aspergers and vaping.

[AXIOM_1]

They don't know. Surprised? I didn't think so.

The neurologist that diagnosed me with Parkinson's (who unfortunately retired recently) speculated that the most likely reason was nerve damage from the seizures.

If I were to become a doctor, I sure wouldn't pick neurology. Dermatologists make more money anyway.

Yeah same here -- they never have figured it out......... I was in my late teens when those pains started and I still get them off and on to this day --- The interesting thing is that later on I developed neuropathy... Makes me wonder if there is a connection (more than likely).

 

[Electrodave]

Yeah same here -- they never have figured it out......... I was in my late teens when those pains started and I still get them off and on to this day --- The interesting thing is that later on I developed neuropathy... Makes me wonder if there is a connection (more than likely).

Yep. More than likely, it's all due to nerve damage. The bigger question, of course, is what caused the damage, and is it still going on? With diabetes, for example, it's pretty clear cut. Your nerves are being damaged by blood cells that have what amounts to sugar crystals in them. It's treatable and reversible, although nerves do take a long time to heal. We know what to treat and how to treat it.

In cases like ours, there's no clear cut cause, so any treatment plan is basically just a shot in the dark.

 

[Luke95]

I may be getting the help I need.

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[AXIOM_1]

Yep. More than likely, it's all due to nerve damage. The bigger question, of course, is what caused the damage, and is it still going on? With diabetes, for example, it's pretty clear cut. Your nerves are being damaged by blood cells that have what amounts to sugar crystals in them. It's treatable and reversible, although nerves do take a long time to heal. We know what to treat and how to treat it.

In cases like ours, there's no clear cut cause, so any treatment plan is basically just a shot in the dark.

Yeah I agree --- The complexity of the human body and genome is quite staggering and medical knowledge is only in it's infancy, especially when dealing with the complex neurological system.

 

[Robino1]

It is amazing how much better we feel when we know that we are NOT the only ones with any specific problems. That's what support groups are all about. Not to cure, but to comfort and listen. Maybe even to give ideas that will help.

You all are doing great

You're talking instead of hiding. That in itself is AweSome!

 

[Robert Cromwell]

Me talk some then hide some.

 

[AXIOM_1]

It is amazing how much better we feel when we know that we are NOT the only ones with any specific problems. That's what support groups are all about. Not to cure, but to comfort and listen. Maybe even to give ideas that will help.

You all are doing great

You're talking instead of hiding. That in itself is AweSome!

Yeah, most of my life I spent hiding... Actually I didn't realize anything was "different" about me ... I look normal, talk normal --- just wasn't ever interested in what most folks usually are.... Then once I was told why I was different, then something happened and I no longer care about telling folks about it or my personal and once secretive flaws..

But you are 100% correct Robin, support groups are not a cure for anything but they sure do help people when they realize there are others who are willing to listen.

 

[Luke95]

I dunno I'm in a rough spot 9 o'clock came early

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[Luke95]

Does this get easier?

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[AXIOM_1]

Does this get easier?

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somewhat, yes

 

[Luke95]

somewhat, yes

Good. This stress is breaking me. And I am worried that if I go to over board in taking out the stress I will drive off the people I care about. And that is making it worse

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[Electrodave]

Yeah I agree --- The complexity of the human body and genome is quite staggering and medical knowledge is only in it's infancy, especially when dealing with the complex neurological system.

We're both very lucky that it has come this far. We also have every reason to be frustrated that it hasn't come farther.

You're talking instead of hiding. That in itself is AweSome!

It sure is!

Me talk some then hide some.

Me talk too much.

 

[AXIOM_1]

Me talk too much.

lol

 

[Luke95]

Me vent to much.


Seriously sorry for all the venting.

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[Electrodave]

Good. This stress is breaking me. And I am worried that if I go to over board in taking out the stress I will drive off the people I care about. And that is making it worse

The key word, imho, is "worried". You can't worry about what you might do in the future. Worry is at the root of stress.

I hate when people tell you to "think positive", but it is definitely true that you can't be happy without also having at least a somewhat positive outlook. One of my biggest challenges is remembering to bear that in mind.

 

[Electrodave]

Me vent to much.


Seriously sorry for all the venting.

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Nothing to be sorry about. Vent away! This is a great place to do it, too.

 

[Luke95]

The key word, imho, is "worried". You can't worry about what you might do in the future. Worry is at the root of stress.

I hate when people tell you to "think positive", but it is definitely true that you can't be happy without also having at least a somewhat positive outlook. One of my biggest challenges is remembering to bear that in mind.

Positive out look.....
It is what stopped me from letting my personal hell come tonight. I took off all my mental armor. I don't know if any one else has built a set. It was liberating have it removed and to be able to see the emotions I let slide only showing pride anger and sometimes happiness. Taking off my mental armor helped but has left me venerable to the anxiety and depression.


Hopefully it was worth it.
I am trying to regain a loved one. And fix a friend ship with another.

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[Wolfenstark]

Yes using the internet as something of a social wall breaker is not just for people with something to hide.

 

[Luke95]

I'm having a good day. I dodged metal shards and a wooden stick. Flying at me at 2000 rpms. Maybe it isn't all pointless

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[Robert Cromwell]

I'm having a good day. I dodged metal shards and a wooden stick. Flying at me at 2000 rpms. Maybe it isn't all pointless

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When someone yells DUCK! Do not look up in the sky.