Gluten free

[StereoDreamer]

By this point I want to shove a loaf of bread into their faces. Sometimes, when I set down bread for the other non-gluten-free at their table for the other people in their party, they act like I just set down a chunk of radioactive waste.

My step-daughters are both Celiacs, and are gluten-free NOT by choice, but because it is SERIOUS health matter for them.

If they use a knife to cut their food that someone else used to cut through regular bread, it can mean a trip to the hospital, several days of excruciating pain in their gut, vomiting, ........ for DAYS and a course of steroids and other medication for a week or more.

True gluten intolerance is as serious as any other food allergy.

"Gluten free" by choice is another thing, as that is a lifestyle/dietary CHOICE that someone makes for their own personal reasons.

But "Gluten Intolerant" is SERIOUS thing, and exposure can cause serious physical misery and even hospitalization...

 

[matador]

I don't mean to come across as rude, but a lot of them can't help repeating the fact that they're gluten free. "May I have the gluten-free menu? Thank you. I'll have an iced tea, but I'm gluten free, so make sure no one touches bread then touches the glass. I'll have a steak, but I'm gluten-free, so make sure they handle it with tongs. I'll also have a house salad, but no croutons, because I'm gluten free. Make sure they use different gloves. And I'll have the baked potato, but I'm gluten-free, so..."

By this point I want to shove a loaf of bread into their faces. Sometimes, when I set down bread for the other non-gluten-free at their table for the other people in their party, they act like I just set down a chunk of radioactive waste.

My step-daughters are both Celiacs, and are gluten-free NOT by choice, but because it is SERIOUS health matter for them.

If they use a knife to cut their food that someone else used to cut through regular bread, it can mean a trip to the hospital, several days of excruciating pain in their gut, vomiting, ........ for DAYS and a course of steroids and other medication for a week or more.

True gluten intolerance is as serious as any other food allergy.

"Gluten free" by choice is another thing, as that is a lifestyle/dietary CHOICE that someone makes for their own personal reasons.

But "Gluten Intolerant" is SERIOUS thing, and exposure can cause serious physical misery and even hospitalization...

Wow! No need to start fights. To defend Rocketpunk, If a person is asking for a gluten-free menu then they are obviously not Celiac. Someone with Celiac Disease can not eat at a restaurant unless the only menu is a gluten free menu. Serving both gluten containing and gluten free foods in a restaurant is a cross contamination hazard. As StereoDreamer said, even 1 breadcrumb is enough to cause major damage to the intestines of a person with Celiac Disease. Celiacs can only eat food that is FDA regulated gluten free, which is tested for gluten to 20 parts per million. So if someone is coming in to a restaurant asking for a gluten free menu and complaining about cooks needing to use tongs or different gloves, then yeah, throw the loaf of bread in their face because they are just following a fad diet and acting like snobby idiots! Celiac Disease is very serious!! My 5 year old daughter and 1 year old son both have celiac disease and it is impossible for us to ever eat at a restaurant again. I cant even take them into a grocery store that has a bakery because there is flour in the air. Im in the process of moving to a different state as well because we live in Kansas which is pretty much one big wheat field and my daughter gets sick every time she goes outside. I think restaurants that offer a gluten free menu in addition to a regular menu is absolute bull-spit! That kind of thing is very misleading to uninformed Celiacs (which there are a lot of) and makes things much harder for Celiacs to remain healthy.

Ok.. I really dont want to pull this thread off topic, but I felt like I had to throw in my opinion. Back to the juices..

 

[DeeDee1234]

Hello everyone,
I am new to the forum , and to vaping. I have posted this question in the new members forum as well, but thought I would get more info here.
I would like to re-fill some of my green smoke cartomizers with some other liquids to test the waters a bit and see whats out there.
I wanted to go with a company close to me that is reputable, and I am relatively near both Johnson Creek and Copper Creek ( I am in the U.P. of Michigan).
My trouble is that I need to consider gluten free in my choices ( I am celiac).

