After six months of waiting to see the doctor I finally got in to see a different doctor. Long story there but basically the girl called and told them she was afraid I would end up in the ER if i had to wait a full year(November)to get in.
I had my stress test with echo on Monday and then right into my appointment. Official diagnosis is Hypertrophic obstructive cardiomyopathy. I do not have heart failure, or a-fib which were both a concern. Treatment is a new to me medication, and I was put on a waiting list for a research study drug. I am not bad enough for a pacemaker or surgery yet but those will most likely happen in the future. The new treatment should allow me to get out of bed and have energy again and be able to take big full breaths. The doctor spent over an hour explaining my condition and she was great. So overall great news.