Well crap, back to the biologics

[deliza]

After enjoying about 6 months of medication free remission, I have to start taking biologic injections for my ankylosing spondylitis again. I was doing great until April, but since then I've had roving joint flares and anterior uveitis in one eye or the other (or in the case of 5 very memorable weeks, both eyes at the same time). I've been putting off going back on them, mainly because they are frigging expensive (the new one I have been perscribed runs about 2 grand a month, but fortunately my insurance will pay all but $100, still, thats a bite in the budget), but I got the slapdown from the rheumatologist today (been getting it from my husband for a few months ) Do you want to go blind, do you want your spine to fuse, blah, blah, blah, blah........ Anyway, I feel just a bit less pi**y about it, now that I've ranted a bit.

One thing on the light side, I told him about my switch to e-cigs....... his response: An electronic cigarette? How cool is that?

 

[Mary Kay]

Deliza, I am so sorry to hear about the flares! I wish you the best of everything!
I understand about slapdowns, my Doctor reads me the riot act all the time. If she could shake me she would. Mike is even worse! But oddly enough when I get on him about his health..he gets mad.

 

[deliza]

Ha! Funny how men are that way isn't it. Chad tried to slice his fingertip off with a jullienne (sp) slicer in the kitchen once. While he's standing with a towel wrapped around it, refusing to let me see it, I ask him "is it bad enough that you need to go to the hospital?" to which I get a resounding "NO!" My next question was "if it where on my hand would you consider it bad enough to go to the hospital?" This was met with a resentful stare and a few colorful expressions muttered under his breath. Men! I swear he could cut off his own head, and he'd just want to reattach it with some electrical tape...............

 

[Mary Kay]

I hear that! Mike had a heart attack while driving us to Tampa, I looked at him and asked what was wrong..he said NOTHING, just tired. About 2 hours later we were shopping at MacDill A.F.B. where he colapsed. On the way down..he stopped him self with the cart and said he tripped..he still wouldn't admit he was sick! After being on the floor for a second I yelled for help (They are used to this type of stuff because of all the retiree's) He was taken to MacDill and then sent to Tampa General, Thanks goodness! (best cardio care in Tampa) He had had 3 of these in one day and never told me a thing!
Triple by pass, a week in the hospital..no arm pain, no chest pain just a jaw pain. he said he thought it was a toothache.
I told him to grab his heart next time and yell "I am coming Elizabeth!" ala Redd Foxx!!
Men!

 

[Jules22871]

Sorry to hear that deliza. I know how hard it is to think you are doing great just to have the rug pulled out from under you. I wish you the best and hope things work out and you feel better soon.

 

[deliza]

Thanks MaryKay and Jules! All in all, I can't complain, there are lots worse off than me, and I am thankful that I have a great rheumatologist and good health insurance. I just had a momentary lapse into pity party mode.

 

[Jules22871]

anyone that has to deal with any kind of chronic illness, whether it be mental or physical deserves a pity party now and then. I know I have mine quite often,lol

 

[Kelly79]

After enjoying about 6 months of medication free remission, I have to start taking biologic injections for my ankylosing spondylitis again. I was doing great until April, but since then I've had roving joint flares and anterior uveitis in one eye or the other (or in the case of 5 very memorable weeks, both eyes at the same time). I've been putting off going back on them, mainly because they are frigging expensive (the new one I have been perscribed runs about 2 grand a month, but fortunately my insurance will pay all but $100, still, thats a bite in the budget), but I got the slapdown from the rheumatologist today (been getting it from my husband for a few months ) Do you want to go blind, do you want your spine to fuse, blah, blah, blah, blah........ Anyway, I feel just a bit less pi**y about it, now that I've ranted a bit.

One thing on the light side, I told him about my switch to e-cigs....... his response: An electronic cigarette? How cool is that?

deliza, I'm sorry to here your having problems, I have a cousin with the condition, and he can't walk very well anymore. I know from watching him how very painful it can be and i hope you will soon be feeling well again.

 

[deliza]

Thanks Kelly, I'm feeling better already, and the really nice news is the drug company is going to eat my co-pay for me for the next year, so that takes that off the table. I try to stay really active, even when I hurt, but now that I'm feeling better, that does make it easier. I guess I think that my spine can't fuse if it isn't still long enough

 

[Mary Kay]

Hey! We all can use a bit of a pat on the back sometimes. You such a "Up" kind of person, I bet you don't stay down for long. Did i hear party being mentioned? can I come if I bring some big fruity drinks with umbrella's? maybe jello shots..no, no, no, I don't do shots..ok maybe snacks!

 

[Mary Kay]

How are you doing Deliza? I was thinking about you today.