Vent Warning...
Morgan is fine now. She'll go back to school tomorrow. What happened in a nutshell was similar to the reaction she had a few months ago to a different med. The muscles in her face tightened and contracted. It's called an extrapyramidial reaction and is a rare reaction that happens with antipsychotic meds. When it happened a few months ago the hospital told me to give her benadryl if that ever happened again so that's what we did. We waited a while for it to kick in and it was only getting worse and she was in tears because the muscle contractions were so painful. We decided to go on and take her to the ER. We get on the interstate and she starts to have trouble breathing. We pulled off the next exit and called 911. Her airway was closing. They gave her more benadryl but most importantly, epinephrine. Off to the ER as origyninally planned and got home around 1230. This time they gave me an rx for an epi pen that I got filled today.
Homebound for Alex is going carppy. He has 600 excuses why he cant do an assignment. It's a fight to get anything done. Nothing works with him, not even bribery. Honestly my main concern at this point is this....we have done EVERYTHING plus MORE that the doctors told us to do when he was diagnosed at 5 years old. He is now a 16 year old junior in high school and I'm really afraid he's not gonna make it. I never cared what he wanted to do in life as long as he was happy and productive. Right now he is neither. Another year and a half and he'll graduate and there is no way at this point that he will be able to handle college or tech school, even part time online. If he can't work then what is there to do? What kind of life will he have? We won't always be here. We alwayls knew that it would take him longer to reach regular milestones but I'm afraid that this most important one willthe not happen....a happy productive life. I could always say that either you go to school or get a job when you graduate, pay rent or move out. I can't do that. There's no where for him to go except maybe a voluntary group home. NOOOOOOO!!!!!!!,
I dug for info and begged for info and help on services that would benefit both kids. Neither kid qualifies for waivers that would help them financially later, and financially now for us to pay med expenses. I'm so frustrated with the whole dam system!!
/rant