Heather's Heavenly Vapes - THE BIG THREAD (Part 6)

Hulamoon

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A tumor board makes decisions on whether or not a chosen surgery is appropriate for each case. These are the best eyes and minds that deal with cancers everyday.

The best surgeons are board certified and consult with each other. I prefer to have a board certified surgeon instead of a doctor that will just do what I want and probably do a bad job while looking at money as their bottom line.

There will be a team working with me and on me. Not only the surgeon that will do the HIPEC but a GI specialist and a gynecologist oncologist surgeon. They will be removing my ovaries and uterus (if it's a go).

I'm fine with them getting rid of those parts since I am well past child bearing age. The less things in me that are vulnerable to cancer metastasis the better.

HIPEC is a long surgery. First they find and cut out any tumors that are present, then remove my lady parts, then use a heated chemo to wash the inside of my belly to hopefully kill any lingering cancer floaters. The GI surgeon will be on hand in case any of my remaining colon shows cancer in or on it.

It is a major surgery that can take up to 9 hours. As always, there is risk. I'm willing to take that risk. It does not guarantee that I will be cancer free nor does it guarantee that the cancer won't come back elsewhere. In my mind, the saving grace is that none of my lymph nodes have shown cancer.

Chemo rarely makes cancer die completely. It just gets people into a place where surgery becomes an option where it wasn't before.

Even if it buys me more time, it will be worth it.
{{{Robin}}} How soon will you get a "date" for the opinion and a date for the surgery. It seems from your last count that the chemo alone ain't doing the job fast enough, from the perspective of all of us who love you.
 

jwbnyc

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Wow.

Just pulled a Two and a half year old bottle of Double Trouble out of the cobwebby recesses of the vape cabinet.

This stuff is really good.

I think I might bump the nicotine up a bit, on my next order, just as a treat.

So tasty.

Oh shoot. Just checked; 12 mg/ml is the limit.

Oh well.

Tasty tasty tasty.
 

Robino1

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{{{Robin}}} How soon will you get a "date" for the opinion and a date for the surgery. It seems from your last count that the chemo alone ain't doing the job fast enough, from the perspective of all of us who love you.

Wednesday I find out if I'm a candidate and we will schedule the surgery. I have to be off chemo for 6 weeks but got a bit of a jump start by dropping the Avastin this last chemo session. Avastin is a blood thinner.

My CEA rose last check to 119. More than likely due to the 2 new nodules that popped up.

Wednesday is the date we find out if the ball can start rolling. As soon as I find out, I will be sure to let you all know. <3
 

cats5365

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Wednesday I find out if I'm a candidate and we will schedule the surgery. I have to be off chemo for 6 weeks but got a bit of a jump start by dropping the Avastin this last chemo session. Avastin is a blood thinner.

My CEA rose last check to 119. More than likely due to the 2 new nodules that popped up.

Wednesday is the date we find out if the ball can start rolling. As soon as I find out, I will be sure to let you all know. <3
I hope you can get into the new treatment plan. I don't post a lot, but you are always in my thoughts. I wish I could mash that rainbow button a bazillion times for you.

(((hugs)))
 

Bronze

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A tumor board makes decisions on whether or not a chosen surgery is appropriate for each case. These are the best eyes and minds that deal with cancers everyday.

The best surgeons are board certified and consult with each other. I prefer to have a board certified surgeon instead of a doctor that will just do what I want and probably do a bad job while looking at money as their bottom line.

There will be a team working with me and on me. Not only the surgeon that will do the HIPEC but a GI specialist and a gynecologist oncologist surgeon. They will be removing my ovaries and uterus (if it's a go).

I'm fine with them getting rid of those parts since I am well past child bearing age. The less things in me that are vulnerable to cancer metastasis the better.

HIPEC is a long surgery. First they find and cut out any tumors that are present, then remove my lady parts, then use a heated chemo to wash the inside of my belly to hopefully kill any lingering cancer floaters. The GI surgeon will be on hand in case any of my remaining colon shows cancer in or on it.

It is a major surgery that can take up to 9 hours. As always, there is risk. I'm willing to take that risk. It does not guarantee that I will be cancer free nor does it guarantee that the cancer won't come back elsewhere. In my mind, the saving grace is that none of my lymph nodes have shown cancer.

