SE, NJoy vs. FDA -- Overflow thread

Status
Not open for further replies.

SheerLuckHolmes

Ultra Member
ECF Veteran
Verified Member
Jul 28, 2009
1,354
562
74
Tempe, Az
This is such good information that it became a sticky. I offer it here as an example for how we can motivate and lead ourselves more effectively.

" Effective Advocacy
As requested, I am reposting this to a new thread. I edited the excessive introduction and conclusion.
___________

Here are some ideas which may help future advocacy work end up with more people wanting to agree with a position. Please keep in mind that I am not a politician or a political advocate, what I am saying is based in my knowledge of social pragmatics skills and remediating those skills in adults with acquired neurological disorders and children on the autism spectrum. Professional politicians and advocates probably have much more refined knowledge and I would defer to them regarding specific advocacy advice.

1. If you're a member of an organisation disclose it immediately, especially if it's a formally incorporated organisation. Your organisation is something to be proud of! You do advocacy through it, provide education, establish industry standards and practices, and hopefully fund science. Your mindset should be that your opinion is valuable *because* of your affiliation, not *despite* it!

2. Tone your posts as a discussion instead of an argument. If someone says "the FDA found X chemical in e-cigs" then instead of replying "you're wrong because X chemical was in only one cart, do your research", you might try "hey thanks for pointing that out, I went to their website and read their report and it looks like it was only in one cart, here's the links I used do you have any more information so we can keep getting to the bottom of this?". See how the first statement sets up the two people in opposition, whereas the second one sets them up as allies working together? It's much easier to convince an ally than an opponent.

3. If someone makes a valid point, don't try to explain it away. Rational people are willing to accept the world as imperfect, they'll accept some flaws with PVs. When people say "there aren't enough studies showing it's safe", instead of saying "it's gotta be safer than tobacco" try something like "you're right, and that's why we are gathering money to do more tests/have a letter writing campaign to the manufacturers asking them to do more testing". Treat this as an opportunity to find a place of agreement and assuage their concerns, from there you can work towards other places of agreement.

4. Avoid putting words into people's mouths and turning their narrow statement into a broad statement. If I said "It contains chemical X which is found in antifreeze." and the reply was "So you are for a total ban of all salami because it's in that too?" I would immediately be angry and defensive because that is not whatsoever what I said or meant. Know your goal. If you're doing advocacy that goal should be to win people's support, not to win arguments against them.

5. If one person has already responded to someone's points, don't jump on the bandwagon. No one likes being ganged up on and the probability of two people settling a disagreement is much higher than 1 person settling a disagreement with what they perceive as a mob of attackers. If you really feel you have a point then send it via PM to the person you think needs help in explaining their side. What's more important, that you get to say your piece or that the cause you're fighting for wins support?

6. If you cannot end with an agreement, at least end on a conciliatory note. Something like "it just doesn't look like we can see eye to eye on this right now, maybe if we both go and do more research we can find information which helps us agree" at least leaves things open, and even though the chances are that you'll never end up agreeing it looks a lot better to people reading the thread than "you're a ....., I'm done talking to you!". Having people think "wow, that guy is a jerk" doesn't motivate them to go learn more, and much of the time the people you impact are not the ones replying to the thread.

7. Don't insult, belittle, dismiss, condescend to, ridicule or otherwise mistreat people. Spend a minute in the other guy's shoes, how would you feel if someone said what you're about to say to them to you? Would you want to be called (or have it inferred that you are) ignorant, stupid, uneducated, valueless, childish, etc. Regardless of the fact that it is incredibly rude, it will definitely close people's minds and lose any chance that they will see your side of an issue.

8. Finally, remember that you're walking into someone else's house when you post in a forum. Be respectful of their rules and accept it if they say that something isn't welcome.

If you want to sum all this up into one easy to remember idea, it's that doing advocacy work is making friends. When the person you talked to goes to vote on the cause you advocate, you want them to think "I don't want my friend to lose". They need to feel personally connected to your cause and they get that by feeling personally connected to you.

In Friendship,
Seth

There is such a wealth of information on ECF that sometimes we forget what we have due to our frustrations.
 
