Shinyitis Support Group

[Redbird11]

Just cross all tanks Off your list and get yourself a Brunhilde
Problem solved

Or maybe something reliable instead, like a smok tank?

 

[Daniel Forsyth]

Or maybe something reliable instead, like a SMOK tank?

SMOK reliable you say?

 

[Redbird11]

SMOK reliable you say?

Yeah. At least 1 out every 5 SMOK coils work. Is that not reliable?

 

[Blitzdonlife]

When you do please share your thoughts

Will do, if/when it gets here.

 

[Opinionated]

Okay, I know there are a few people who want to know what happened with the neurosurgeon today, and this will save me repeating all this in various PM's...

I'm home by the way, so I made it through the trip. (Yea!)

I need another back surgery, no getting around it at this point.. he is getting me in for surgery on Sept. 5, that's the fastest I can get scheduled.

He said that what is wrong isn't necessarily the narrowing of the canals that the nerve roots come out of...

What is happening is that above my last fusion with stabilizing hardware, I have that vertebrae slipping forward... except, it's 100% unstable (something not caught on the MRI)...

When I lie down flat, it's pretty much mild to moderate slippage, not a huge deal all things considered. However, he took xrays of me standing, and that's where the slippage becomes severe. When I stand up, the slippage is an additional 7cm from when I'm laying down, and when I lean slightly forward like I do when puttimg my weight on my cane, it slips an additional 3 cm from there...

So basically, with every move I make that is not laying down, my spine above my last fusion, is just running around all over the place and pinching every possible nerve..

Hence, why I'm okay when I stay in bed, and not okay when I'm up and trying to do activities..

So, what he's going to do is remove the rod and screws that are there from the last fusion, and fuse where my vertebrae are slipping, and then put in a larger rod, new screws top and bottom, and stabilize my spine again.

He said this will not be some cure all because of everything going on with my spine and my nerves otherwise, coupled of course with the CRPS, so it's not some miracle cure, but he thinks it should knock down, by around 50 - 60%, my pain levels, and get me back to where I can cook again and where showering isn't like being murdered and such...

Basically, he's hopeful we can get me back to being a normal disabled person, instead of someone who is constantly bedridden...

So, it's going to be hard, this is major spinal surgery, one that will take a solid year to heal from... but we should, if all goes well, be able to get the pain back to manageable levels... God willing...

So that's it, surgery September 5...

 

[AngeNZ]

Okay, I know there are a few people who want to know what happened with the neurosurgeon today, and this will save me repeating all this in various PM's...

I'm home by the way, so I made it through the trip. (Yea!)

I need another back surgery, no getting around it at this point.. he is getting me in for surgery on Sept. 5, that's the fastest I can get scheduled.

He said that what is wrong isn't necessarily the narrowing of the canals that the nerve roots come out of...

What is happening is that above my last fusion with stabilizing hardware, I have that vertebrae slipping forward... expect, it's 100% unstable (something not caught on the MRI)...

When I lie down flat, it's pretty much mild to moderate slippage, not a huge deal all things considered. However, he took xrays of me standing, and that's where the slippage becomes severe. When I stand up, the slippage is an additional 7cm from when I'm laying down, and when I lean slightly forward like I do when puttimg my weight on my cane, it slips an additional 3 cm...

So basically, with every move I make that is not laying down, my spine above my last fusion, is just running around all over the place and pinching every possible nerve..

Hence, why I'm okay when I stay in bed, and not okay when I'm up and trying to do activities..

So, what he's going to do is remove the rod and screws that are there from the last fusion, and fuse where my vertebrae are slipping, and then put in a larger rod, new screws top and bottom, and stabilize my spine again.

He said this will not be some cure all because of everything going on with my spine and my nerves otherwise, coupled of course with the CRPS, so it's not some miracle cure, but he thinks it should knock down, by around 50 - 60%, my pain levels, and get me back to where I can cook again and where showering isn't like being murdered and such...

Basically, he's hopeful we can get me back to being a normal disabled person, instead of someone who is constantly bedridden...

So, it's going to be hard, this is major spinal surgery, one that will take a solid year to heal from... but we should, if all goes well, be able to get the pain back to manageable levels... God willing...

So that's it, surgery September 5...

