Shinyitis Support Group

[Fidola13]

@charlie1465
So sorry to hear your back in the hospital. The anemia sucks. I’m still taking supplements for anemia from blood loss during surgery. In the hospital they’ll be able to get your levels back to normal hopefully quicker.

I hope you feel better and get discharged feeling great very soon!!!

Please keep us updated. Sending healing thoughts to you -s

 

[AvaOrchid]

For anyone that doesn't already have one of the Aegis models the Aegis solo with Tengu rda is on sale for $30 on vape Wild. They're also running a a special right now we're with any purchase of $10 or more you can add a Black Friday Mystery Gift to your cart for $4.99 and then put in the code "BFGIFT" I think and it will subtract it and it's basically free. I do not know what the gift is it does not give you any hints but it is a free gift with a coupon code the coupon code is on the site so if I have it wrong I apologize but you'll see it once you go on there if you're interested. I just thought I'd let everyone know just in case anyone was looking for one

 

[muth]

Try a different browser. Also, sometimes the links on the left are broken for me, so I just use the drop down list from the top catalog link.

MDX Mod

I tried that. I disengaged my ad blocker, I allowed cookies. I guess I'll have to try other things.

 

[muth]

Only thing “shiny” I got today is more replacement bubble glass for all my Zeus single coils. Better than no mail I suppose. Plus some consumables ie juice until I’m recovered enough to start mixing again.

View attachment 855151

Sara, where do you buy your bubble glass for your Zeus singles? Could you link me up?

 

[muth]

Origin Vape has their BF 20% off sitewide sale running. Code = IVAPEIVOTE

@muth you were looking for a KFL19, they have them and spare parts. The KFL19 is $72 w/20% off which is the same I paid at Roadside Vapes a while back.

I've purchased gear from them. They're a solid vendor.

Oh yes, I know. I love Origin Vapes and that price is phenomenal. Thx so much SMT

ETA: Unless they changed the price, 20% off $109.99 = $87.99

 

[Possum64]

You can get both at the same place, here's the OBS Cube X for $28.56 before the 10% off.

Thanks for the heads up! Just bought 4 of these....to go with the 8 Aspire Zelos 50w Kits and the 4 Eleaf iStick T80's that arrived recently . A few for Christmas presents and the rest to stash away!

 

[ShowMeTwice]

Oh yes, I know. I love Origin Vapes and that price is phenomenal. Thx so much SMT

ETA: Unless they changed the price, 20% off $109.99 = $87.99

Perhaps you were looking at something other than the KFL19?
It's been $89.99 since its release at Origin. With 20% off = $72.

Kayfun Lite 2019 by Svoe Mesto22mm

 

[muth]

Perhaps you were looking at something other than the KFL19?
It's been $89.99 since its release at Origin. With 20% off = $72.
View attachment 855179
Kayfun Lite 2019 by Svoe Mesto22mm

Yup, all I saw was Kayfun Lite 2019 Special Edition. I read all about it and didn't see anything special. It was a KFL 2019

Thx for the link

 

[Mordacai]

Hi Sara

Currently in hospital again with anemia but feeling a bit better. And the good news is from my recent PET scan that the lymphoma is in complete remission. Just the stem cell treatment to go now to try and fix it that way.

I'm still very positive

Hope that you're OK too

Sorry to hear that you're not too great at the moment @charlie1465, hope you feel better soon. Seems we're all having weird issues of some sort.

I had to go to hospital on Thursday 28/11 @22:00, due to a massive amount of pain, numbness and altered sensation in my right arm and shoulder with swelling as well. Had a horrible time as I can't leave my partner by herself as she's my support network and also has muscular dystrophy (still don't know exactly what type) and she has to use a wheelchair out and about due to some mobility limitations.

Was sent from A+E to an out of hours doctors and had to wait 5 hours to see a doctor, who then said the same thing as the paramedic that assessed me. It's neurological, and I don't know why you've been sent here as we can't do anything here.

So was then sent back to A+E with the use of only one arm and not given any help with getting me and my partner there. So had to suck it up and do it, which raised my righteous indignance levels to 11.

Had X Ray's of shoulder and forearm after another assessment in A+E where bloods were taken and promised a ultrasound scan, was then sent to an ambulatory care unit in the hospital which was more of a joke. As they wanted to take bloods, even though they had been taken. They didn't even check the system for them!...

As at this point they're thinking that I could have a VTE or clot without anything in the blood work confirming it!...

Got the right arm ultrasound scanned, and of course me being me. Asked the ultrasonographer what they were seeing and they were wonderful, and confirmed no VTE whatsoever.

So back to this ambulatory care unit, where when I was called again the staff member could see that I had limitations and was racked with pain, and they walked off so that I had to pursue them.

They then promptly reiterate no VTE and can see that I have issues and discharge me form their care, and then complain about my attitude towards them without looking at their own!..

So at 12:00 29/11, that's 14 hours folks. I was kicked to the curb without any real idea what the problem is and nothing really put into place to find out either. And aren't they're supposed to have a duty of care!...

