I edited this post because this thread has gone so astray.
If interesting in helping those with diabetes, please contact JDRF.
If interesting in helping those with diabetes, please contact JDRF.
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Seeking a helping hand for diabetis and my granddaughter.
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I'm very sorry for your family. My husband is type 1. It sucks. But your daughter needs rest. Whatever doctor explained low blood sugars to her needs to have their license taken away. "dead in bed" syndrome? Wow, way to scare someone! That is BS. Too blind to drive? Losing feet? This is severely exaggerated.
My advice, tell your daughter to help her daughter live her life as normal as possible.
Control the diabetes, don't let it control you.
My advice, tell your daughter to help her daughter live her life as normal as possible.
Control the diabetes, don't let it control you.
My daughter actually gets plenty of rest, it's SIL that doesn't. 
He does get down for an afternoon nap daily which helps but, and I can a test to this, it's not the same as 8 hours.
And basically it's because my daughter is a bear if she don't and she works outside of the home as a Physical Therapist. He is a Physical Trainer and works from home so he is around more so he oversees granddaughter's care. And the doctor and their diabetic group has complimented him as being one of the best at keeping her levels in the long term.
Trouble is he is a bit of an over doer and nothing I will say will change that. But still he has had too many nights when he has had to stay up to get her in control. Junior differs in that way because of the age---in the young the levels differ from one second to the next. They are very careful with her food but still try to let her do normal things and I'm just so grateful he does what he does because it means less trouble as she gets older. Still a pro con debate takes away from the problem---finding a way to make life so that my granddaughter doesn't have to test her blood sugar several times a day. And doesn't have to wear a pump that has to be changed every two to three days. At least now this sweetheart of a six year old no longer screams when it's inserted.
I hope they do make advancements in this for her and your husband sake.
He does get down for an afternoon nap daily which helps but, and I can a test to this, it's not the same as 8 hours.And basically it's because my daughter is a bear if she don't and she works outside of the home as a Physical Therapist. He is a Physical Trainer and works from home so he is around more so he oversees granddaughter's care. And the doctor and their diabetic group has complimented him as being one of the best at keeping her levels in the long term.
Trouble is he is a bit of an over doer and nothing I will say will change that. But still he has had too many nights when he has had to stay up to get her in control. Junior differs in that way because of the age---in the young the levels differ from one second to the next. They are very careful with her food but still try to let her do normal things and I'm just so grateful he does what he does because it means less trouble as she gets older. Still a pro con debate takes away from the problem---finding a way to make life so that my granddaughter doesn't have to test her blood sugar several times a day. And doesn't have to wear a pump that has to be changed every two to three days. At least now this sweetheart of a six year old no longer screams when it's inserted.
I hope they do make advancements in this for her and your husband sake.
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They won't, the pharmaceutical companies make too much. $1-2/test strip is insane! atleast she has the pump and insurance I'm assuming. My husband has neither and it's very expensive. Also he has to drive 2 counties away to buy syringes THEN get treated like a drug addict because everyone thinks diabetics are overweight and know nothing about juvenile diabetes.
I hope in her lifetime they make some advances considering my child has a great chance of getting type 1.
exaggerating to get people to feel bad for you is just wrong though. Especially when the truth can make just as much of an impact.
I hope in her lifetime they make some advances considering my child has a great chance of getting type 1.
exaggerating to get people to feel bad for you is just wrong though. Especially when the truth can make just as much of an impact.
My husband did the logo design for our local chapter of JDRF a few years ago. They are a great group of people. Type 2 appears to run in both sides of our family, so I am careful with the sugar with my kids. I did know a girl growing up who is Type 1. I remember going to a party once in high school and she was taking her levels and trying to calculate whether she could have another drink. That may sound bad, but she found a way to be a "normal" teenager and maintain her health. I remember she carried glucose tablets with her to classes (even gave me one once when MY blood sugar dropped in class due to not eating breakfast). She lives a very normal life now. Every once in a while her sugars go "wonky" on her, but for the most part it seems to be second nature to her now. It will be a hard road, but it is definitely doable. Hopefully they will be able to get through the "freak out" phase and it will eventually become just another part of daily life. It does seem to be something that gets easier as you get used to it. Knowledge is power, hopefully they can educate themselves with more information than just what was given to them by one doctor. Prayers to you and them.
If you don't have insurance, ebay might be a great way to buy the strips. I've been purchasing strips from the same seller for a while and pay 32 cents each. Granted, I checked which meter had the lowest price strips and went with it.
I feel like our doctor is clueless but he gives my sweetie/meanie vials of long term insulin with every visit, which is 60 bucks. We were lucky and got a free coupon for the 5 pen pack of rapid acting a few months ago, that should last a while.
Starspecks- I take the insulin box in with me, when I go buy needles. I have been treated weirdly for buying 2 boxes a one time, 100+ needles. I told the women that I also buy a couple months of laundry detergent and toilet paper at a time and that we're not going to run out of needles either. If my sweetie/meanie was using needles for long term and rapid, that wouldn't even be a months worth. Stupid/judgemental people need to get over themselves.
We also do the A1C tests at home for less than 15 bucks each. The cost at the Dr's office is over 10 times that!