Once you get your head around it all, the surgery idea will make more sense. Especially if it gives you back your independence and mobility. It's a er of a situation to be in, and I hope like hell things will improve for you

 

[Opinionated]

Once you get your head around it all, the surgery idea will make more sense. Especially if it gives you back your independence and mobility. It's a er of a situation to be in, and I hope like hell things will improve for you

I've spent the last year and a half avoiding this really... I waited until I couldn't wait any longer and knew walking in there was no choice but to do whatever he thought best..

So regardless I'm okay with it, I know I'm out of options and I get it.. I swore 20 years ago I'd never go through this again... but there's no choice, a few injections won't fix it.... (Would have been nice though if it could... lol)

I'm upset as I know what's before me, but need more to give myself a chance at some semblance of normalcy.. I can't take this anymore.

So I'm good with it... for real.

This is probably going to be the busiest month of my life though.. I have to find the time, and physical ability, to move, I have to prepare at least 6 months worth of ejuice, run around for all the pre-surgical appointments (I have to do a sleep study before surgery: have a pre-surgical appointment with his PA: plus a pre-surgical appointment with anesthesiology all in the next month... lol) etc.

I feel overwhelmed at this point just because of that... lol

I love you, and thank you from the bottom of my heart for the kind wishes..

 

[Pigs]

Okay, I know there are a few people who want to know what happened with the neurosurgeon today, and this will save me repeating all this in various PM's...

I'm home by the way, so I made it through the trip. (Yea!)

I need another back surgery, no getting around it at this point.. he is getting me in for surgery on Sept. 5, that's the fastest I can get scheduled.

He said that what is wrong isn't necessarily the narrowing of the canals that the nerve roots come out of...

What is happening is that above my last fusion with stabilizing hardware, I have that vertebrae slipping forward... except, it's 100% unstable (something not caught on the MRI)...

When I lie down flat, it's pretty much mild to moderate slippage, not a huge deal all things considered. However, he took xrays of me standing, and that's where the slippage becomes severe. When I stand up, the slippage is an additional 7cm from when I'm laying down, and when I lean slightly forward like I do when puttimg my weight on my cane, it slips an additional 3 cm from there...

So basically, with every move I make that is not laying down, my spine above my last fusion, is just running around all over the place and pinching every possible nerve..

Hence, why I'm okay when I stay in bed, and not okay when I'm up and trying to do activities..

So, what he's going to do is remove the rod and screws that are there from the last fusion, and fuse where my vertebrae are slipping, and then put in a larger rod, new screws top and bottom, and stabilize my spine again.

He said this will not be some cure all because of everything going on with my spine and my nerves otherwise, coupled of course with the CRPS, so it's not some miracle cure, but he thinks it should knock down, by around 50 - 60%, my pain levels, and get me back to where I can cook again and where showering isn't like being murdered and such...

Basically, he's hopeful we can get me back to being a normal disabled person, instead of someone who is constantly bedridden...

So, it's going to be hard, this is major spinal surgery, one that will take a solid year to heal from... but we should, if all goes well, be able to get the pain back to manageable levels... God willing...

So that's it, surgery September 5...

Love and best wishes

 

[AngeNZ]

I changed my FT order this morning, to the FL DL version - cuz I could
I ordered:
$10.32 Dvarw DL FL Styled RTA Rebuildable Tank Atomizer - 6ml (24*21mm (OD*ID)) / 316 stainless steel + glass / 24mm diameter at FastTech - Free Shipping
$8.13 SXK Replacement Stainless Steel Top Cap + PC Tank + PEI Tank Kit - 3.5ml / for Dvarw MTL FL 24mm RTA at FastTech - Free Shipping
$4.43 2PCS SXK Replacement Dual Hole Airflow AFC Insert for Dvarw DL FL 24mm RTA 2-pack - 2*2.0mm/2*3.0mm at FastTech - Free Shipping

Why not the FL version. I am curious by nature and also which shipping options are you picking that the packages are reaching NZ quite fast? (given that it is FastTech) . Does the one side airflow affect to much the amount of air? the last question is maybe more aimed at those who have the DL FL

I wondered the exact same thing. My main reason was the difference in the airflow inserts. The DL Dvarw comes with 3mm, 3.5mm, 4mm & 4.5mm. But after finding that info out on the FL DL inserts:

I decided that the 2x3mm or 2x2.5mm should be airy enough (esp. for a MTL vaper )

Edited to add: I've been using NZ Express epacket - last order took just under 3 weeks

The math underneath

2x3mm=4.24mm ??? I though it will be 6mm hmm

And does the MTL 3.5 tank fit the DL FL? I am ware you know your stuff that is why I ask

Yep, despite that 24mm FL SXK 3.5ml Tank being labeled in its description as for the 24mm MTL FL - that's just an error by FT.