Johnson Creek has replied to my e mail with a statement that I should not use their e- liquid as there is a good chance it contains gluten.

I have not heard back from Copper Creek yet.

Mount Baker (not anywhere near me) has assured me that there should be no gluten in theirs.

Green smoke states that they cannot guaranty gluten free, but their cartomizers (flavors) do not contain gluten as an ingredient.

Can you give any recommendations as to which way to go for starters? I am leaning toward Mount baker initially but I would like to try Copper creek as well. maybe someone has experience with this or copper creek?

The flavors I am most interested in at this time are coffee/chocolate, tobacco, cream/vanilla type, and a mint/menthol.

Thank you!

Mt Bakor vapor is a good company and will ship
the same day you order. If they are telling you they are gluten free then I would believe them, personnally.

 

[matador]

Mt Bakor vapor is a good company and will ship
the same day you order. If they are telling you they are gluten free then I would believe them, personnally.

I've had a few bottles of their Blu-Bacco and 555 and it is very good. I also recommend Mount Baker Vapor, not only is it gluten free, but its tasty. Sometimes thats a hard combo to come by.

 

[donna328]

Thanks for pointing it out about gluten, since I have celiac I never would have thought that juice could have gluten in it. Wow maybe that's why I've had stomach problems lately.

 

[Lizard]

Wow! No need to start fights. To defend Rocketpunk, If a person is asking for a gluten-free menu then they are obviously not Celiac. Someone with Celiac Disease can not eat at a restaurant unless the only menu is a gluten free menu. Serving both gluten containing and gluten free foods in a restaurant is a cross contamination hazard. As StereoDreamer said, even 1 breadcrumb is enough to cause major damage to the intestines of a person with Celiac Disease. Celiacs can only eat food that is FDA regulated gluten free, which is tested for gluten to 20 parts per million. So if someone is coming in to a restaurant asking for a gluten free menu and complaining about cooks needing to use tongs or different gloves, then yeah, throw the loaf of bread in their face because they are just following a fad diet and acting like snobby idiots! Celiac Disease is very serious!! My 5 year old daughter and 1 year old son both have celiac disease and it is impossible for us to ever eat at a restaurant again. I cant even take them into a grocery store that has a bakery because there is flour in the air. Im in the process of moving to a different state as well because we live in Kansas which is pretty much one big wheat field and my daughter gets sick every time she goes outside. I think restaurants that offer a gluten free menu in addition to a regular menu is absolute bull-spit! That kind of thing is very misleading to uninformed Celiacs (which there are a lot of) and makes things much harder for Celiacs to remain healthy.

Ok.. I really dont want to pull this thread off topic, but I felt like I had to throw in my opinion. Back to the juices..

I'm a celiac and diagnosed 11 years ago. I also have an allergy to PG. I have been ordering from Virgin Vapors and I'm not having any trouble. Their flavors rock as well! That being said, I can't help but disagree with many of the comments that matador said. You can eat out although I make sure to do it only from places that really understand the disease and are aware of cross contamination issues. As far as wheat fields go, you do not get sick from breathing the air around them, nor do you get sick from entering a grocery store with a bakery. Gluten damage does not occur from this. You may need to get your child tested for other allergies because not everything is gluten related. For everyone else on the thread celiac is a very serious condition and the damage gluten does is even more serious. Consuming even a tiny bit ups your chances for cancer and other auto immune diseases. People ask waiters over and over about gluten because they don't want to damage their bodies, nor do they want to spend days in the bathroom vomiting, having ........, or suffering thru all of the other symptoms that can hit you.

 

[Rocketpunk]

Wow, thread necro!

I understand true celiacs, but this is a bit much......



In hindsight, I think most of those annoying people were just in it as a fad.

