Shinyitis Support Group

[Letitia]

Okay, I know there are a few people who want to know what happened with the neurosurgeon today, and this will save me repeating all this in various PM's...

I'm home by the way, so I made it through the trip. (Yea!)

I need another back surgery, no getting around it at this point.. he is getting me in for surgery on Sept. 5, that's the fastest I can get scheduled.

He said that what is wrong isn't necessarily the narrowing of the canals that the nerve roots come out of...

What is happening is that above my last fusion with stabilizing hardware, I have that vertebrae slipping forward... except, it's 100% unstable (something not caught on the MRI)...

When I lie down flat, it's pretty much mild to moderate slippage, not a huge deal all things considered. However, he took xrays of me standing, and that's where the slippage becomes severe. When I stand up, the slippage is an additional 7cm from when I'm laying down, and when I lean slightly forward like I do when puttimg my weight on my cane, it slips an additional 3 cm from there...

So basically, with every move I make that is not laying down, my spine above my last fusion, is just running around all over the place and pinching every possible nerve..

Hence, why I'm okay when I stay in bed, and not okay when I'm up and trying to do activities..

So, what he's going to do is remove the rod and screws that are there from the last fusion, and fuse where my vertebrae are slipping, and then put in a larger rod, new screws top and bottom, and stabilize my spine again.

He said this will not be some cure all because of everything going on with my spine and my nerves otherwise, coupled of course with the CRPS, so it's not some miracle cure, but he thinks it should knock down, by around 50 - 60%, my pain levels, and get me back to where I can cook again and where showering isn't like being murdered and such...

Basically, he's hopeful we can get me back to being a normal disabled person, instead of someone who is constantly bedridden...

So, it's going to be hard, this is major spinal surgery, one that will take a solid year to heal from... but we should, if all goes well, be able to get the pain back to manageable levels... God willing...

So that's it, surgery September 5...

Sending love & gentle hugs

 

[Letitia]

3f or 2f best bet to get things in a reasonable time right now? 3f has everything 24 ship, 2f doesn’t but is cheaper. I’m a little leery, since I finally got my $$ back from vapeciga after filing a PayPal dispute. They wouldn’t reply to me or PayPal. Quite frustrating. Looking to not repeat that experience. Also, which shipping method is best right now?

My last 24 hour ship took around 8-10 weeks from 3f. Wouldn't order unless you are willing to go with DHL shipping.

 

[Javichu]

Hey guys and gals!!

Back is killing me,another night sleeping in one of those reclining chairs...
not good.

Pops doing better but he still has to stay in the hospital for awhile.
Dialysis+Radiotherapy is not a good combo.

Got home an hour ago and placed my order for the Hellvape Destiny rta,all black.
Spanish website so i should be getting it delivered tomorrow along with some 2 new chubby gorilla bottles.

Could use a hand thou,was thinking that since i spend so many hours at the hospital without doing squat i might give the whole DIY coil thing a try.

Was looking at videos of people using something like this:

https://www.amazon.es/Coiling-CW-20...ords=herramienta+coils&qid=1595950210&sr=8-11

Guys got any info on good brand names for those coil jigs?
Would just need 2 of them so i can make 2.5mm/3.0mm.

Wire wise i think I'm starting with 26g kanthal,after much reading seems the right choice for a beginner like me.

Anyway,I'm off to cook myself a decent meal (hospital food sucks),small siesta then I'm off again to the hospital.

Miss you guys,take care y'all

 

[Redbird11]

Hey guys and gals!!

Back is killing me,another night sleeping in one of those reclining chairs...
not good.

Pops doing better but he still has to stay in the hospital for awhile.
Dialysis+Radiotherapy is not a good combo.

Got home an hour ago and placed my order for the Hellvape Destiny rta,all black.
Spanish website so i should be getting it delivered tomorrow along with some 2 new chubby gorilla bottles.

Could use a hand thou,was thinking that since i spend so many hours at the hospital without doing squat i might give the whole DIY coil thing a try.

Was looking at videos of people using something like this:

https://www.amazon.es/Coiling-CW-20-Builder-Bobina-Winding/dp/B071YTTMWW/ref=sr_1_11?__mk_es_ES=ÅMÅŽÕÑ&dchild=1&keywords=herramienta+coils&qid=1595950210&sr=8-11

Guys got any info on good brand names for those coil jigs?
Would just need 2 of them so i can make 2.5mm/3.0mm.

Wire wise i think I'm starting with 26g kanthal,after much reading seems the right choice for a beginner like me.

Anyway,I'm off to cook myself a decent meal (hospital food sucks),small siesta then I'm off again to the hospital.

Miss you guys,take care y'all

I think the ones that you linked to are pretty popular. I have seen people on here saying positive things about those Kuro coil tools.

 

[Katya]

Was looking at videos of people using something like this:

https://www.amazon.es/Coiling-CW-20-Builder-Bobina-Winding/dp/B071YTTMWW/ref=sr_1_11?__mk_es_ES=ÅMÅŽÕÑ&dchild=1&keywords=herramienta+coils&qid=1595950210&sr=8-11

Hello, Cloud! That's what I use--I love them.