The maths is confusing. But I think it's to do with tubes of air hitting a coil, compared to a huge single tube hitting that coil. Someone else can explain to us the dynamics of it

 

[AngeNZ]

I've spent the last year and a half avoiding this really... I waited until I couldn't wait any longer and knew walking in there was no choice but to do whatever he thought best..

So regardless I'm okay with it, I know I'm out of options and I get it.. I swore 20 years ago I'd never go through this again... but there's no choice, a few injections won't fix it.... (Would have been nice though if it could... lol)

I'm upset as I know what's before me, but need more to give myself a chance at some semblance of normalcy.. I can't take this anymore.

So I'm good with it... for real.

This is probably going to be the busiest month of my life though.. I have to find the time, and physical ability, to move, I have to prepare at least 6 months worth of ejuice, run around for all the pre-surgical appointments (I have to do a sleep study before surgery: have a pre-surgical appointment with his PA: plus a pre-surgical appointment with anesthesiology all in the next month... lol) etc.

I feel overwhelmed at this point just because of that... lol

I love you, and thank you from the bottom of my heart for the kind wishes..

I've had over 15 surgeries during the past 20 years. And I'm damn near refusing to have any more - so yes, I understand what a huge deal this will be. Just get yourself through the move first, then deal with everything else

 

[NolaMel]

I've spent the last year and a half avoiding this really... I waited until I couldn't wait any longer and knew walking in there was no choice but to do whatever he thought best..

So regardless I'm okay with it, I know I'm out of options and I get it.. I swore 20 years ago I'd never go through this again... but there's no choice, a few injections won't fix it.... (Would have been nice though if it could... lol)

I'm upset as I know what's before me, but need more to give myself a chance at some semblance of normalcy.. I can't take this anymore.

So I'm good with it... for real.

This is probably going to be the busiest month of my life though.. I have to find the time, and physical ability, to move, I have to prepare at least 6 months worth of ejuice, run around for all the pre-surgical appointments (I have to do a sleep study before surgery: have a pre-surgical appointment with his PA: plus a pre-surgical appointment with anesthesiology all in the next month... lol) etc.

I feel overwhelmed at this point just because of that... lol

I love you, and thank you from the bottom of my heart for the kind wishes..

I’m sorry you have to go through it, happy that it will bring a some relief, wish it was already September (with everything done)... hugs and prayers, sweet lady. You know you’ll be in my thoughts.

 

[Katya]

I've spent the last year and a half avoiding this really... I waited until I couldn't wait any longer and knew walking in there was no choice but to do whatever he thought best..

So regardless I'm okay with it, I know I'm out of options and I get it.. I swore 20 years ago I'd never go through this again... but there's no choice, a few injections won't fix it.... (Would have been nice though if it could... lol)

I'm upset as I know what's before me, but need more to give myself a chance at some semblance of normalcy.. I can't take this anymore.

So I'm good with it... for real.

This is probably going to be the busiest month of my life though.. I have to find the time, and physical ability, to move, I have to prepare at least 6 months worth of ejuice, run around for all the pre-surgical appointments (I have to do a sleep study before surgery: have a pre-surgical appointment with his PA: plus a pre-surgical appointment with anesthesiology all in the next month... lol) etc.

I feel overwhelmed at this point just because of that... lol

I love you, and thank you from the bottom of my heart for the kind wishes..

One thing at a time. That's all you can do. It is overwhelming so you need to pace yourself. One foot ahead of the other. If you think about all the things you need to do all the time you'll most likely fail.

I believe in making lists () and organizing tasks.

Your surgery and health are your #1 priority right now. I believe you've made the right decision and hope and pray that everything goes well.

And if there's anything we can do to help, just holler.

 

[NolaMel]

I've had over 15 surgeries during the past 20 years. And I'm damn near refusing to have any more - so yes, I understand what a huge deal this will be. Just get yourself through the move first, then deal with everything else

You’re far too young to be fallin’ apart like that, kiddo! Don’t make me come over there and bubble wrap you

 

[Katya]

I've had over 15 surgeries during the past 20 years. And I'm damn near refusing to have any more - so yes, I understand what a huge deal this will be. Just get yourself through the move first, then deal with everything else

You're a superwoman, Ange. I always suspected that.

