Kawfee beanz, DIY and assorted Shenaniganery :)

Status
Not open for further replies.

tejas

Ultra Member
ECF Veteran
Verified Member
Nov 22, 2013
2,320
15,067
71
East Texas
Thank you, Darlin'. :wub: I certainly need it right now. I think that I have just about found my breaking point. I'm twisted so tight right now that I don't think I can handle any more. Long story short, we had car trouble on the way to the Dr's office, gonna cost quite a bit to fix. Got a rental for now because the stealership didn't have any loaners available. Chemo isn't working, tumors have grown (largest is a little over 26mm now) and new ones have shown up. Plan is to get her into a Phase I clinical trial until something better comes along... Supposed to have a Phase II trial coming in the next month or two, but he doesn't want to wait that long without trying something, so he's trying to get her into a Phase I trial for now. It wasn't completely unexpected news, but still hard to take.

I am so sad for you and your wife right now, Brother. My problems seem so trivial in comparison. Hoping things turn around for you guys. {{man-hugs}} and positivity coming your way, but it seems so inadequate....
 

Kaezziel

Supreme Overlord of Everything
ECF Veteran
Verified Member
Jul 29, 2014
4,536
47,824
Houston, TX, USA
Not liking what you posted Brother Kaz, just liking the posts as an acknowledgement.

Completely understand, Brother Kev. I tend to do the same thing. :)

Kaz, it's really hard to read your news. You and your bride as always, will continue to be in my thoughts and prayers. :wub::wub::wub::wub:

I know, Sweet Pea. And I really hate having to share bad news all the time, but I feel that I need to share our story as it progresses. We've certainly had our share of ups and downs over the past couple of years, and we've grown as a couple and as individuals. Anyway... your thoughts and prayers are always welcome, and we are forever grateful for the love of our friends. Thank you, Dearest! :wub::wub::wub:

I am so sad for you and your wife right now, Brother. My problems seem so trivial in comparison. Hoping things turn around for you guys. {{man-hugs}} and positivity coming your way, but it seems so inadequate....

It's all good, my Texan Brother. We're still in the fight, even if we keep takin' it on the chin round after round. And, thank you for the positive vibes, support, and the man-hugs... but please, do me a favor. Never think of your problems as trivial... if there's one thing that I've learned, it's that everyone's problems matter, and they cannot be compared to the problems of another. Besides, focusing on the positivity here, we are blessed that I am still employed! With the market the way it is, and the layoffs that we had earlier this week, I still have a job to come in to, and we still have really good health insurance... things could always be worse. :)

Kaz, sorry to hear yesterday's bad news. Look towards the next step, the clinical trials. Stay strong.

Thank you, Brother Mark. We're keeping our chin up and doing the best we can with what we have. I told her last night that someday they'll find the magic pill that fixes it all... and that pill will have to go through clinical trials. Who knows... it might end up being the same pill that they give her, right? That's why they do these trials... they have a very good idea about how these things work, and now they're ready to see how well it works on people. The Dr. even said that she should be a really good candidate, because physically, her body is still strong. We just need to get the tumor growth under control.
 

Kodak

Vaping Master
ECF Veteran
Verified Member
Aug 6, 2015
3,069
17,658
Missouri...or the state of Misery.
Thank you, Darlin'. :wub: I certainly need it right now. I think that I have just about found my breaking point. I'm twisted so tight right now that I don't think I can handle any more. Long story short, we had car trouble on the way to the Dr's office, gonna cost quite a bit to fix. Got a rental for now because the stealership didn't have any loaners available. Chemo isn't working, tumors have grown (largest is a little over 26mm now) and new ones have shown up. Plan is to get her into a Phase I clinical trial until something better comes along... Supposed to have a Phase II trial coming in the next month or two, but he doesn't want to wait that long without trying something, so he's trying to get her into a Phase I trial for now. It wasn't completely unexpected news, but still hard to take.

Awww....I am not liking this :( I will keep you both in my thoughts and prayers and I am sending you HUGE hugs!
 

Sir Kadly

Tootle Wompin' Squonkaholic
ECF Veteran
Verified Member
  • Sep 18, 2015
    4,361
    50,684
    Michiana
    And I really hate having to share bad news all the time, but I feel that I need to share our story as it progresses.
    You never need to feel bad about sharing what you are going through. If there is one thing I know about the people here, it's that this is one of the best, most caring groups of people there is. If we can lighten the load in any way by giving you a place to talk about what's happening, then we are more than willing to listen.
     

