Sleep Apnea CPAP Users

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bizzyb0t

Super Member
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Mar 13, 2009
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Denver CO, USA
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Hey Webby thanks for bringing this up!

I've got Obstructive Sleep Apnea and have used a CPAP since about 2002. My old machine, still reeks of the stench from cigarettes, even though I haven't used it in over 4 years. Since getting my new machine in early 2007, I never smoked in the house, but the smell of smoking would somehow get on my mask. I now use one of those "nasal pillow" masks (Breeze?), but my old masks were the bluish Respironics Gel kind, that go over the entire nose. I never had an issue with leaks but if i sweat a lot, it would "squeak fart".

Heh, I'm snoring less now that I don't smoke but I still need the machine. About the high pressure thing, my machine that I've got now, changes the setting automatically (if there's leaks) to keep it at 22 cpm(?), but I used to snore like a gas powered chainsaw, and stop breathing for a minute at a time. Most respiratory therapists doubt that I need such a high pressure setting until they see the sleep study, hehe.

I use the water reservoir because if not, my nose and throat get super dry in this arid Colorado air. I use filtered water in my reservoir and wash it in the dishwasher from time to time. I wash my mask and hose out with AB Orange-scented Dawn (or generic) dish soap about once a week, or daily if I have a cold.

Before I ever had a CPAP, I suffered with the sleep apnea for 3-4 years and it damaged my heart (permanent right-side heart failure). I should have listened to my friend's dad when he warned me about it shortly after I had gained a ton of weight and started snoring really bad. I got my first machine and it sat for almost a year before I started to use it. Even then, it took me months to get used to the machine. My nose has a high bridge and I still have a scar between my eyebrows, from where the first mask type would give me blisters. I have a permanent indentation from that.

I used to do stuff like, fall asleep mid-sentence and I could never go to the theater to watch a movie because people would get ...... off at me for falling asleep and snoring so loudly. Skittles hurt when their being thrown at your head, lol. Driving was a scary prospect as well.

When I first started using the CPAP, it was like night and day for me. I was literally living in a haze it seemed. Amazing, is the way sleep (or lack of quality sleep) can affect your day-to-day functionality.

I always feel a bit self-conscious about my CPAP when sleeping over other people's homes or taking vacations and stuff. Good thing this new machine is a lot quieter and smaller than the old one. When spending the night at other people's homes or travelling, I don't take the reservoir with me, and my CPAP is then the size of a large grapefruit.
 

Webby

Resting In Peace
ECF Veteran
Mar 31, 2009
796
15
USA
Hey Webby thanks for bringing this up!

I've got Obstructive Sleep Apnea and have used a CPAP since about 2002. My old machine, still reeks of the stench from cigarettes, even though I haven't used it in over 4 years. Since getting my new machine in early 2007, I never smoked in the house, but the smell of smoking would somehow get on my mask. I now use one of those "nasal pillow" masks (Breeze?), but my old masks were the bluish Respironics Gel kind, that go over the entire nose. I never had an issue with leaks but if i sweat a lot, it would "squeak fart".

Heh, I'm snoring less now that I don't smoke but I still need the machine. About the high pressure thing, my machine that I've got now, changes the setting automatically (if there's leaks) to keep it at 22 cpm(?), but I used to snore like a gas powered chainsaw, and stop breathing for a minute at a time. Most respiratory therapists doubt that I need such a high pressure setting until they see the sleep study, hehe.

I use the water reservoir because if not, my nose and throat get super dry in this arid Colorado air. I use filtered water in my reservoir and wash it in the dishwasher from time to time. I wash my mask and hose out with AB Orange-scented Dawn (or generic) dish soap about once a week, or daily if I have a cold.

Before I ever had a CPAP, I suffered with the sleep apnea for 3-4 years and it damaged my heart (permanent right-side heart failure). I should have listened to my friend's dad when he warned me about it shortly after I had gained a ton of weight and started snoring really bad. I got my first machine and it sat for almost a year before I started to use it. Even then, it took me months to get used to the machine. My nose has a high bridge and I still have a scar between my eyebrows, from where the first mask type would give me blisters. I have a permanent indentation from that.

I used to do stuff like, fall asleep mid-sentence and I could never go to the theater to watch a movie because people would get ...... off at me for falling asleep and snoring so loudly. Skittles hurt when their being thrown at your head, lol. Driving was a scary prospect as well.