 

[Opinionated]

I've had over 15 surgeries during the past 20 years. And I'm damn near refusing to have any more - so yes, I understand what a huge deal this will be. Just get yourself through the move first, then deal with everything else

Dang... that's just, wow...

I second what Mel said... sounding like bubble wrap is a good idea for you!

Thank you, and everyone else, for your kindness.

That said, Mel has my phone numbers, so if I'm not around much and you all want an update, just have Mel give me a call..

 

[ShowMeTwice]

Okay, I know there are a few people who want to know what happened with the neurosurgeon today, and this will save me repeating all this in various PM's...

I'm home by the way, so I made it through the trip. (Yea!)

I need another back surgery, no getting around it at this point.. he is getting me in for surgery on Sept. 5, that's the fastest I can get scheduled.

He said that what is wrong isn't necessarily the narrowing of the canals that the nerve roots come out of...

What is happening is that above my last fusion with stabilizing hardware, I have that vertebrae slipping forward... except, it's 100% unstable (something not caught on the MRI)...

When I lie down flat, it's pretty much mild to moderate slippage, not a huge deal all things considered. However, he took xrays of me standing, and that's where the slippage becomes severe. When I stand up, the slippage is an additional 7cm from when I'm laying down, and when I lean slightly forward like I do when puttimg my weight on my cane, it slips an additional 3 cm from there...

So basically, with every move I make that is not laying down, my spine above my last fusion, is just running around all over the place and pinching every possible nerve..

Hence, why I'm okay when I stay in bed, and not okay when I'm up and trying to do activities..

So, what he's going to do is remove the rod and screws that are there from the last fusion, and fuse where my vertebrae are slipping, and then put in a larger rod, new screws top and bottom, and stabilize my spine again.

He said this will not be some cure all because of everything going on with my spine and my nerves otherwise, coupled of course with the CRPS, so it's not some miracle cure, but he thinks it should knock down, by around 50 - 60%, my pain levels, and get me back to where I can cook again and where showering isn't like being murdered and such...

Basically, he's hopeful we can get me back to being a normal disabled person, instead of someone who is constantly bedridden...

So, it's going to be hard, this is major spinal surgery, one that will take a solid year to heal from... but we should, if all goes well, be able to get the pain back to manageable levels... God willing...

So that's it, surgery September 5...

If he can knock down 50-60% of your current pain level that would be huge for you. Especially to be able to get back to doing things you enjoy.

Spinal fusions just, and you already know this very well, there is no other way to put it, suck. But at least you know what you are in for, from your prior, what the post surgery, rehab, PT and recovery will be like.

You are a strong woman and have amazing support from DH and family.

My thoughts and prayers will be with you OP.

 

[Opinionated]

If he can knock down 50-60% of your current pain level that would be huge for you. Especially to be able to get back to doing things you enjoy.

Spinal fusions just, and you already know this very well, there is no other way to put it, suck. But at least you know what you are in for, from your prior, what the post surgery, rehab, PT and recovery will be like.

You are a strong woman and have amazing support from DH and family.

My thoughts and prayers will be with you OP.

Thank you so much! my love to you!

 

[ShowMeTwice]

I've had over 15 surgeries during the past 20 years. And I'm damn near refusing to have any more - so yes, I understand what a huge deal this will be. Just get yourself through the move first, then deal with everything else

Geez Ange, you sound similar to what my wife went through.

And I was going to bubble wrap her!!!

 

[AngeNZ]

Good morning, goodnight, good afternoon!

Hello Shinies! I need to get back to work, but first a question--anyone used this baby? Recommended in another thread. Looks good.

$15.73 Gata Styled MTL / DLH RTA Rebuildable Tank Atomizer - 4/2ml / 304 stainless steel + glass / 24*21mm (OD*ID) at FastTech - Free Shipping

It's the latest by QP who also make my Juggerknot mini RTA. The flavour of which is frickin amazing, along with a very easy to coil/wick deck. If the Gata had slightly more air than its 2.7mm id I'd be ordering one
Gata RTA By QPDesign - 24mm - 2 / 4ml - MTL / DLH - Single Coil: FastTech Forums

 

[Katya]

If the Gata had slightly more air than its 2.7mm id I'd be ordering one

Bingo! Added to the list.