Hi Scott. Nice seeing you last night and welcome to the porch.im Scott that was in the chat hangout![]()
Hi Scott. Nice seeing you last night and welcome to the porch.im Scott that was in the chat hangout![]()
LOL thanks semiUh Scott, did you make a wrong turn back at the last corner... Hehe - he said he never ventured off the Reo porch. Welcome to the Greatest Porch on ECF...![]()
was good seeing you toHi Scott. Nice seeing you last night and welcome to the porch.
oh wow hun......my best to her...... and to you. I totally understand, but I know that's rough.I got a new roommate who is staying while she has radiation for lung cancer. And no matter how firmly I believe in the safety of vaping, I just can't bring myself to do it.
It is the magnetism of Deb's mysterious personality that does it.
Plus I talk about y'all a lot
quiet you!!! lolSo, that is why our ears are always burning. Scott - do not believe a single thing this woman says... LOL
Well... Except about me.... I really AM like that.So, that is why our ears are always burning. Scott - do not believe a single thing this woman says... LOL
! I am Cathy and I was not on the hangout... Sigh. Getting real frustrated trying to post on my phone tonight, but wanted to say Hi to everyone! Been a long day but almost home.im Scott that was in the chat hangout![]()
Thanks for your support and good wishes everyone, much appreciated.
Oh it's worse, much worse.
As I understand it, Lewy bodies are clumps of protein which destroy dopamine, a neurotransmitter. In Parkies they're localised in an area of the brain associated with motor control; hence the involuntary tremors. With LBD (also a degenerative disease) they're all over the brain and really screw you up big time. Depression, paranoia, chronic insomnia ... on top of the tremors.
As my friend is so young, there's very little medical treatment for Parkies (or LBD I suspect) as the drugs have such debilitating and harmful side effects.
BUT there are two rays of hope.
Firstly, she may not have Parkies at all, it could just be a rare form of distonia (don't ask!).
Secondly, if Parkies is confirmed, they reckon they could fit implants deep in her brain to stop the tremors. Risky, but better than strong drugs at her age.
Sorry to bang on about it but neither of us had realised what a terrible thing Parkies is (let alone LBD) or how little is known about it - especially early onset Parkies. There are good support groups here but, even after three years, I think she's still partially in denial and doesn't want to use them.
(Handy tip: If anyone you know loses their sense of smell and starts shaking and/or getting mood swings a few years later, think Parkies.)
Here is the happy dog I was laughing at last night in the hangout.
Here is the happy dog I was laughing at last night in the hangout.
good afternoon folks![]()
And in my news, Liz did find a temporary home for Loki. Complete with kids, which is a new experience for him, but he seems to like. He's still kinda stressed over everything, but at least he is staying at a good stable place.
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I've had to give up on the stealth vaping idea for now. I got a new roommate who is staying while she has radiation for lung cancer. And no matter how firmly I believe in the safety of vaping, I just can't bring myself to do it.
So I'm going to have to order some nicotine lozenges, but I'd forgotten how much they cost. It didn't seem that bad when I was comparing the cost to cigarettes, but compared to DIY liquid...![]()
Drive safe my friend.Hi Scott
! I am Cathy and I was not on the hangout... Sigh. Getting real frustrated trying to post on my phone tonight, but wanted to say Hi to everyone! Been a long day but almost home.
Saw that on the news. Better shape than I am that's for sure.This is mind-blowing, amazing and marvelous. 92-Year-Old Harriette Thompson Becomes Oldest Woman to Finish Marathon - NBC News
awwwwwwww so excited for y'all!! Can't wait to see before and after pics!Holy Cow! My vape budget took a hit ... couldn't put the old appliances back into a newly redone kitchen - so we sprang for a new gas stove, fridge, microwave and dishwasher. Then Janet said her pots and pans need replacing ... yep ... a new set of those should arrive this week.