Our old doctor wanted Jeff's A1C to be so low that we couldn't do it without him constantly having really low blood sugar and he couldn't work. Some doctors are militant about using so much long term insulin that it creates a living hell trying to keep up with it.
I feel like our doctor is clueless but he gives my sweetie/meanie vials of long term insulin with every visit, which is 60 bucks. We were lucky and got a free coupon for the 5 pen pack of rapid acting a few months ago, that should last a while.
Starspecks- I take the insulin box in with me, when I go buy needles. I have been treated weirdly for buying 2 boxes a one time, 100+ needles. I told the women that I also buy a couple months of laundry detergent and toilet paper at a time and that we're not going to run out of needles either. If my sweetie/meanie was using needles for long term and rapid, that wouldn't even be a months worth. Stupid/judgemental people need to get over themselves.
We also do the A1C tests at home for less than 15 bucks each. The cost at the Dr's office is over 10 times that!
Our old doctor wanted Jeff's A1C to be so low that we couldn't do it without him constantly having really low blood sugar and he couldn't work. Some doctors are militant about using so much long term insulin that it creates a living hell trying to keep up with it.
Yeah his doctor gives him the lantus free every appt. When we can affords to dish out $300 for the appt. He goes into the pharmacy with his insulin and glucometer. They still judge him. I guess having tattoos means you are a drug addict? He also gets stuck in conversations like "your diabetic? But your so thin...." "I have type 1" :: clueless look:: "but you're older?" "yes, people with juvenile diabetes grow up" actual conversation with walmart pharmacy employee when buying a bottle of R.
He also loves the countless emails and articles given to him by family about type 2. Losing weight tips LOL. "Did you read that article I sent you?" "yes dad, did you?"
The biggest thing we want changed about type 1 diabetes, side from curing it, is AWARENESS! People need to be informed of the difference between the two types.
The one thing to be grateful for is they have good insurance, but it still cost a lot out of pocket because of deductibles and co-pay. No matter, they make sure she has everything she needs.
But we go astray here. This is about the JDRF and what they do and how great they are. If nothing else just sign up to be a virtual walker. There is no need to donate to do this although a donation would be so great!
And daisyd that is sooo cool.
But we go astray here. This is about the JDRF and what they do and how great they are. If nothing else just sign up to be a virtual walker. There is no need to donate to do this although a donation would be so great!
And daisyd that is sooo cool.
So I contacted my friend who's had Type 1 sine she was a kid and this is what she said. (I mostly asked about the getting up at night, because that seemed strange to me.)
"I'd start with The American Diabetes Association and The Junior Diabetes Reaearch Foundation. And for the love of god, tell her to get a new doctor. There is no reason she should be made to panic. She should be working with an endocrinologist and a team of diabetes specialists (dietitian, diabetes educator, etc.) if she isn't already.
I understand she's worried, but her child is not going to die in her sleep. Taking midnight sugars is only necessary for dramatic insulin adjustments, and sick-days. If her daughter isn't having problems sleeping through the night or wetting the bed (both happened to me at first) then it's all good and she should only be worried about midnight sugars if her endocrinologist specifically says she should be.
Having a protein based snack with complex carbohydrates before bed will keep low blood sugar from happening at night; half a sandwich (one piece of bread and a slice of meat or cheese) and 8oz of milk is what I'd recommend for that (check with a dietitian first to make sure that is okay). These foods will keep the blood sugar from spiking and then dropping in the middle of the night.
I hope that helps! Talking to a diabetes educator will probably help her a lot too, tell her to ask her doctor."
I hope this helps. I didn't know if they have a specialist or not. I hope I'm not over stepping, but I believe that doctors should be solution oriented and not use scare tactics with people.
ETA: I will sign up for the virtual walk too, I know that's why you posted this. I was just figuring that a few tips from someone who's been through it might help.
"I'd start with The American Diabetes Association and The Junior Diabetes Reaearch Foundation. And for the love of god, tell her to get a new doctor. There is no reason she should be made to panic. She should be working with an endocrinologist and a team of diabetes specialists (dietitian, diabetes educator, etc.) if she isn't already.
I understand she's worried, but her child is not going to die in her sleep. Taking midnight sugars is only necessary for dramatic insulin adjustments, and sick-days. If her daughter isn't having problems sleeping through the night or wetting the bed (both happened to me at first) then it's all good and she should only be worried about midnight sugars if her endocrinologist specifically says she should be.
Having a protein based snack with complex carbohydrates before bed will keep low blood sugar from happening at night; half a sandwich (one piece of bread and a slice of meat or cheese) and 8oz of milk is what I'd recommend for that (check with a dietitian first to make sure that is okay). These foods will keep the blood sugar from spiking and then dropping in the middle of the night.
I hope that helps! Talking to a diabetes educator will probably help her a lot too, tell her to ask her doctor."
I hope this helps. I didn't know if they have a specialist or not. I hope I'm not over stepping, but I believe that doctors should be solution oriented and not use scare tactics with people.
ETA: I will sign up for the virtual walk too, I know that's why you posted this. I was just figuring that a few tips from someone who's been through it might help.
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