exhaustion

Status
Not open for further replies.

dinky

Senior Member
ECF Veteran
Jan 1, 2011
205
2
PENNSYLVANIA
no not sleeping yet but will be very soon. feeling a tiny bit better. i have been fighting this evil illness since i was 19. im well into my 50s at this point. this full blow exhaustion did come with the vaping. ive just gotta figure out what to do with it.... the comment of quitting smoking and loosing b vits may just be the problem. probably missing some other things too.
 

Dark.Angel

Super Member
ECF Veteran
Verified Member
This is insane, it's overwhelming the problems that have cause so many of us such life debilitating problems I would think the "doctors" would know these after all it is their job right? sure doesn't seem like it. I mentioned in one of my post how we are just 1 of hundreds of patients to a doctor but we are our only patient to us, yet, until now have I seem just how that statement seems to be true in so many ways that to me are clear cases of malpractice!! maybe people have to start making our doctors liable, if they can't treat 1 patient properly they have no right to have more. Our medical system is Dickensian! have we forgotten we pay them, if this happened to our car they would have to fix it properly, but when it happens to our bodies? I'm beginning to wonder if smoking doesn't cause and mask all of these problems. I fell off the wagon the other night, smoked analogs, I slept great that night, and woke up feeling good, went out shopping spent the day out, came home was getting tired, I didn't smoke that day, I just woke up feeling like crap again..... heavy sigh
 
Last edited:

Dark.Angel

Super Member
ECF Veteran
Verified Member
maybe I need vit b? which ones do I need, and how much are they, I'm of course broke because SSDI doesn't pay me enough I'm lucky I have 50 to live on all month after rent and bills :( ate top ramen for 2 months just to get the vaping gear I have which isn't working for me, but thats on a different thread LOL <--it really is
 

meems

Ultra Member
ECF Veteran
Verified Member
Nov 30, 2010
1,115
269
Ohio
I am talking about a vitamin D blood test, ordered by your Dr. They can also check vitamin B levels, the D you have to specifically request in case your Dr is not on top of things. I can't scream the D issue loud enough, it is connected to several different cancers, colon health, fibro, MS, asthma, preventing the flu more effectively than flu shot, they have compelling evidence of low D levels in mothers contributing to autism..the list of benefits just goes & goes & goes.

After going through 3 rounds of script strength to get my levels ok, I then stayed on 5,000 IUs of D3 a day..still had to up it a bit this last month. Magnesium is also a critical cofactor when taking D, especially large amts of D, but magnesium from Oxide is not effective, I learned this the hard way.
 

chiwalker

Senior Member
ECF Veteran
Mar 4, 2011
177
380
75
youngstown ohio
Dark Angel, had the same experience...felt better smoking analogs today tho I hate the taste...vitamins may help, I takea lot of them including d3, have 4 years but fibro is a fact; in my forties Iused to lie in bed almost paralysed by pain in my neck n shoulders its the lack of restorative sleep that hurts us so bad. have fought this demon for 20 years and know what it is, tried every thing that came down the pike was in deep denial and fought the fatigue and pain n now I accept what I have to do to survive. if u want to talk voice, I have free long distance...
 