    DingerCPA

    Vaping Mistress
    ECF Veteran
    Verified Member
    Apr 9, 2014
    9,020
    61,413
    Corn 'n' Cows
    Thank you, Darlin'. :wub: I certainly need it right now. I think that I have just about found my breaking point. I'm twisted so tight right now that I don't think I can handle any more. Long story short, we had car trouble on the way to the Dr's office, gonna cost quite a bit to fix. Got a rental for now because the stealership didn't have any loaners available. Chemo isn't working, tumors have grown (largest is a little over 26mm now) and new ones have shown up. Plan is to get her into a Phase I clinical trial until something better comes along... Supposed to have a Phase II trial coming in the next month or two, but he doesn't want to wait that long without trying something, so he's trying to get her into a Phase I trial for now. It wasn't completely unexpected news, but still hard to take.

    Life just freaking sucks sometimes. It doesn't take away from your immediate issues, but we do love you, Brother. I wish we were in closer proximity.

    As DC always says, "Remember to Breathe".....
     

    LynnNC

    Resting In Peace
    ECF Veteran
    Verified Member
    Sep 1, 2014
    10,347
    88,071
    NC
    image.jpeg
    I stole this picture off of Facebook from my daughter's best friend and my grandson's babysitter. He's with her daughter. I really miss seeing him. :wub:
     

    Kaezziel

    Supreme Overlord of Everything
    ECF Veteran
    Verified Member
    Jul 29, 2014
    4,536
    47,824
    Houston, TX, USA
    Awww....I am not liking this :( I will keep you both in my thoughts and prayers and I am sending you HUGE hugs!

    Thank you, Sweetheart! We certainly appreciate it. The last prognosis that he gave us was right before she started this last chemo. He told us that if that one didn't work, and if none of the clinical trials help, then she has somewhere around a year before things get bad enough to seriously affect her quality of life. She is thinking and praying right now to help come up with the decision to either just stop treatment or to give the trial drugs a chance. She's been fighting for a long time now, and she is tired. I understand her position and respect that it is her decision to make. Whatever she chooses to do, I will support her as I have always tried to do. It all comes down to is the chance of gaining an extra year or so worth dealing with the side effects of the experimental treatments... if it were me, I'd probably just say no and look for an ice floe so y'all could send me out Eskimo style... but I don't think she's quite ready to give up just yet. She's always been stronger than I... :)

    You never need to feel bad about sharing what you are going through. If there is one thing I know about the people here, it's that this is one of the best, most caring groups of people there is. If we can lighten the load in any way by giving you a place to talk about what's happening, then we are more than willing to listen.

    And I appreciate it, man. Really. Y'all are really the only people I ever talk to other than family and coworkers. Most all of my 'friends' have moved away or just dropped off the map. But you're right... this is the absolute best group of people that I've ever met. I'd dare to say that I feel closer to y'all than I do to most of my actual family. :)

    Life just freaking sucks sometimes. It doesn't take away from your immediate issues, but we do love you, Brother. I wish we were in closer proximity.

    As DC always says, "Remember to Breathe".....

    And I love y'all too, Sissy. It would be absolutely awesome if we were all in closer proximity to one another, and someday, I plan on figuring out a way to take an epic road trip to come visit y'all. I just need to figure out how to kick life in the junk first so it'll get outta my way. ;)
     

    Kaezziel

    Supreme Overlord of Everything
    ECF Veteran
    Verified Member
    Jul 29, 2014
    4,536
    47,824
    Houston, TX, USA
    View attachment 595141 I stole this picture off of Facebook from my daughter's best friend and my grandson's babysitter. He's with her daughter. I really miss seeing him. :wub:

    Awwww... they're both adorable! Thanks for sharing that, Darlin'... I'm definitely grateful for the smile that it gave me. :) :wub:
     

    LynnNC

    Resting In Peace
    ECF Veteran
    Verified Member
    Sep 1, 2014
    10,347
    88,071
    NC
    NTS-no more using spring/summer rolls as a meal. I had 2 full rolls yesterday for lunch at 2. I was stuffed! By 5, I was STARVING!! I brought 2 more full rolls for dinner at work, stuffed again. Starving again at 9. From now on they'll be treated as appetizers or only for light lunches with something else more substantial later. :rolleyes:
     

    angelphyre

    ECF Guru
    ECF Veteran
    Verified Member
    Dec 9, 2013
    17,962
    69,720
    MS Gulf Coast/NOLA
    Thank you both! :wub: I'll type up an update at some point today... I just don't have it in me to do it right this moment. Suffice it to say that yesterday was very challenging on multiple levels. :(

