Well Hello everyone. Sorry I have been going
through some pretty heavy depression. I am scared of what is going on with my heart. What I have is calcification of the whole heart not just the valves. It's pretty rare like 1-2%. They don't know what causes it and the docs here really don't have an answer. The Cleveland Clinic which is rated #1 in the US could possibly fix it better then it is but it is expensive. They accept Medicare but only as a partial payment. It's $565 just to get a second opinion based on previous echos and operative reports. The UofW will accept Medicare is closer and is ranked #27 in the nation for cardiac problems. I'm not ready to give up, my mind is still good and sharp, except when it comes to buying
vape stuff. I'm thinking of sending my records to the UW and see what they think. Here they are just watching and waiting for the inevitable. I still have severe aortic insufficiency and a worse leak then I had before surgery. What needs to happen is my aortic valve needs to be redone, my aortic root replaced and my mitral valve replaced. No one here is really qualified to do it and it is high risk like a <50/50 chance of survival. So I am weighing my options.
On the good side I get my new legs next Thursday so have to learn to walk all over again. Tried my test sockets yesterday and fit was good but being so much tighter is what I will have to get used too. It makes my calf muscles work more and tires them out pretty fast. These are going to be the best color yet plus my suction liners the new ones are black so they will look a lot better. Pics to follow.
I am supposed to see the specialist about treatment for Hep C next Friday but not sure how that is going to work. I don't absorb meds very well. Like they did a UA on me and my wife and even though we had the same gastric surgery she also takes the same pain pills I do about half as many and her levels were twice as high as mine, weird huh? Plus if anything is going to happen with my heart not sure if I should start it. I don't have any symptoms yet and my liver functions are still all normal so will have to wait and see.
Any way thats whats been going on with me. Nothing too exciting just having to make up my mind, again and you all know what that is like. Definately a problem. Think I will talk to my old doc and he will help, he still works in research. So I will contact him.