@Amraann vaping in its current form is less than a decade old. If you think 'by now' there would be a large uprise you are being foolish. It took 50+ years for science to make a connection between smoking tobacco and lung disease. If you read that smoking isn't linked to IPF then the site you read is not accurate by any means. 9/10 people who get IPF are current/former tobacco smokers. Main point: There simply isn't enough data on vaping yet to link it to ANYTHING and won't be for many years. This is just my experience and what I beleive. I could be right or wrong (I will certainly never know). All I know is it's insanely rare for a person to get IPF in their twenties and my symptoms began after I started vaping. Those are facts that you can't dispute. If you just look at the rarity of IPF and then combine it with rarity that someone would get it while vaping (vaping being a very small niche community) it looks troubling to me. That's all i'm saying. Don't lump me in with the preachy people that we encounter everyday. I'm the one that's dying here not you.
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I wish you all of the best OP ... I do believe your situation is an unfortunate coincidence.
as you said, it is a very rare condition to happen at all ... so rare in fact, I don't think your doctor could find another vaper who has it at your age.
vapers are also not very many compared to the population.
as you said, it is a very rare condition to happen at all ... so rare in fact, I don't think your doctor could find another vaper who has it at your age.
vapers are also not very many compared to the population.
Not to reduce the severity of your situation at all, but the Comment takes things totally out of context.
I'm old enough to know just how Lacking Science was 50yrs. ago, or even 25yrs. compared to advancements in just the last 10 or even 5 years.
Also, it actually took over 100 years. Tobacco use has been around for a long, long time.
Given how different people are and how some are severely affected by things others are not, I would be surprised if there aren't are many many more cases- not of your particular sickness, but other odd, unexplained or rare respiratory issues possibly attributed to vaping.
Thanks for sharing. I hope things remain non-worsening. Any heart medications or pet situations by chance? Birds, lots of pets etc
I would think perhaps the Doctor would want the home inspected.
Again VERY sorry for ya buddy. I hope the thread stays stabble because at SOME POINT someone very well may post something and actually be the one true real deal
of a vaping related illness and I would not want anyone persecuted over it.
Best wishes
Causes
By Mayo Clinic Staff
Pulmonary fibrosis scars and thickens the tissue around and between the air sacs (alveoli) in your lungs. This makes it more difficult for oxygen to pass into your bloodstream. The damage can be caused by many different things — including airborne toxins in the workplace, certain lung diseases, radiation directed to cancers in the lung or breast, and even some types of medical treatments.
Occupational and environmental factors
Long-term exposure to a number of toxins and pollutants can damage your lungs. These may include:
Some people who receive radiation therapy for lung or breast cancer show signs of lung damage months or sometimes years after the initial treatment. The severity of the damage depends on:
Many drugs can damage your lungs, especially:
Lung damage can also result from:
Researchers have several theories about what might trigger idiopathic pulmonary fibrosis, including viruses and exposure to tobacco smoke. And because one type of idiopathic pulmonary fibrosis runs in families, heredity also is thought to play a role.
I would think perhaps the Doctor would want the home inspected.
Again VERY sorry for ya buddy. I hope the thread stays stabble because at SOME POINT someone very well may post something and actually be the one true real deal
of a vaping related illness and I would not want anyone persecuted over it.
Best wishes
Causes
By Mayo Clinic Staff
Pulmonary fibrosis scars and thickens the tissue around and between the air sacs (alveoli) in your lungs. This makes it more difficult for oxygen to pass into your bloodstream. The damage can be caused by many different things — including airborne toxins in the workplace, certain lung diseases, radiation directed to cancers in the lung or breast, and even some types of medical treatments.
Occupational and environmental factors
Long-term exposure to a number of toxins and pollutants can damage your lungs. These may include:
- Silica dust
- Asbestos fibers
- Grain dust
- Bird and animal droppings
Some people who receive radiation therapy for lung or breast cancer show signs of lung damage months or sometimes years after the initial treatment. The severity of the damage depends on:
- How much of the lung was exposed to radiation
- The total amount of radiation administered
- Whether chemotherapy also was used
- The presence of underlying lung disease
Many drugs can damage your lungs, especially:
- Chemotherapy drugs. Drugs designed to kill cancer cells, such as methotrexate (Trexall) and cyclophosphamide (Cytoxan), can also damage lung tissue.
- Heart medications. Some drugs used to treat irregular heartbeats, such as amiodarone (Cordarone, Nexterone, Pacerone) or propranolol (Inderol , Innopran), may harm lung tissue.
- Some antibiotics. Nitrofurantoin (Macrobid, Macrodantin, others) and sulfasalazine (Azulfidine) can cause lung damage.
Lung damage can also result from:
- Tuberculosis
- Pneumonia
- Systemic lupus erythematosus
- Rheumatoid arthritis
- Sarcoidosis
- Scleroderma
Researchers have several theories about what might trigger idiopathic pulmonary fibrosis, including viruses and exposure to tobacco smoke. And because one type of idiopathic pulmonary fibrosis runs in families, heredity also is thought to play a role.
My husband for fourteen years was taking a med for his heart. This year after many tests they found that it damaged his lungs. It was amiodarone as sd3614 said above.