 

[Katya]

You really do your research before you buy something, don't you? I like that. It increases the chance of buying something you will actually use and enjoy.

You have no idea.

 

[Katya]

I love the flavor from the Hellvape MD, but do have to fill carefully, due to the tank being short, when I fill it, the bottle nozzle sits on the chimney on top, which causes the juice not to flow down into the tank, and if the juice comes out of the top, it can go down the chimney hole and leak, so I do find I have to be careful filling.

You may not have that same problem, due to 70pg and juice being a lot thinner.

I really like the atty, I was just a little worried about the leaks--there's always at least one person in the comments section (YT, vendors' reviews, etc.) complaining about leaking from the bottom, through the air vents. Oh, well. People like to complain--sometimes it's user error, sometimes not. Sometimes it's a design flaw.

Thanks for your response!

 

[Katya]

Just flattening the curve.

 

[Katya]

I am counting on you for a in depth review on the Ares 2 in the near future then.

Let's hope USPS can manage that last stretch from the PO to my mailbox.

Don't hold your breath. I totally jinxed it.

July 27, 2020, 7:54 am
Out for Delivery

July 28, 2020, 1:54 am
Awaiting Delivery Scan
The delivery status of your item has not been updated as of July 28, 2020, 1:54 am. We apologize that it may arrive later than expected.

Expected Delivery on
TUESDAY 28 JULY 2020 between 9:15am and 1:15pm

Status Alert July 28, 2020 at 1:54 am Awaiting Delivery Scan

Expected delivery
July 30, 08:00PM

 

[Redbird11]

I would be thrilled to throw a ball that well at the age of 80.

 

[Redbird11]

Don't hold your breath. I totally jinxed it.

July 27, 2020, 7:54 am
Out for Delivery

July 28, 2020, 1:54 am
Awaiting Delivery Scan
The delivery status of your item has not been updated as of July 28, 2020, 1:54 am. We apologize that it may arrive later than expected.

Expected Delivery on
TUESDAY 28 JULY 2020 between 9:15am and 1:15pm

Status Alert July 28, 2020 at 1:54 am Awaiting Delivery Scan

Expected delivery
July 30, 08:00PM

Ok, well I guess we can expect your review by Friday?

 

[Zazie]

Off the list. I looked more carefully--it's again either 1.5mm or 2.7mm under the coil(and ultem inserts). I want an an air hole that's in between 1.5 and 2.7mm.

Back on the list, tentatively, Hellvape MD. @Zazie (and @Nailz ?) Any pointers? Warnings? Words of encouragement? The size of juice flow openings scares me a bit because I vape high PG (70%) eliquids. Any leaking issues with your Hellvape MD? Any other reason I shouldn't be getting one of those?

Please speak now or forever hold your peace.

I have to hold my peace: I don't have a Hellvape MD to speak about.

 

[Katya]

Ok, well I guess we can expect your review by Friday?

I seriously doubt it. They obviously lost my package--it was out for delivery yesterday. They have no idea where it is now.

 

[Katya]

I have to hold my peace: I don't have a Hellvape MD to speak about.

Well, that a reasonable decision.

 

[Zazie]

Ha! I throw better than Fauci. (Not much of an achievement, I know.)

 

[Zazie]

Today for me was hospital visits in the morning and parent teacher interwiews on zoom all afternoon. Nurses and teachers deserve medals. I'm hoping the new Covid world is reminding us as a society who to truly value

Yeah, and maybe even start paying those workers deemed essential more than peanuts.

 

[Zazie]

3f or 2f best bet to get things in a reasonable time right now? 3f has everything 24 ship, 2f doesn’t but is cheaper. I’m a little leery, since I finally got my $$ back from vapeciga after filing a PayPal dispute. They wouldn’t reply to me or PayPal. Quite frustrating. Looking to not repeat that experience. Also, which shipping method is best right now?

Unlike @Letitia, 3fVape has been very quick for me lately. C'est un mystère.

 

[Redbird11]

I seriously doubt it. They obviously lost my package--it was out for delivery yesterday. They have no idea where it is now.

Maybe your mail person is testing it out for you?

 

[JCinFLA]

The Kuro Koiler tools are available for less than the approx. $20 mentioned in RT's video.

$4.68 Kuro Koiler Wire Coiling Tool (3-Piece Set) - CW-20 + CW-25 + CW-30 at FastTech - Free Shipping - Temporarily sold out, but they're the authentic ones, and are by far the lowest price for the whole set of 3

Or...if you need just the 2.5mm and/or 2mm:

Kuro Koiler Wire Coiling Tool - $3.89 each, temp. out of the 3mm one.

Could try coupon code VAPOR25 to see if it may still work there.

I'm going to keep checking for other places that may have the whole set. They're amazing for making coils!

 

[Katya]

Maybe your mail person is testing it out for you?

Right. Unbelievable. My local post office had it yesterday, it was on the truck, and now it's gone. They couldn't manage the distance of 1/4 mile.