 

[alisa1970]

Gluten intolerance is also strongly linked to Hashimoto's Hypothyroid (another auto-immune disease). I was recently diagnosed with insanely high anti-thyroid antibodies (over 3000, 20-14 is 'normal'), so my doc said it's likely due to gluten and/or dairy intolerance. So, since I'm not willing to give up my cheese just yet, I've gone gluten free, although not to the degree that a celiac has to. Has made a world of difference so far in my inflammation. I still have a burger bun or a few slices of pizza once in a while (like once a month) but not regularly like I had been. I can't imagine having to be so careful as to worry about a crumb of bread or some other cross-contamination.

Soy is another HUGE issue with hypothyroid and I've been wondering about VG and whether it's soy-based or not. I've eliminated almost every source of soy in my diet (not easy, it's in EVERYTHING!). I've read that it is (or can be), but I really can't do heavy PG liquids so if I have to increase my hormone replacement to compensate, I guess I'll just have to.

 

[matador]

I'm a celiac and diagnosed 11 years ago. I also have an allergy to PG. I have been ordering from Virgin Vapors and I'm not having any trouble. Their flavors rock as well! That being said, I can't help but disagree with many of the comments that matador said. You can eat out although I make sure to do it only from places that really understand the disease and are aware of cross contamination issues. As far as wheat fields go, you do not get sick from breathing the air around them, nor do you get sick from entering a grocery store with a bakery. Gluten damage does not occur from this. You may need to get your child tested for other allergies because not everything is gluten related. For everyone else on the thread celiac is a very serious condition and the damage gluten does is even more serious. Consuming even a tiny bit ups your chances for cancer and other auto immune diseases. People ask waiters over and over about gluten because they don't want to damage their bodies, nor do they want to spend days in the bathroom vomiting, having ........, or suffering thru all of the other symptoms that can hit you.

My daughter does get sick from airborne gluten. It is a rare condition with celiac disease, but it is true.

http://celiacdisease.about.com/od/Coping_with_Celiac_Disease/f/Inhaling-Airborne-Gluten.htm

 

[Galactic Stone]

Gluten messes me up bad. I don't have full-blown Celiac's disease (thankfully!), but my body cannot tolerate gluten. One slice of bread will put me down for hours. I haven't had any reactions to juice so far, but now I am mostly vaping the unflavored stuff anyway.

 

[Brettweer]

Mt Bakor vapor is a good company and will ship
the same day you order. If they are telling you they are gluten free then I would believe them, personnally.

Interesting, I was diagnosed with Celiac in December. Been vaping since then without issues, but decided I should really check this out. I love this forum, but figured, I better check with Mt Baker Vapor myself. So a couple days ago I e-mailed them asking to confirm gluten free status of their liquids. To my surpise, I got a generic response back saying their liquids had gluten in them. That was it!

I was shocked. And annoyed a bit because I know that all of their flavors cannot have gluten in them. I would suspect that most don't if any.

So I shot a reply back asking if ALL had gluten or just some. If it was just some of them, I asked if they could direct me to which ones did not have gluten. Got a reply back from Josh this time saying unfortunately they do not have a list.

At this point I felt like they were probably busy and just trying to get rid of me. So I shot one final reply saying look, I was really surprised by your replies. I read the ecig forums and found posts where others have inquired and you guys said there was no gluten in your juices. Furthermore, I'm guessing most are ok, but I'm more worried about flavors of things I have to watch out for in real life such as baked goods, pie crust, doughnuts, etc. I closed the e-mail by saying I was bummed because I order a lot of juice and I really liked their prices.

I then get a final reply from Stephanie saying I raised a good point and that they were going to look into which juices of theirs contained gluten and which ones didn't (I thought she said earlier that she double checked and they all did? lol). At which point I replied asking if they would let me know and then no replies back from them since in last 48 hours.

All in all I give them props for responding to e-mails quickly, but I could tell they were initially more trying to get rid of me without finding the truth. We'll see if they ever actually look into it.