Dark.Angel

Super Member
ECF Veteran
Verified Member
You are 100% correct about sleep and fibro, its the classic catch 22. I'm getting some vits, my friend has a stock pile so I figured at my age (b-day 10 days away, hate the realization of that LOL)I should be taking vits daily, and it's another thing which is good for me, just like quitting, I only pray it doesn't have the same "beneficial"?effect quitting smoking has had. I not only have the fibro, I was disabled in the line of duty, my main weight bearing disc in the back ruptured, and there is no cushion, I knew it was only a matter of time, before other vertebra and discs would suffer. Yup, my cervical ones are now herniated and messed up, WOOT! my right nerve bundle is trapped, so I have diminished strength on my right side, and serious nero damage. I take 200 mg Oxycontin and 180 mg Oxycodone daily for the pain, along with high doses of muscle relaxants and Neurontin, there are a few other too, its one deadly mix, that I HATE taking, I should be a zombie drooling in the corner, but I functioned fine, don't ask me how, until, I quit smoking. I don't know if I caught the viral flu, or this smokers flu or both at the same time I quit, but there was another factor, which was 5 MRI's and a MRA, with some injected dye, one through a catheter into my brain, done under a general (another possible factor) which ended up a disaster. I don't know if its a combination of 1 or 2, or just the analogs, but my life consists of my laptop as I lay in bed, I have NEVER had the exhaustion like I do now, I just don't have the energy to do anything!, I get terrible nausea, and you bet I'm depressed, who wouldn't be. This thread is already way to overwhelming to deal with, I have a list of questions, and a battery of test and blood work I want done when I see doc on the 10th. Now, if that isn't enough, the eGo I have (i dead battery and another dead LR atty) DOES NOT WORK! for the type of smoker I was, I need a 5V or a VV. Wait it get even better!! the car blew a head gasket and warped its head, I only have SSDI which is a joke to try and live on, I'm not kidding, it's terrible. I saved months to get this system, I was already in tears trying to grasp the all the technical stuff, to desperately try to figure out what system was best for me, its just as frustrating as the physical side. I can't stand to think I went through all of this for nothing. Now I'm pouring out my problems to complete strangers... I just gets better
Dark Angel, had the same experience...felt better smoking analogs today tho I hate the taste...vitamins may help, I takea lot of them including d3, have 4 years but fibro is a fact; in my forties Iused to lie in bed almost paralysed by pain in my neck n shoulders its the lack of restorative sleep that hurts us so bad. have fought this demon for 20 years and know what it is, tried every thing that came down the pike was in deep denial and fought the fatigue and pain n now I accept what I have to do to survive. if u want to talk voice, I have free long distance...
 

Dark.Angel

Super Member
ECF Veteran
Verified Member
I gotta agree with you there, sad thing is I was suffering from malnutrition but I figured it wasn't so bad if I was able to quit smoking I was smoking pipe tobacco that I was grinding up in the coffee grinder...yeah lesser of two evils
lol dude, eating Ramen for 2 months? That can't be healthy. Although taking a multi-vitamin with each Ramen meal might offset the malnutrition.
 

Dark.Angel

Super Member
ECF Veteran
Verified Member
dink how are the vits working?, feeling better? I go to the Doc on the 10th (pain management), and the gastroenterologist on the 22, I think I will probably get a better response from the gastro when asking for allot of the test and blood work as long as its covered by insurance do them all.
 

Dark.Angel

Super Member
ECF Veteran
Verified Member
you're lucky for some with medical issues those enigmatic 4000 masked or (for all we know created problems) as long as you were getting them you were fine, once you stopped thats when your body has problems its how we were kept addicted to the analogs. I know it can seem a bit on the conspiracy theories, but lets remember who were dealing with.....
i got what felt like a 24hr bug or something but other than that i have been feeling great.
 

Matodd

Senior Member
ECF Veteran
Sep 19, 2010
121
2
West Virginia
i never get good sleep. i have fibromyalgia. ppl with fibro are alwayas tired and have goffy sleep patterns. however this is a whole lot worse than what i was dealing with on a daily basis. nope no headaches or lightheadedness or racing heart or any of it. just full blow if i dont go lay down im going to fall down exhaustion. its like i havent slept for days.

Dinky
I think I may have experienced some of what you are going through. I also have fibro and after I quit analogs I'd say about a month into it I became more tired than I had ever been. I became depressed I didn't want to leave the house (still don't really) but it is getting better. I think it has something to do with the chemistry I'm not sleeping as much now it's been almost six months since I quit analogs so there is hope. Just hang in there. Follow the suggestions of the other posters. Personally when I go back to my neurologist I'm going to ask for an antidepressant to add to my cocktail of drugs. If you want to swap fibro and vaping stories you can always PM me. I hope that things get better for you.