So not a great experience at all, and my partner is worried sick about me. And yes, she can be a pain. But she's my pain and I don't know what I'd do without her.

 

[Zazie]

That sounds like a lot of hell for worse than nothing. I am so sorry, @Mordacai.

 

[muth]

@Fidola13 No more Eightvape....sons a beaches. I just found an RTA I wanted for $15.99....won't ship Who you not voting for next election?

 

[muth]

Can you sand off a rainbow finish? @Bigfoot77 or anyone else here?

 

[Mordacai]

Thanks @Zazie, certainly summed up an exercise in futility and demonstrated various breaches of human and basic rights.

At least I wished folks interesting times when we left, as they were a delight to deal with.

I just hope that I can get to the bottom of things before nothing can be done, but it's not looking that hopeful after 24 years plus of issues and events.

As most medics I've dealt with seem lazy and or discriminatory, as years ago a GP without any specialist training or diagnostics put in my records that I have Fibromyalgia...

Then it gets repeated ad infinitum...

The kicker is that in July I had an MRI scan that showed moderate to severe damage to the facet joints in my spine without anything showing up in my bloods. And that's Fibromyalgia?..

So now I really feel that people must be made accountable for their actions.

 

[NolaMel]

Can you sand off a rainbow finish? @Bigfoot77 or anyone else here?

What mod are you trying to de-rainbow?

 

[muth]

Okay, I'm getting crazy. The walls are closing in on us MA residents and I'm trying to order things and getting shot down. I found an RTA where I won't get shot down but it's a rainbow which I don't want. Can I sand away the finish? I'll even try acid if that works. Anyone know?

 

[muth]

What mod are you trying to de-rainbow?

It's an RTA

 

[Ricky Vapes]

My mom got a little pet carrier for Stevie today Hoping to try to get her into it tomorrow so I can bring her home. She’s a good girl she knows her name as Stevie well now and comes when I call. She’s a tough yet sweet bunny but I worry about her being killed in a lumber yard everyday.

Wish me luck

 

[muth]

Sorry to hear that you're not too great at the moment @charlie1465, hope you feel better soon. Seems we're all having weird issues of some sort.

I had to go to hospital on Thursday 28/11 @22:00, due to a massive amount of pain, numbness and altered sensation in my right arm and shoulder with swelling as well. Had a horrible time as I can't leave my partner by herself as she's my support network and also has muscular dystrophy (still don't know exactly what type) and she has to use a wheelchair out and about due to some mobility limitations.

Was sent from A+E to an out of hours doctors and had to wait 5 hours to see a doctor, who then said the same thing as the paramedic that assessed me. It's neurological, and I don't know why you've been sent here as we can't do anything here.

So was then sent back to A+E with the use of only one arm and not given any help with getting me and my partner there. So had to suck it up and do it, which raised my righteous indignance levels to 11.

Had X Ray's of shoulder and forearm after another assessment in A+E where bloods were taken and promised a ultrasound scan, was then sent to an ambulatory care unit in the hospital which was more of a joke. As they wanted to take bloods, even though they had been taken. They didn't even check the system for them!...

As at this point they're thinking that I could have a VTE or clot without anything in the blood work confirming it!...

Got the right arm ultrasound scanned, and of course me being me. Asked the ultrasonographer what they were seeing and they were wonderful, and confirmed no VTE whatsoever.

So back to this ambulatory care unit, where when I was called again the staff member could see that I had limitations and was racked with pain, and they walked off so that I had to pursue them.

They then promptly reiterate no VTE and can see that I have issues and discharge me form their care, and then complain about my attitude towards them without looking at their own!..

So at 12:00 29/11, that's 14 hours folks. I was kicked to the curb without any real idea what the problem is and nothing really put into place to find out either. And aren't they're supposed to have a duty of care!...

So not a great experience at all, and my partner is worried sick about me. And yes, she can be a pain. But she's my pain and I don't know what I'd do without her.

O-M-G !!! Mordacai. I have never heard of such negligence in the medical field. That is horrifying. Can you get a hold of your primary care doc asap and get a proper referral? I thought the UK was up on all things medical. This is a travesty! And don't forget, don't be intimidated or pushed around by anyone. Demand to see their superiors so you can get the care you deserve. This demands legal action if nothing else is done for you.

 

[NolaMel]

It's an RTA

Theoretically, it should stainless? Worth a gentle sanding to test. You’d have to be able to disassemble it down to just the outer metal only tank piece for a chemical.

 

[muth]

View attachment 855189 View attachment 855191

My mom got a little pet carrier for Stevie today Hoping to try to get her into it tomorrow so I can bring her home. She’s a good girl she knows her name as Stevie well now and comes when I call. She’s a tough yet sweet bunny but I worry about her being killed in a lumber yard everyday.

Wish me luck

I wish you and Stevie the best. If you succeed what do you think will become of her offspring and the others? Do they hang in the lumber yard, too, or just Stevie?