This past June they found he had cancer also. So he had his port put in yesterday and started chemo and then radiation.
I certainly feel for you and hope something will soon be available for your condition..
I am sorry that you have to deal with this.
This past June they found he had cancer also. So he had his port put in yesterday and started chemo and then radiation.
I certainly feel for you and hope something will soon be available for your condition..
I am sorry that you have to deal with this.
I did not lump you in with anybody. I read the causes on the Mayo clinic site. (Same one that sd3614 quoted) I am pretty certain that the Mayo clinic is accurate.
You came to a discussion forum so do not be shocked if people then try to discuss the topic that you brought up.
Your illness does not give you the right to be snippy at people who have only tried to discuss your topic and offer you compassion and advice for what your going through.
thanks for posting gwapes.
could be just a coincidence, or it could be a pattern;
if there's a pattern but nobody puts up and posts of their own case then we wouldn't even see the pattern
could be just a coincidence, or it could be a pattern;
if there's a pattern but nobody puts up and posts of their own case then we wouldn't even see the pattern
@Amraann I'm not being 'snippy at people' just being 'snippy' at you. You can't read about a disease for 30 seconds and come back and try to tell me where i'm wrong. On top of that, you actually think less than a decade is enough of a trial period to rule out it's dangers. That's just silly. No amount of back peddling is going to change my opinion of you.
Thank you everyone for your words of support. It was a nice surprise. A member linked me to a couple successful stories where CBD stopped IPF from progressing. I'm looking forward to trying it.
I just wanted to wish you good thoughts gwapes.
I do hope you get a chance at recovery.
Thanks for sharing your story.
I do hope you get a chance at recovery.
Thanks for sharing your story.
I am so saddened to hear this diagnosis. IPF is a progressive condition that is unfortunately un curable or maintained. That said, at your age and time using tobacco I would strongly suggest you get another opinion from another Rheumatologist. I just had to attend a funeral of a dear friend who succumbed to this and it is heartbreaking. Please get another opinion!
Vaping related or not, no one here knows for sure.
But I also wanted to extend my best wishes and hoping
for the best. I also would like to strongly suggest getting
another opinion as this is such a rare diagnosis for someone
so young. Good luck to you!
But I also wanted to extend my best wishes and hoping
for the best. I also would like to strongly suggest getting
another opinion as this is such a rare diagnosis for someone
so young. Good luck to you!
YOU have no idea how much reading I may have done. I did not in anyway tell you that you were wrong. YOu obviously have issues and your health is not what I am refering to.
THere is no need to attack. SO my guess is you only started this thread to jump on the first person who replied that it may not have anything to do with vaping..
I notiice that you completely ignored all of the very kind things I said. The comment about it maybe not being vape related is because you said you were blaming yourself.
Either you have a reading comprehension problem or your not a nice person or both.
gwapoes6, Sorry to hear of your VERY bad health issue. I wish you the best. As to what caused it?
Vaping? Smoking? Genetics? Doritos?
No idea from here, but hang in there and enjoy life as best you can.
Vaping? Smoking? Genetics? Doritos?
No idea from here, but hang in there and enjoy life as best you can.
This is certainly not a topic to argue over. It is in fact a very serious issue. No one here brought the issue up for discussion. I have seen nothing but the best understanding most can on this issue and pure compassion at heart. If you disagree with what one here states, so be it. But to condemn others doubt based on scientific fact is futile. This is a matter you and your Physician should deal with. We are only here to offer a different opinion based on what is known to each individual, but certainly no need to get up in arms it about here, that you need to do with your maker! Vaping may well be a reason/cause but the fact is there is absolutely no relationship with it and IPF, be mindful that many have suffered this condition and never vaped.
Sorry to hear about your diagnosis.
Several years ago my wife and I noticed a lump on my right shoulder that was about 3 inches in diameter.
Naturally we were concerned and I scheduled a Dr's visit asap.
I'll be honest, it scared the hell out of me and the first question I asked myself was "What lifestyle changes have you had in the past 6 months?"
The only one I could think of was vaping so like an idiot I went right back to smoking.
Because that made soooooo much sense (insert heavy sarcasm)
To make a long story short, the lump turned out to be a lipoma, and a mild one at that. You cant even see it under a shirt unless you know what to look for.
Basically its a benign fatty deposit thats quite common in caucasian males over 40.
Moral of the story is "Be careful when you start assigning blame, especially when there are myriad of other factors that you havent possibly had time to consider yet.
Several years ago my wife and I noticed a lump on my right shoulder that was about 3 inches in diameter.
Naturally we were concerned and I scheduled a Dr's visit asap.
I'll be honest, it scared the hell out of me and the first question I asked myself was "What lifestyle changes have you had in the past 6 months?"
The only one I could think of was vaping so like an idiot I went right back to smoking.
Because that made soooooo much sense (insert heavy sarcasm)
To make a long story short, the lump turned out to be a lipoma, and a mild one at that. You cant even see it under a shirt unless you know what to look for.
Basically its a benign fatty deposit thats quite common in caucasian males over 40.
Moral of the story is "Be careful when you start assigning blame, especially when there are myriad of other factors that you havent possibly had time to consider yet.
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