Last edited:

Luisa

Super Member
ECF Veteran
Apr 8, 2010
690
419
harlingen,texas
Luisa, I have done the following: written(snail mail) to both of my State Senators urging them to seriously investigate this technology before coming to any conclusions (included links to several good articles which explain the technology as well as clearly outline ALL the scientific research data currently available); have also written all the Iowa District Representatives as well as the Iowa General Assembly; I have written letters to legislators in Illinois and New York. I have participated in the various CASAA survey polls, signed petitions, including the petitions submitted by Dr. Joel Nitzkin to the FDA; I've written the FDA several times as a practicing, Cerified Health Care provider, urging them to reconsider their position and sharing my viewpoints from my particular field of Health Care - Substance Abuse; I've personally spoken to my superiors about this technology as well as other Treatment Directors and fellow colleagues, several of whom have themselves switched to using e-cigs and now pass on this information to their clients. I have posted comments on several healthcare websites and news websites where Kristin and Elaine have posted articles in support of this technology. I have written letters to President Obama urging him to demonstrate true leadership and avoid trying to be "politically correct" and/or succumbing to financial or other political pressures and to act "on Behalf of the People" and support Public Health Care Strategies of Harm Reduction. But, this is all beside the point, which you seem to have missed. My comments were addressing how persons in positions of power and/or leadership, to whatever degree, communicate with those with whom they claim to be allied and that brow beating people is not only abusive, in my opinion, but inevitably ineffective. You certainly don't have to tell me of the urgency of this "cause" but that urgency should in no way preclude using more effective tactics of "rallying the troops."
You have made valid points. At this crucial time,what would you suggest the leaders do to motivate people? It must be frustrating to work so very hard and those who have the most to lose will not step up to the plate to help. I am not trying to be argumentative nor sarcastic. I would truly like to hear your suggestions. Thanks
 

HKholer

Full Member
Mar 18, 2010
28
0
79
Saint Louis, Mo
You gotta be kidding me here, seriously, because $200 of that is mine.

Well, I could only afford $50 right now, but between the 2 of us we have donated over 25% of the CASAA treasury?

That's sick! That is totally disgusting!

Talk about slackers!

I was feeling guilty about living on a fixed income and not being able to give more just now.

All you that haven't given - when the bans come, don't you dare to say one word. NOT ONE!
 
Roly is right. Email does nothing. Rants are good, espescially if there is a focused goal to motivate. Harsh is good, apparently the same old stuff isn't working and certainly not gaining momentum as it should. All my customers, who phone or internet order, receive a letter that includes the address of the Appellate Court Justices in DC (the ones presiding over the case).

If you are a supplier, you should print your emails and letters of praise and put a packet together and send it to them. If you are a consumer, you should write or type a letter and mail it. If you haven't or if you won't, then you are lazy and you really don't care if e-cigs eventually get banned. In writing I would suggest keeping stuff simple.....not getting too technical talking about modified stuff and dripping etc.

Keep it to things that they will understand - I am a consumer of electronic cigarettes, it is the functional equivalent of a cigarette but there is so much more. Mention how happy your children are that "Mommy/Daddy doesn't smell like smoke anymore" (and 3rd hand smoke/residuals on clothing, have been found to be carcinogenic) Mention any changes in your children's health (a group of pediatricians in Ohio, that carry my product, have told me of less occurances of ear infections, upper respiratory infections and bronchitis in children whose parents have switched to e-cigs). These pediatricians are afraid to be named because of the FDA...isn't that sad....that's why you voicing these effects and positive experiences are even more important than ever. VERY important if you have kids to mention them.....there isn't alot of sympathy from non smokers for smokers. THAT IS JUST THE WAY IT IS....BUT how can you deny the well being of the children. I am sure you can see how this angle is very compelling....
 

