fibromyalgia,COPD,chronic pain & fatigue syndromes,SRDS,Reynauds Disease etc.
I have consistently lowered the amount of narcotic pain medications I'm using in just the short time I've been vaping.
That to me is nothing short of miraculous!
C.B.
:evil:
 

OwnedByAGrey

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Ah, CB. :( I'm glad to see you here and thank you for your reply. I certainly understand your pain issues, especially the CFS and Fibromyalgia. My RA is thought to be the result of approximately 10 years of undiagnosed and untreated Lyme. The immune system can only take so much.

I only started vaping last week, so I hope I'm able to cut my pain med use. I'm not on narcotics, but NSAIDS can do some weird and undesirable things to a body, especially in cases like ours which require their use in order to function from day to day.

I hope you continue to improve and feel wonderful. :)
 

vapi

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I went 3 days without my pain meds from my Rheumatologist this week! I never told her I smoked. I did have a relapse in pain last night and took my pill this morning because the pain didn't go away. I have noticed that pain associated with fibromyalgia is lessening since I have quit the cigarettes. I can't remember the last time I had 3 pain free days in a row.
 

OwnedByAGrey

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vapi, that's great! Three pain-free days when it comes to RA is somewhat of a miracle, indeed. I was shocked that my Rheumie knew about e-Cigs, and then when he went on about the rest of it, I thought I'd cry. We're so often told not to do this and not to do that, that it was pretty awesome to be told "go for it, it won't hurt you".

More and more pain-free days for you! :)
 

player30

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I have had Lupus for 30 years (also anti-malarial user). Thanks for posting your comments. What I have learned from having an auto-immune disease is that attitude is everything! I do not allow it to get me down. My first rheumatologist told me I would be dead in five years, and so.... I got a new doctor!!
 

bjannr

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I have ridden, and at 48, still do ride lot of rogue horses. That means sitting alot of spooks, and bucks. My hips have seen better days. I was told two years ago that I have arthritis in my hips. I was not surprized. I have been vaping since July 2010, and the discomfort/pain in my hips is less now, than when I was using analogs. If I had the time, I would like to have another set of x-rays done to see if there is less arthritis in the hips.
 

burnsmary95

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I also have horrible pain problems, mostly in my lower back/hip, mid back and neck...horrible pain. I have not had any serious doctor visits about this, just have been living with it for a long time, and I know it is just getting worse. I have been afraid to go to the doc because I just don't have much $ to spend on doc bills and meds. I have been trying more natural remedies, and have not been getting better. The pain has started to spread to my finger joints, is this a sign of RA? I know nothing about it. Some days I can hardly move at all, and others I feel great, so I just don't know what is going on...
 
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Rosa

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I also have horrible pain problems, mostly in my lower back/hip, mid back and neck...horrible pain. I have not had any serious doctor visits about this, just have been living with it for a long time, and I know it is just getting worse. I have been afraid to go to the doc because I just don't have much $ to spend on doc bills and meds. I have been trying more natural remedies, and have not been getting better. The pain has started to spread to my finger joints, is this a sign of RA? I know nothing about it. Some days I can hardly move at all, and others I feel great, so I just don't know what is going on... I am turning 37 this year.

Pretty sure with RA, you'd have a fair amount of swelling too. Spine, back and bone pain can be a lot of different things from slipped disks to multiple sclerosis to RA... It's best to go to a doctor if it's getting worse instead of better. Most cities will have clinics with a sliding scale for people who can't afford doctors visits (of course you have to prove it..).

Good luck :)

... heck it could even be some kind of spinal cord thing, right? or a cyst? It's not worth playing with, IMO.
 

vapi

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I also have horrible pain problems, mostly in my lower back/hip, mid back and neck...horrible pain. I have not had any serious doctor visits about this, just have been living with it for a long time, and I know it is just getting worse. I have been afraid to go to the doc because I just don't have much $ to spend on doc bills and meds. I have been trying more natural remedies, and have not been getting better. The pain has started to spread to my finger joints, is this a sign of RA? I know nothing about it. Some days I can hardly move at all, and others I feel great, so I just don't know what is going on... I am turning 37 this year.

There must be some options for health care, do you have a city health department? I know some may base it on income, may even provide free services. If you go to a hospital, not an urgent care center, you may not have to pay the bill. When you get the bill call and set up a payment plan, if your income was low enough from the previous year with tax papers, you won't have to pay a dime. It's a law and it's printed out on the back of the bill, depending on the household size and income. I don't know if it's by state but that's how it is where I live. You might want to call the hospitals billing department first and ask about your payment options before you do this so you know for sure.

You need to have blood work done, it can be a variety of things such as Lupus, RA, Fibromialgia. I had days when all of my bones felt fractured and I couldn't move, thats when I went to the emergency room and I was 37 years old.
 

mwa102464

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My husband and I use Arnica. It comes in different bases, cream, ointment and gel. It is a natural pain releiver. You can even use a heating pad with it. I get better results if I use it for a recent injury rather than a chronic one.
P.S I am not a doctor, just relaying what works for me.

I use the Arnica cream as well bjannr, they are also now doing a kind of punture injection with the Arnica and some other natural healing ointments and instead of suppressing the pain like a pain killer it does something else and they are saying this is becoming a very effective treatment, I saw a news special on it yesterday and I cant remember all the terminology they used but it was pretty cool stuff and patients are saying it is working, I know the Arnica cream helps with my sciatica.
 

Rosa

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Thanks for the advice. I am getting to the point of just going to a doc because it is getting unbearable. I hope it's nothing too serious. We got a new mattress last year, so it should not be that ;-)

Well, at least you eliminated the mattress idea... that's a step forward.

(we got a new mattress in November and my back is killing me in the same spots where yours hurts (hips/pelvis/up the spine to mid shoulders) , that's why I mentioned it. Sometimes it's so bad I can't roll over in the morning -- but I can't afford a new mattress. :( )
 

jj2

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Well, at least you eliminated the mattress idea... that's a step forward.

(we got a new mattress in November and my back is killing me in the same spots where yours hurts (hips/pelvis/up the spine to mid shoulders) , that's why I mentioned it. Sometimes it's so bad I can't roll over in the morning -- but I can't afford a new mattress. :( )

Get a three inch piece of memory foam---rated around 7. It did wonders for me.
 
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