M
 

toeknee

Full Member
Jan 23, 2011
55
0
Alabama
You are 100% correct about sleep and fibro, its the classic catch 22. I'm getting some vits, my friend has a stock pile so I figured at my age (b-day 10 days away, hate the realization of that LOL)I should be taking vits daily, and it's another thing which is good for me, just like quitting, I only pray it doesn't have the same "beneficial"?effect quitting smoking has had. I not only have the fibro, I was disabled in the line of duty, my main weight bearing disc in the back ruptured, and there is no cushion, I knew it was only a matter of time, before other vertebra and discs would suffer. Yup, my cervical ones are now herniated and messed up, WOOT! my right nerve bundle is trapped, so I have diminished strength on my right side, and serious nero damage. I take 200 mg Oxycontin and 180 mg Oxycodone daily for the pain, along with high doses of muscle relaxants and Neurontin, there are a few other too, its one deadly mix, that I HATE taking, I should be a zombie drooling in the corner, but I functioned fine, don't ask me how, until, I quit smoking. I don't know if I caught the viral flu, or this smokers flu or both at the same time I quit, but there was another factor, which was 5 MRI's and a MRA, with some injected dye, one through a catheter into my brain, done under a general (another possible factor) which ended up a disaster. I don't know if its a combination of 1 or 2, or just the analogs, but my life consists of my laptop as I lay in bed, I have NEVER had the exhaustion like I do now, I just don't have the energy to do anything!, I get terrible nausea, and you bet I'm depressed, who wouldn't be. This thread is already way to overwhelming to deal with, I have a list of questions, and a battery of test and blood work I want done when I see doc on the 10th. Now, if that isn't enough, the eGo I have (i dead battery and another dead LR atty) DOES NOT WORK! for the type of smoker I was, I need a 5V or a VV. Wait it get even better!! the car blew a head gasket and warped its head, I only have SSDI which is a joke to try and live on, I'm not kidding, it's terrible. I saved months to get this system, I was already in tears trying to grasp the all the technical stuff, to desperately try to figure out what system was best for me, its just as frustrating as the physical side. I can't stand to think I went through all of this for nothing. Now I'm pouring out my problems to complete strangers... I just gets better

DarkAngel,
I am so sorry for the trouble you're having. Have you contacted the vendow you bought from about the problems with the equipment? My hope is they would let you return faulty equipment.

Also, stopping smoking can affect metabolism of other drugs and your dosages may need adjusted. Your doctor will hopefully be able to figure all this out and help you get feeling better. You also seem very stressed and depressed (understandably) and these can drain your energy as well.

I hope things get better soon for you. Life is hard sometimes. I hope it gets easier.
 

dinky

Senior Member
ECF Veteran
Jan 1, 2011
205
2
PENNSYLVANIA
well im not saying im feeling wonderful but i will tell u the vits are helping....... it hasnt even been a week yet so i dont expect huge results but at this point i will take what i can get. i cant remember being this tired since i was struck with fibro/laying in bed staring at the ceiling and drooling basically. dont like the flash back from that at all. im voting for the vitamin regiment right now. it makes sense since quitting smoking gets drains our bodies of vitamins. that was something i didnt know and am thankful to who ever shared that with us.
 

dinky

Senior Member
ECF Veteran
Jan 1, 2011
205
2
PENNSYLVANIA
go for the vit tests if u can get them. i really think it is helping. im not feeling wonderful but somewhat functional which is an improvement. still having a devil of a time getting myself out the door to do anything but im upright. thats something.

my allergy dr also told me to watch the yeast products..... pasta, bread etc.... guess what...... a whole lot less gastro issues. i wll continue to do that. so many things have yeast in them. ud be shocked. i found it in chicken stock.

fibro ppl have yeast issues. so im sticking with the watch the yest and hoping that helps too.....

let us know what the dr says dark angel.
 
Status
Not open for further replies.

Users who are viewing this thread