When I first started using the CPAP, it was like night and day for me. I was literally living in a haze it seemed. Amazing, is the way sleep (or lack of quality sleep) can affect your day-to-day functionality.

I always feel a bit self-conscious about my CPAP when sleeping over other people's homes or taking vacations and stuff. Good thing this new machine is a lot quieter and smaller than the old one. When spending the night at other people's homes or travelling, I don't take the reservoir with me, and my CPAP is then the size of a large grapefruit.

Man! I'm glad I started this thread.

Great advice, thanks to everyone and please keep the posts coming. I got mine a few years ago and (like most things) used it about 30 seconds before I would have gotten used to it - and quit. I travel overseas quite a bit and carrying yet another suitcase-sized device through customs just wasn't in the cards.

After the advice from my fellow sleep deprived forum members, I called my insurance company and see I'm approved for the replacements every six months! You're right, the new models make mine look like I'm still carrying a cinderblock cell phone from the 80's. I have an appointment to be fitted tomorrow for the new one and I've reestablished my original hope to get more than 2-3 hours of sleep at a stretch.

Thanks everyone for the words of encouragement and sucess stories.

(BTW - you think Skittles hurt? Try waking up with peanut M&Ms stuffed in your nostrils because your wife "thought they might help"...) :w00t:
 

shivadance

Super Member
ECF Veteran
May 30, 2009
813
3
Nebraska, USA
LOL, yup, a great thread Webby!

I recently got the Aeiomed Everest 2 Everest 2 Travel CPAP System from AEIOMed - cpapXchange.com with the battery backup and all that. It's great! I think there's even smaller ones for travel but I just can't believe how small the darn thing is compared to my old ones.

I'm not embarassed traveling anymore b/c my friends say they can finally sleep in the same room with me now. :D I ruined each night during my trip to New Orleans with my friend before being diagnosed. She slept in the bathtub with the door shut every night. That was waaaay more embarassing than sleeping with the CPAP. And I traveled extensively around the states with a CPAP for one year. It was a pain but at least I was rested every morning!

Cleaning. Heh, what's that? I clean the water resevoir every month or so in the dishwasher and just throw on a new hose every 4-6 months when I remember. I wash the nasal prongs with Dawn every couple days. And I change the filter when I remember. If I have a cold I clean more. If you use heat and distilled water there's really no place for the organisims to grow except in the mask area where you exhale. I was on a CPAP board for a while and not cleaning too often is pretty much the standard.

The last couple years with smoking and CPAPing I was getting some killer sinus infections. I hear CPAP users are prone to them. Since I've been vaping I had a 'slight' sinus pressure for a couple days but it went away with Mucinex. So 3 months and one minor sinus issue. So not smoking is totally helping in that area.

Oh, and if you ever want to try a new CPAP product cheap check out CPAP Machine and CPAP Mask Auctions. You can buy masks as such by just signing up. To buy a CPAP you just need to email or fax your prescription. Great deals on there if insurance won't pony up more $$.
 

shivadance

Super Member
ECF Veteran
May 30, 2009
813
3
Nebraska, USA
After the advice from my fellow sleep deprived forum members, I called my insurance company and see I'm approved for the replacements every six months! You're right, the new models make mine look like I'm still carrying a cinderblock cell phone from the 80's. I have an appointment to be fitted tomorrow for the new one and I've reestablished my original hope to get more than 2-3 hours of sleep at a stretch.

That is awesome! Let us know what they hook you up with. Always interested in reviews of new stuff since I can't afford everything. :)

I have a few very, very vivid memories of sleeping in hotels and being embarrassed by my snoring.

On a trip to New York with a friend I guess I was snoring so loud the folks in the room behind us banged on the wall several times during the night. It would wake me up and I remember falling asleep wanting to do something about it but what could I do? I had to sleep too. :(

Another time my folks and I were in some small gambling town in the Colorado mountains. My dad likes to save $$ so we slept in an older hotel where several rooms shared a bathroom. I got my own room so as not to keep my parents awake, but it had an adjoining door with another guest's room. The rooms had wood floors and there was about a 2 inch gap under the door. I could hear every word they said and they could hear every snore. And they talked about it all night. That's the most embarrassing one for me. It was a nice older couple and I couldn't meet their eyes in the hall. It still bothers me to think about it. :oops:

Ah well, I can't change history. At least it's not an issue now! Whew!
 
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