So I went ahead and placed an order with Virgin Vapors to check out there stuff. They come out and say it is gluten free. Only company that I know of thus far. I have been using other juice from other companies that is not confirmed to be gluten free. I just stay away from certain flavors as referenced above to be safe. Curious to try VV's and see how I feel compared to the others. Occasionally I do get upset stomach while vaping but not sure if that is the juice or something else causing it.

 

[alisa1970]

Interesting, I was diagnosed with Celiac in December. Been vaping since then without issues, but decided I should really check this out. I love this forum, but figured, I better check with Mt Baker Vapor myself. So a couple days ago I e-mailed them asking to confirm gluten free status of their liquids. To my surpise, I got a generic response back saying their liquids had gluten in them. That was it!

I was shocked. And annoyed a bit because I know that all of their flavors cannot have gluten in them. I would suspect that most don't if any.

So I shot a reply back asking if ALL had gluten or just some. If it was just some of them, I asked if they could direct me to which ones did not have gluten. Got a reply back from Josh this time saying unfortunately they do not have a list.

At this point I felt like they were probably busy and just trying to get rid of me. So I shot one final reply saying look, I was really surprised by your replies. I read the ecig forums and found posts where others have inquired and you guys said there was no gluten in your juices. Furthermore, I'm guessing most are ok, but I'm more worried about flavors of things I have to watch out for in real life such as baked goods, pie crust, doughnuts, etc. I closed the e-mail by saying I was bummed because I order a lot of juice and I really liked their prices.

I then get a final reply from Stephanie saying I raised a good point and that they were going to look into which juices of theirs contained gluten and which ones didn't (I thought she said earlier that she double checked and they all did? lol). At which point I replied asking if they would let me know and then no replies back from them since in last 48 hours.

All in all I give them props for responding to e-mails quickly, but I could tell they were initially more trying to get rid of me without finding the truth. We'll see if they ever actually look into it.

So I went ahead and placed an order with Virgin Vapors to check out there stuff. They come out and say it is gluten free. Only company that I know of thus far. I have been using other juice from other companies that is not confirmed to be gluten free. I just stay away from certain flavors as referenced above to be safe. Curious to try VV's and see how I feel compared to the others. Occasionally I do get upset stomach while vaping but not sure if that is the juice or something else causing it.

Wow...even more interesting. As I posted previously, I was diagnosed with auto-immune hypothyroid a few months after quitting, and there is a very strong correlation between gluten and higher anti-thyroid antibody activity.

My bloodwork has been showing high amounts of inflammation still, and it is affecting my adrenal system (I have very high cortisol, which is often produced as a reaction to inflammation). I have been what I thought was 95% gluten free since diagnosis (no gliadin antibodies, but just wanting to be as careful as possible--I do cheat here and there), but still having some issues. I might have to start asking some questions of my own...

 

[Brettweer]

Wow...even more interesting. As I posted previously, I was diagnosed with auto-immune hypothyroid a few months after quitting, and there is a very strong correlation between gluten and higher anti-thyroid antibody activity.

My bloodwork has been showing high amounts of inflammation still, and it is affecting my adrenal system (I have very high cortisol, which is often produced as a reaction to inflammation). I have been what I thought was 95% gluten free since diagnosis (no gliadin antibodies, but just wanting to be as careful as possible--I do cheat here and there), but still having some issues. I might have to start asking some questions of my own...

Good idea, you have to be your own champion and ask questions even when others get annoyed. It's your body and your right!

I guess I'd say I'm borderline hypothyroid as well since my GI doc said I was and prescribed me meds. But then my regular doc said it was so close he wouldn't have prescribed and thought it best to try the gluten free diet for a couple months and check blood work again then. Theme was change one variable at a time to have a better handle on how things change with each step. Makes sense.