Vocalek

CASAA Activist
Supporting Member
ECF Veteran
Volcalek,I would like to issue a challenge to everyone on this forum. I challenge everyone to send a $10.00 donation to Casaa this week. It will be interesting to see how many members will do this in support of keeping ecigs legal. If you can give more,wonderful!! If you are serious about keeping your ecig,DONATE. Volcalek,can that be posted at the top of the site opening page along with the petition information? It will be revealing

Luisa: I put your challenge out to the general ECF membership:

http://www.e-cigarette-forum.com/fo...discussion/94266-challenge-support-casaa.html

I PM'd SmokyJoe asking if he would post a link at the top of the forum and to make the item a sticky.
 

cliff5550

Ultra Member
ECF Veteran
Verified Member
Jul 9, 2009
1,232
92
West Central Illinois - USA
I originally had a problem in finding how to donate to CASAA a couple weeks ago and had to ask for "directions" to the button. It seems to me "Support CASAA" is pretty vague and maybe should be replaced with something like "Join CASAA" or "Donate to CASAA" or even a blatant "Donate".
"Support CASAA" really didn't get my attention and I just read right over it.
 

kristin

ECF Guru
ECF Veteran
Aug 16, 2009
10,448
21,120
CASAA - Wisconsin
casaa.org
My comments were addressing how persons in positions of power and/or leadership, to whatever degree, communicate with those with whom they claim to be allied and that brow beating people is not only abusive, in my opinion, but inevitably ineffective. You certainly don't have to tell me of the urgency of this "cause" but that urgency should in no way preclude using more effective tactics of "rallying the troops."

It's important to remember that ECF is not an advocacy or activist organization. It's a for-profit social forum. I am grateful for the platform and appreciate when they allow CASAA to relay important information and help get the word out, but ECF and its moderators should not be confused as working for or leading the cause. They are aggregators for the information and that is all they should be held accountable for unless they some day choose to be more than that. Roly and the other mods no more leaders of any ecig movement more than any other ECF member.

Luisa: I put your challenge out to the general ECF membership:

http://www.e-cigarette-forum.com/fo...discussion/94266-challenge-support-casaa.html

I PM'd SmokyJoe asking if he would post a link at the top of the forum and to make the item a sticky.

Great idea!

I originally had a problem in finding how to donate to CASAA a couple weeks ago and had to ask for "directions" to the button. It seems to me "Support CASAA" is pretty vague and maybe should be replaced with something like "Join CASAA" or "Donate to CASAA" or even a blatant "Donate".
"Support CASAA" really didn't get my attention and I just read right over it.
CASAA is working on improving this!

ON ANOTHER NOTE: Watch for a new CASAA VIDEO CONTEST coming up! We'll be looking for CASAA members to create a public service announcement for YouTube and other video platforms. There will be prizes and one will also be chosen (hopefully) as an official CASAA public awareness video. It's going to be a lot of fun and help raise awareness!! :thumbs:
 

Spence

Senior Member
ECF Veteran
Apr 18, 2010
151
1,336
Tennessee
Is there a way that the e-mail receipt for a donation to CASAA could be altered? This is a copy of the whole email:

Company: CASAA
Reference Number: XXXXXXXXXXX
Subtotal: $10.00
Tax: $0.00
Shipping: $0.00
Total: $10.00
CASAA


That's it, and it seems like an obvious missed opportunity to "link" people to a good next step of support.

Maybe include a signature banner?
Maybe a petition link?
Something that channels their enthusiasm?

Thanks.
 
Last edited:

Webby

Resting In Peace
ECF Veteran
Mar 31, 2009
796
15
USA
Is there a way that the e-mail receipt for a donation to CASAA could be altered? This is a copy of the whole email:

Company: CASAA
Reference Number: XXXXXXXXXXX
Subtotal: $10.00
Tax: $0.00
Shipping: $0.00
Total: $10.00
CASAA

That's it, and it seems like an obvious missed opportunity to "link" people to a good next step of support.

Maybe include a signature banner?
Maybe a petition link?
Something that channels their enthusiasm?

Thanks.

"Great minds", Spence -

That was just tossed out on the CASAA board. I didn't realize how generic (and what a wasted opportunity) it was that we didn't post a much more comprehensive Thank You response. We appreciate every donation that has been made and I do solumnly swear that transparence of our funding will be available on www.CASAA.org
 

Webby

Resting In Peace
ECF Veteran
Mar 31, 2009
796
15
USA
I just added $250 to CASAA's coffers. The amount I'm saving on not smoking made that easy. I can't believe that more haven't contributed. This thread reminded me that I hadn't done it before.

Let's get it going people.