Chemo rarely makes cancer die completely. It just gets people into a place where surgery becomes an option where it wasn't before.

Even if it buys me more time, it will be worth it.
OK, I got it now. Thanks.

I tend to get more introspective when things aren't going well. I truly hate burdening people with my problems. I absolutely adore the Army. I don't want to bring anyone down. I remember when Frank got his diagnosis he was ready to go to the Lord. I admired his strength and conviction as he prepared to meet his God. I'm not ready to be as gracious. There is too much fight in me.

Until all options are exhausted...
HELL NO!! Your job is to do exactly what you've been doing. Researching, understanding, evaluating, making decisions, kickingass and not taking NO for an answer!
 

kkay59

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Thanks for keeping us in the loop, Robin. I hope that things go well for you, and that you are very pleased with the result. We want to know how you are, so don't think you are a burden. Some of us are praying for you, and that will help us in that regard too. Keep the positive attitude, and that makes a big difference. If you give up, your body will too. So stay strong, you got this!!!
 

Bunnykiller

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Finally had to change the spark plugs on the car..... after 207,000 miles... the middle one decided to go kaputt... the ceramic insulator in the core cracked and wouldnt fire at the tip... at first I thought it was one of the coils... luckily it wasnt, the plugs are expensive enuf as it is ( 13$ each) really didnt want to have to buy a 95$ coil ( there are 3 of them, 1 for each plug)
why they decided individual spark coils for each plug is a wonderful idea should go back to Engineering Economics class...
true, a single coil will fire off 3 times more often along with a distributor ( 3 cyl engine) but you only have to make a single coil 2X robust as the single coil units for long life...
and it really applies to the V8 motors that have 8 coils... that would exceed the cost of a single coil and distributor assembly by 3Xs... o_O
 

kkay59

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Well we didn't get any rain yesterday, I was sure we would. It was blazing hot yesterday, the uv index was through the roof. This morning my house was in the high 70 temperature range, which is normal. Then the electricity went out, and it was heating up fast in here. Thankfully close to an hour and a half later, they got it back on.
 

retic1959

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  • Jul 28, 2013
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    Wednesday I find out if I'm a candidate and we will schedule the surgery. I have to be off chemo for 6 weeks but got a bit of a jump start by dropping the Avastin this last chemo session. Avastin is a blood thinner.

    My CEA rose last check to 119. More than likely due to the 2 new nodules that popped up.

    Wednesday is the date we find out if the ball can start rolling. As soon as I find out, I will be sure to let you all know. <3
    Just remember we have a date for a drink in a year from , I intend to keep it , might have to get BK to mount an engine in a wheelchair for me but whatever it takes .
     

    retic1959

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  • Jul 28, 2013
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    I'm hoping Hula see's this . There's a Purevpn extension available for Firefox now . VPN made easy , connect ,disconnect with a click of the mouse . Another reason to drop the key logging , spyware ridden Google Chrome to the curb . I haven't touched Chrome since I found out about it being persistent . After you shut it down part of it remains active and continues to log you . Google , Apple and of course the evil empire of MS are on the crap list for the EU's new data protection law . I'm not a fan of the EU but I hope those three get reamed in court by the EU .
     

    woita

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    I'm not a fan of the EU but I hope those three get reamed in court by the EU .
    I am/was (a fan), but I fear the evil empires got the better lawyers - wouldn't have my hopes up for that :/

    BTW - running Linux since Kernel 2.0.34 (Suse 5.x it was, after having been a beta tester of windows 95 this was the time I decided 'nuff with the (censored) ;)

    PS: SCNR but this EU data protection law is the worst. It does not only apply to Internet giants with a huge legal team, but to every entity storing any data of any individual (storing can mean a piece of paper here). SO in essence youth soccer clubs need to provide data protection information to every player defining who has access to what data (phone-number in case a game is late e.g.) and for what reason. (which is someting that many clubs here are having headaches about - not a theoretical example)
    Another example: Take you fav bar where you got credit. So John, the bartender is keeping a list of what you had through the course of a month. In theory the business must provide you with a data protection sheet that informs you that your name is on a paper list and John (and maybe the boss Jim) have access to this list in order to keep your tab open.

    It's just plain stupid :)
     
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