If you're interested in gluten free status of ejuice I plan to try to champion this a bit and will post info here as I find it. It really comes down to the flavor companies taking ownership because I've read the other ingrediants, at least the ones from reputable vendors seem to be ok.

It's my belief that we can achieve this through continually asking our juice sources for more info. I'm hoping more and more of them will demand answers from the flavor companies so they can advise customers properly. It's not like it's going away.

Best of luck to you!

 

[Racehorse]

I'm a server in a restaurant. Been serving since 1998. Only recently, I'd say the past four to five years, I keep seeing gluten-free people coming in. Celiac disease. The first time someone asked me about it, I jokingly said, "We don't serve Klingon here." I was woefully uneducated about it back then.

But how come it's all of a sudden a new thing? I was serving the same food to people eight years ago and no one ever complained. Is the celiac disease a new discovery? I mean, we now have gluten-free menus at work. But where were they x amount of years ago? Why now?

It's not a new thing. It's an autoimmune disorder that was previously under-diagnosed or misdiagnosed. Some people don't even have syptoms but it does tremendous damage to the digestive system ( stomach cancer, etc.)

When they started mapping genes we also learned more about what gene markers are there for it, and the types of people it affects.

Kids and adults used to have heartburn, or gas or bloating, or skin allergies, or migraines.....nobody realized it was celiac disease. There are a lot more symptoms, but rest assured, people SUFFERED and never knew why, you know how you're just given pills all the time.

the other thing is that they are putting gluten in more things than ever before w/the advent of more processed foods. (i.e. hydrolized protein is often gluten but label doesn't READ that way) so more people are getting symptoms

When I approached my doctor 10 years ago about getting the test (reflux disease most of my life) he told me I was the first person he ever tested! Funny, I suffered with reflux disease almost all my life......turns out it's the protein in milk, not lactose. If only someone had figured this out instead of making me take Nexium for 20 years

 

[alisa1970]

Good idea, you have to be your own champion and ask questions even when others get annoyed. It's your body and your right!

I guess I'd say I'm borderline hypothyroid as well since my GI doc said I was and prescribed me meds. But then my regular doc said it was so close he wouldn't have prescribed and thought it best to try the gluten free diet for a couple months and check blood work again then. Theme was change one variable at a time to have a better handle on how things change with each step. Makes sense.

If you're interested in gluten free status of ejuice I plan to try to champion this a bit and will post info here as I find it. It really comes down to the flavor companies taking ownership because I've read the other ingrediants, at least the ones from reputable vendors seem to be ok.

It's my belief that we can achieve this through continually asking our juice sources for more info. I'm hoping more and more of them will demand answers from the flavor companies so they can advise customers properly. It's not like it's going away.

Best of luck to you!

Thanks, you too! I just hope my favorite vendor (after trying near to 100 juices) can provide the info. They are incredibly responsive, but they may not know.

On the issue of caramel coloring, I did find some helpful info. Apparently if the flavoring is made in the US, it doesn't contain gluten. In Europe, it may be made with barley malt, but it is so processed that there is no gluten left:

http://celiacdisease.about.com/od/celiacdiseasefaqs/f/Caramel_Coloring.htm

 

[Racehorse]

I don't mean to come across as rude, but a lot of them can't help repeating the fact that they're gluten free. "May I have the gluten-free menu? Thank you. I'll have an iced tea, but I'm gluten free, so make sure no one touches bread then touches the glass. I'll have a steak, but I'm gluten-free, so make sure they handle it with tongs. I'll also have a house salad, but no croutons, because I'm gluten free. Make sure they use different gloves. And I'll have the baked potato, but I'm gluten-free, so..."

By this point I want to shove a loaf of bread into their faces. Sometimes, when I set down bread for the other non-gluten-free at their table for the other people in their party, they act like I just set down a chunk of radioactive waste.

I understand how you feel, they are kinda scared and paranoid since they know the damage it will do to them, and perhaps they shouldn't eat out. I do not inconvenience the entire waitstaff or kitchen over the few things I need. If I had to do that I would only eat at home.