Wow! Thanks rothenbj! That's the kind of support we need but even $10 or $20 is helpful to the cause. Most funds are spent on postage and printing but we hope to be able to generate enough to support more in person meetings and campaign materials for localized fights.
 

lonercom

Super Member
ECF Veteran
I'm embarassed to say that until I read the facts stated in a differeent post I had not even thought of giving MONEY to CASA. I have since rectified that error, as promised.

Just had a look at the "Alphabet" groups brief and I am confused on one specific point; the purpose of the brief. It appears that they are arguing on the Dostrict Court's ruling that Electronic Cigarettes cannot be regulated as a drug/delivery device. When did Judge Leon make that finding?

From my understanding, the district court only ruled on the injunction from seizing imported devices. Am I wrong on this?

If I am not then the brief is related to an issue not relevant to the current appeal proceedings and therefore unacceptable. As such it should not be included in the official court records, nor should it be considered as part of the stay.

I'm feeling rather stupid right now so any of you Perry Mason types please feel free to chime in.
 
Last edited:

Vocalek

CASAA Activist
Supporting Member
ECF Veteran
I'm embarassed to say that until I read the facts stated in a differeent post I had not even thought of giving MONEY to CASA. I have since rectified that error, as promised.

Just had a look at the "Alphabet" groups brief and I am confused on one specific point; the purpose of the brief. It appears that they are arguing on the Dostrict Court's ruling that Electronic Cigarettes cannot be regulated as a drug/delivery device. When did Judge Leon make that finding?

From my understanding, the district court only ruled on the injunction from seizing imported devices. Am I wrong on this?

If I am not then the brief is related to an issue not relevant to the current appeal proceedings and therefore unacceptable. As such it should not be included in the official court records, nor should it be considered as part of the stay.

I'm feeling rather stupid right now so any of you Perry Mason types please feel free to chime in.

Don't feel bad, Loner. The alphabet soup crowd (FDA, ALA, ACS, AHA, CFTFK, ASH, AMA, etc.) has made things unnecessarily complex.

Back in January, Judge Leon granted the injunction sought by the plaintiffs, Smoking Everywhere and NJOY. The Judge agreed with the Plaintiffs that their product is not a drug. Judge Leon stated that if FDA wants to regulate the products, it should do so under the new Tobacco Act, not the Food, Drug, and Costmetics Act (FDCA).

I suggest you read Judge Leon's opinion, because these briefs are reacting to the ruling and the logic presented in Judge Leon's opinion. The FDA asked the appeals court to issue a stay of the injunction that was ordered by Judge Leon in the lower court. The usual practice is to grant these requests for a stay of a lower court order automatically. The stay will remain in force until the appeals hearing.

Here is a link to both of the lower court documents:

http://www.casaa.org/files/SE-vs-FDA-Ruling.pdf
http://www.casaa.org/files/SE-vs-FDA-Opinion.pdf
 
Last edited:

rothenbj

Vaping Master
Supporting Member
ECF Veteran
Verified Member
Jul 23, 2009
8,285
7,707
Green Lane, Pa
Wow! Thanks rothenbj! That's the kind of support we need but even $10 or $20 is helpful to the cause. Most funds are spent on postage and printing but we hope to be able to generate enough to support more in person meetings and campaign materials for localized fights.

No problem Webby, I'm really surprised that more people haven't stepped to the plate on this. Not coughing and wheezing was worth the contribution, let alone the savings I've attained from not buying cigarettes.

Somehow these life savers have to stay available as an alternative to cigarettes, despite what the alphabet soup organizations have to say about them.
 

lonercom

Super Member
ECF Veteran
...Back in January, Judge Leon granted the injunction sought by the plaintiffs, Smoking Everywhere and NJOY. The Judge agreed with the Plaintiffs that their product is not a drug. Judge Leon stated that if FDA wants to regulate the products, it should do so under the new Tobacco Act, not the Food, Drug, and Costmetics Act (FDCA)...

Thanks for the reply. I have read those documents several times.

It still appears to me that the brief is arguing on the merits of the CASE which has not been held instead of the merits of the INJUNCTION Which is the subject of the appeal. If this is the case, their brief should be irrelevant, correct?
 
Status
Not open for further replies.

Users who are viewing this thread