bump since this
thread hasn't had a post since May and I was curious how everyone else was doing.
Interesting news - my pulmonologist passed away from a massive heart attack at age 67. He was an avid cyclist and cross-country skier, which just goes to show that exercise will kill you
I have a new pulmonologist but can't get an appointment before December so my primary care physician is managing things for the moment.
I had to go off Symbicort as it made my skin thin and my blood thinner - too many problems with bruising and bleeding if I bumped into something. Switched to 18mg Spiriva which seems to work about as well after about a week. Am on long-term antibiotics now, taking 500mg azi
thromycin
three times a week and I get 160mg of Kenlalog broken down into two injections since it'd be a Really Big Shot about every other month. I did take the Kenalog in one Really Big Shot once and won't do it again as is was kinda painful for a few hours afterward.
Cranked my CPAP machine up from 12 to 14 to 15 to 16 and am sleeping much better and don't wake up feeling quite as sick as I was when it was set at 12.
Things overall are pretty manageable - I won't be running any marathons anytime soon but at least I can mow the lawn these days. All in all things are better than they were six months ago
So how's everybody else doing?