I do have a few allergies, though, and I am polite (and not repetitive about it) but I *do* expect the waitstaff to care enough about me to jot down my order the way I need it .... I mean, if they don't care about people they shouldn't be in a business that caters to human beings. I've had a few waiters get huffy when I simply ask for something to come to me a certain way (ask the chef for no butter) and then of course, they just don't get a tip.

 

[alisa1970]

It's not a new thing. It's an autoimmune disorder that was previously under-diagnosed or misdiagnosed. Some people don't even have syptoms but it does tremendous damage to the digestive system ( stomach cancer, etc.)

When they started mapping genes we also learned more about what gene markers are there for it, and the types of people it affects.

Kids and adults used to have heartburn, or gas or bloating, or skin allergies, or migraines.....nobody realized it was celiac disease. There are a lot more symptoms, but rest assured, people SUFFERED and never knew why, you know how you're just given pills all the time.

the other thing is that they are putting gluten in more things than ever before w/the advent of more processed foods. (i.e. hydrolized protein is often gluten but label doesn't READ that way) so more people are getting symptoms

When I approached my doctor 10 years ago about getting the test (reflux disease most of my life) he told me I was the first person he ever tested! Funny, I suffered with reflux disease almost all my life......turns out it's the protein in milk, not lactose. If only someone had figured this out instead of making me take Nexium for 20 years

Also, and I'm not a super, anti-GMO activist, but one thing that I've is learned that the wheat crops today are engineered in such a way that they produce much higher amounts of gluten than "heirloom" wheat. So people who have a low-level sensitivity and would have previously not had any problems with lower amounts of gluten are getting exposed to much more, which can cause skin problems, brain fog, facial swelling, and other non-GI related issues.


Just found this thread, and it's more reassuring:

http://www.e-cigarette-forum.com/forum/new-members-forum/71473-gluten-content-eliquids.html

 

[Brettweer]

Thanks, you too! I just hope my favorite vendor (after trying near to 100 juices) can provide the info. They are incredibly responsive, but they may not know.

On the issue of caramel coloring, I did find some helpful info. Apparently if the flavoring is made in the US, it doesn't contain gluten. In Europe, it may be made with barley malt, but it is so processed that there is no gluten left:

http://celiacdisease.about.com/od/celiacdiseasefaqs/f/Caramel_Coloring.htm

Thanks for the article. Curious who your favorite vendor is. I'm just venturing into checking out others outside of my local shop. Have orders on the way from Virgin Vapors, Vapor Chef and Rocket Fuel. Plan to try Ahlusion next month. I have not asked Chef or Rocket about gluten free status yet. Figured I'd give them a little business before I pester them

 

[alisa1970]

Thanks for the article. Curious who your favorite vendor is. I'm just venturing into checking out others outside of my local shop. Have orders on the way from Virgin Vapors, Vapor Chef and Rocket Fuel. Plan to try Ahlusion next month. I have not asked Chef or Rocket about gluten free status yet. Figured I'd give them a little business before I pester them

I fell in love with Indigo Vapor. I've been buying from them since July and will continue to. I think I have 5 of their tobaccos in rotation right now. They are NOT subtle so if you like light flavors, they're not for you.

 

[BillyWJ]

I'm a server in a restaurant. Been serving since 1998. Only recently, I'd say the past four to five years, I keep seeing gluten-free people coming in. Celiac disease. The first time someone asked me about it, I jokingly said, "We don't serve Klingon here." I was woefully uneducated about it back then.

But how come it's all of a sudden a new thing? I was serving the same food to people eight years ago and no one ever complained. Is the celiac disease a new discovery? I mean, we now have gluten-free menus at work. But where were they x amount of years ago? Why now?

Celiac is real, but there's a "gluten free" fad going on, sadly. A lot of it self-diagnosed.