I think the word honest would be better changed to "neutral". We would not want to look like we are on the attack...... Yet. Save that for their report.
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I think the word honest would be better changed to "neutral". We would not want to look like we are on the attack...... Yet. Save that for their report.
Mike - I've very sorry to hear about your sister and her lost battle with cancer, but I'm glad you took the time to share your story. Just about everything I've heard about the Moffitt center to date has been positive, either through the media or people who have had direct experience with them (like you). I completely agree that if we could get them to acknowledge e-cigs (and THR), they could be an excellent ally as we move forward in our battles against the ignorant masses and misinformation campaigns. This is the primary reason why I'm reluctant to write them off based on the 'additional reading' list on their website.
Update on the research so far: Over the last couple of days, I've been searching for additional funding sources that could show malicious intent for the data obtained by this survey. Other than the ACS (American Cancer Society) funding, which appears to be for specific research projects, I have found none. While I might consider myself to be a proficient analyst in my field of employment (computers), I feel I could be missing reference sources given my ignorance in the area of medical research.
If anyone who has time can assist in researching funding sources, and/or other surveys performed by Moffitt, perhaps it will help determine as to whether or not we should be helping them gather useful data.
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Agreed. I liked the way they contrasted e-cigs with other NRT products currently on the market. It seemed to me that they were looking for hints of both efficacy and consumer confidence between the two.
What's your initial thoughts on the questions and format of the survey?
Well okay, since I have great respect for those who've posted here and for their opinions, I just finished taking the survey. Was pleasantly surprised by the overall tone and by the way they phrased most of the questions and the options they offered as answers. Only two raised my eyebrows a bit, when they asked how many cartridges I used every day (no option to say "I don't use cartridges" lol) and when they asked where I got my supplies, they lumped "mall kiosks" together with "e-cigarette shop" as a single answer... :gasp: (I checked "other" and wrote in "e-cigarette shop, which is NOT the same as a mall kiosk.")
Must say, I saw no evidence of obvious bias overall. Now, of course, it will depend on how they interpret the responses and how they word the final report. We shall see...
Oh, and I volunteered for the focus group, too.
Must say, I saw no evidence of obvious bias overall. Now, of course, it will depend on how they interpret the responses and how they word the final report. We shall see...
Oh, and I volunteered for the focus group, too.
Okay, I completed the survey and included in the section at the end of the survey that I would like to see links to tobacco harm reduction posted along with the special interest groups. I included the name and link to CASAA
From Wikipedia:
From PRNewswire:
Multiple sites mentions funding from peer-reviewed sources, but cannot find a list of those sources.
Something does smell fishy, but no real proof that they're up to something.
I also found this:
H. Lee Moffitt Cancer Center defends its role as resource | Tampa Bay Times
Gives me the impression that they aggressive about making tons of money (this from a non-profit???). Not really proof of anything, but I'd be weary about participating - but I am distrusting by default. (Trust should be earned
)
I also found this:
H. Lee Moffitt Cancer Center defends its role as resource | Tampa Bay Times
Gives me the impression that they aggressive about making tons of money (this from a non-profit???). Not really proof of anything, but I'd be weary about participating - but I am distrusting by default. (Trust should be earned
)
Would like to split hairs here a bit, not to defend Moffitt, just to clarify. They are a non-profit, so they don't "make money" per se. They receive grants and donations, and they spend money, but they are prohibited, by law, from making profits as a for-profit corporation would seek to do. The article seems to be making the point of Gov. Scott's distrusting Moffitt's alleged attempts to expand its "brand" at the expense of smaller research orgs. (Also, keep in mind that Fla. Governor Scott is generally considered to be operating in Cloudcookooland...)
Since I am by nature a skeptic, my main concern is knowing if they have, institutionally, any driving ideology (either personally or through grantors/donors) about smoking, tobacco, ecigs, or nicotine or any combination of the above, that would drive and affect the outcome of their research and/or surveys.
In spite of the one-sidedness of their "smoking" references, I haven't so far seen any such bias. I'll be watching them, though. Very. Closely.
Since I am by nature a skeptic, my main concern is knowing if they have, institutionally, any driving ideology (either personally or through grantors/donors) about smoking, tobacco, ecigs, or nicotine or any combination of the above, that would drive and affect the outcome of their research and/or surveys.
In spite of the one-sidedness of their "smoking" references, I haven't so far seen any such bias. I'll be watching them, though. Very. Closely.
Agreed, and that's my main concern as well (ideological bias), but I see no evidence of that as of yet. On the other hand, I really don't want any unfounded suspicion or paranoia keeping us from obtaining a rather well known potential ally in the medical research field. As most of us know, the truth is on our side, and if they can help support THR concepts, we will be in a better position in our battles against misinformation.
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I most definitely recall at least one news article (perhaps two or more) in the past year or two citing a Moffitt Cancer center doctor(s)/researcher(s) criticizing e-cigarettes.
The article(s) were in my THR Update(s), and I thought that I had posted at least one of them here on ECF (but my search on ECF couldn't find any).
The article(s) were in my THR Update(s), and I thought that I had posted at least one of them here on ECF (but my search on ECF couldn't find any).
Thanks for that information, and if you can find those articles, I think it would be useful in this situation. Since you're here, I'd like your professional opinion as to whether or not you believe Moffitt can be trusted to use/publish the data from the survey without bias.
Bill, the only mention I have of Moffitt in my Gmail archives of your THR updates is this:
I also had nothing when looking for e-mails mentioning Dr. Thomas H. Brandon of Moffitt.
I also had nothing when looking for e-mails mentioning Dr. Thomas H. Brandon of Moffitt.
I took the survey, AND took the liberty to mention what an insidious evil tobacco cigarettes are, that e-cigs appear likely to become an economic juggernaut, and how they will likely revolutionize public health the world over if the powerful, profit-driven industries that could give a rat's azz about public health were not permitted to "have their way".
I took the survey last week and signed up for the "focus group" The study is tentatively scheduled for 9/17 at 6pm near USF. I'll receive an email and info on where the event will be held. Of course this is what "Marina" scheduled me for. Supposed to last about 1 1/2 hours. Offering a $25 gift card. They want us to do a show and tell about our experiences and devices/liquids we use. Sounds good to me!
Stay tuned...
Stay tuned...
What devices do you use? Would be nice if there's a good variety of devices represented.
The chance to speak your mind about ecigs AND a gift card?! Wow! (Too much to hope, I suppose, that it'll be from an ecig vendor...
)Break a leg, TampaToker69! Standing by...
I received an email about this focus group today as well, and I'm pretty sure I'll be going. I'll bring my eGo travel kit, my Provari, and my MCM.
I received an email about this focus group today as well, and I'm pretty sure I'll be going. I'll bring my eGo travel kit, my Provari, and my MCM.
Hope there's a crash cart handy when those researchers get a load of your Provari show-and-tell!
Don't know what an MCM is, but I hope it's humongously cool!
Hope there's a crash cart handy when those researchers get a load of your Provari show-and-tell!
Don't know what an MCM is, but I hope it's humongously cool!
MCM = Man Cave Mod, and you can find them in this thread: http://www.e-cigarette-forum.com/fo...m/327234-mancavemods-vw-amd-vv-wood-mods.html
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