    Thank you, Darlin'. :wub: I certainly need it right now. I think that I have just about found my breaking point. I'm twisted so tight right now that I don't think I can handle any more. Long story short, we had car trouble on the way to the Dr's office, gonna cost quite a bit to fix. Got a rental for now because the stealership didn't have any loaners available. Chemo isn't working, tumors have grown (largest is a little over 26mm now) and new ones have shown up. Plan is to get her into a Phase I clinical trial until something better comes along... Supposed to have a Phase II trial coming in the next month or two, but he doesn't want to wait that long without trying something, so he's trying to get her into a Phase I trial for now. It wasn't completely unexpected news, but still hard to take.

    Thanks, Brother. We were hoping and praying pretty hard, too... seems that good news just isn't part of the plan for us at this point. :(
    Only liked these to show support darlin'....I am so, so sorry to hear that...I will keep praying for you both for the strength and the courage to handle whatever may come...obviously your wife is very courageous and I admire her strength and your love and devotion to her...I know this is a very trying time for you both, but you are handling it with grace...know that we all love you here and you can vent, cry, do whatever you need to here with us...that's what family is for! Huge (((HUGS))) for you! :wub:
     

    DingerCPA

    Vaping Mistress
    ECF Veteran
    Verified Member
    Apr 9, 2014
    9,020
    61,413
    Corn 'n' Cows
    NTS-no more using spring/summer rolls as a meal. I had 2 full rolls yesterday for lunch at 2. I was stuffed! By 5, I was STARVING!! I brought 2 more full rolls for dinner at work, stuffed again. Starving again at 9. From now on they'll be treated as appetizers or only for light lunches with something else more substantial later. :rolleyes:

    As I find with most oriental food - eat and be stuffed; wait 10 minutes, and you'll be hungry again ;) :lol:
     

    Kodak

    Vaping Master
    ECF Veteran
    Verified Member
    Aug 6, 2015
    3,069
    17,658
    Missouri...or the state of Misery.
    :sneaky:
    As I find with most oriental food - eat and be stuffed; wait 10 minutes, and you'll be hungry again ;) :lol:

    You mean like the fried rice I ate for lunch 1/2 an hour ago? Is that why I'm starving now? :lol::lol::lol:
     

    Kaezziel

    Supreme Overlord of Everything
    ECF Veteran
    Verified Member
    Jul 29, 2014
    4,536
    47,824
    Houston, TX, USA
    Only liked these to show support darlin'....I am so, so sorry to hear that...I will keep praying for you both for the strength and the courage to handle whatever may come...obviously your wife is very courageous and I admire her strength and your love and devotion to her...I know this is a very trying time for you both, but you are handling it with grace...know that we all love you here and you can vent, cry, do whatever you need to here with us...that's what family is for! Huge (((HUGS))) for you! :wub:

    Thank you, Angel. As I said to Kev, I completely understand the "like". :) And appreciate the prayers and support more than I could possibly express. We're both doing the best we can to stay strong and positive, and you have no idea how much it meant to me when you said that I'm handling this with grace. That is exactly what I'm trying to do... as much as I want to be angry all the time and just hide away like a hermit, I'm trying very hard to not let any of that show. Throwing tantrums and hiding away serves no purpose and gets no results. We are both still trying to process it all, though. We'll figure it out, and we'll get through it together... just like we have done with everything else. :)

    Huge {{{{{{{{{{HUGS}}}}}}}}}} back to you, and all the rest of my wonderful family here! :wub::wub::wub:
     

    markfm

    Aussie Pup Wrangler
    ECF Veteran
    Verified Member
    Jul 9, 2010
    15,268
    45,866
    Beautiful Baldwinsville (CNY)
    Ceramic fans, you may want to check this post by Salemgold: NotCigs refugee thread

    Apparently a low cost source of ceramics ($4 for 10), plus the head they go on ($2) and what tank types they fit (tanks that fit Atlantis or cCell heads).
     

    Sir Kadly

    Tootle Wompin' Squonkaholic
    ECF Veteran
    Verified Member
  • Sep 18, 2015
    4,361
    50,684
    Michiana
    Ceramic fans, you may want to check this post by Salemgold: NotCigs refugee thread

    Apparently a low cost source of ceramics ($4 for 10), plus the head they go on ($2) and what tank types they fit (tanks that fit Atlantis or cCell heads).
    Awesome info! Now I just need to remember how to find it again when I need it!
     
    Status
    Not open for further replies.

    Users who are viewing this thread